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down to 2.5 mg of Pred and scared to make the next step

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Ulcerative Colitis
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Posted 2/1/2013 9:20 PM (GMT 0)
Been totally off pred for 2 weeks so far with pretty much no issues :)
Posted 2/1/2013 9:43 PM (GMT 0)
That's great. I think a lot of people are able to taper off and maintain remission. We just see so many horror stories here, we think it will happen to us. Good luck staying healthy :)
Posted 2/1/2013 10:47 PM (GMT 0)
I just went completely OFF pred 3 days ago and am doing pretty well. ( I started at 60 mg in November) I was on a moderate taper...did 5 mg for 5 days, then 2.5 for 3 days, then off. I have to agree about the rectal meds...I am doing suppositories of mesalamine/budesonide twice a day. I have a wee bit of blood, am only going 3x in the morning..not perfect, but SO great to be off the pred. I have to say, though, am a bit tired. Do not fear the oral meds..highly effective for me ( I have proctitis). Good Luck!
Posted 2/2/2013 4:10 AM (GMT 0)
Lucky for me no blood and only bms 2 or 3 time a day. I can live with that
Posted 2/2/2013 12:38 PM (GMT 0)
This is day 3 with no Pred, but this morning's bm had blood. I am really hoping it was just something I ate.

Scum...did you start rectal meds? I have never had those. Wondering what doc will say if this taper fails.
Posted 2/2/2013 5:26 PM (GMT 0)
No rectal med for me yet. I go in next month to my GI so will see how I am doing then. If not totally in remission I'll ask for rectals I think.
Posted 2/2/2013 8:37 PM (GMT 0)
Don't keep lowering the bar for what you'll accept, or keep raising it for your tolerance of symptoms.

My first question to you is this.....what are you going to do for your next set of symptoms that signify a flare?

q
Posted 2/2/2013 10:21 PM (GMT 0)
I am totally willing to try rectal meds. I am sure I'll probably need them in the future. Just saving for my next line of defense.
Posted 2/3/2013 7:23 AM (GMT 0)
well, keep us posted...

q
Posted 2/3/2013 11:18 PM (GMT 0)
I will. I'm still new at this UC stuff. Trying to keep from taking too many meds sice I am already on BP meds and Thyroid meds
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