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Ulcerative Colitis
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Posted 2/3/2013 4:21 AM (GMT 0)
Has anyone ever found themselves starting to get depressed waiting or a flareup to heal. It's been 12 weeks and I don't know if it is the flareup or prednisone getting me really down nd weepy. I am avoiding everyone!
Posted 2/3/2013 5:32 AM (GMT 0)
hang in there, yes the disease , especially when active is very frustrating, but it is not the end of the world. The prednisone definitely affects yourmood- no doubt about that.

give yourself permission to be upset and frustrated and down, but only for a while. I find it helps for me to think of it like another more 'common' disease, say like arthritis... you go through bad times but eventually find relief and have many good days too.

I think you are still pretty new to this condition, so hang in there, you'll figure out coping skills along the way
Posted 2/3/2013 6:35 AM (GMT 0)
In a word yes. I am feeling blue now and i know it is from having D for so long. I don't want to get out of bed and if I do I don't want to leave my apartment. Sometimes I don't know if the fatigue is from blood loss or being just being down.
Posted 2/3/2013 7:45 AM (GMT 0)
I've been going through this as well. I'm just so sick of being sick. Doing my best to keep my head up but it is very tough sometimes.
Posted 2/3/2013 7:57 AM (GMT 0)
It is from prednisone. It is not you. Let people around you read about the side effects of prednisone, to uderstand what are you going through and help you.
Posted 2/3/2013 11:48 AM (GMT 0)
Thanks everyone. I was wondering if it was the prednisone that makes me cry for no reason. No reason at all! lol And just wish moonface was the latest fashion. But there are people fare worse off. This support group helps me so much! You guy are pretty brave!
Thanks
Posted 2/3/2013 1:56 PM (GMT 0)
     Flares are very upsetting and prednisone sure doesn't help with the low feeling.   If the depression worsens ask your doctor to prescribe something mild for you. 
Posted 2/3/2013 9:00 PM (GMT 0)
Thanks, it makes me feel better talkin in this forum. I realize it isn't just me!
Posted 2/3/2013 10:33 PM (GMT 0)
Whenever I get a flareup it gets me down, especially when I see blood and/or am having a lot of other symptoms. I hate how much UC affects my life sometimes. It is really depressing not feeling in control of your own body despite eating well and exercising.
Posted 2/3/2013 10:37 PM (GMT 0)
Sara14. That's how I feel. I have no control over it. Plus I have almost cut myself off from the public between the pred jitters and face and having to stay within 5 min. Of a bathroom. The weeping comes out of left field.
Posted 2/3/2013 10:47 PM (GMT 0)
I get depressed as well. I hate having to analyse my symptoms and having to be on top of things. The paranoia of not knowing when a flare will strike is very unsettling... you never can be relaxed... like you are in the forest, alone and the enemy is out there all around you.
Posted 2/4/2013 6:08 PM (GMT 0)
Well I guess from reading, it comes with the turf. I just try to hide away on the weepy days. Not hard when you see a face the size of a globe looking back at you in the mirror. But I have my moments when all is calm in the flare up for a couple of hours and the weeping has subsided and I feel like it's going to bo ok. Then Ooops time for another bathroom episode. lol

Will be glad when I can get off pred and go into remission.
Thanks for your stories. Feels better to know I am not alone.
Posted 2/4/2013 6:54 PM (GMT 0)
I've been flaring for just 5 weeks now, and getting pretty frustrated and bummed by my slow recovery. I guess I cannot complain as you've been at it for 12 weeks. Yeah it is a real mind-killer, just wanting so badly to be yourself again and dreading getting too far from the toilet bowl. Each time reading what's left behind in the toilet like a bunch of tea leaves looking for optimistic signs that things are getting better, and hoping (sometimes in futility) that the next poop will be just as firm and blood free.

Gotta love prednisone as here are its side effects related to this "Psychic derangements may appear when corticosteroids are used, ranging from euphoria, insomnia, mood swings, personality changes, and severe depression, to frank psychotic manifestations. Also, existing emotional instability or psychotic tendencies may be aggravated by corticosteroids" (source ).
Posted 2/4/2013 8:54 PM (GMT 0)
Lol throw a little PMS in there and we have a new type of monster. So far today I have done the crying thing, felt blah and now have Roid rage. All while losing blood all day. I am forgetting what socializing is like. My doc told me to try cut down every 3 days instead of weekly to see if that helps. While staying on cortifoam and salofalk supp. Just really really sick of it. I wish the moon face went down as you decreased.
Posted 2/4/2013 11:07 PM (GMT 0)
iPod, you have never had a remission? Were you just diagnosed ? Welcome to the club!!
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