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28 mo old grandson; endo and colonoscopy; today!

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Ulcerative Colitis
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Posted 2/28/2013 12:38 AM (GMT 0)
Please can anyone  help ease this terrible feeling I have.  My  28 month old grandson underwent endo and colonoscopy today. He is Still not gaining weight - in fact he is losing while still yet growing taller. He has been on Pedia Sure milk since he was 5 months old. He still only barely weighs 20 lbs.  Very active indoors, still only has a 3 word vocabulary. He's been thru numerous bloodtests and gluten testing; Mri's,  and still no one actually has offered to help my daughter find out what is really going on with him. On a good note; we found out that a Ped. Gastro comes to our city once a month and she is actually the one who did the scopes today.  All said and done; she alerted us that she found a few spots on his colon; and that she took a few biopsies....OMG...  I was so worked up I started having angina issues and  HBP symptoms.  This little guy is so loving and sweet- Eats everything in sight - insatiable appetite, no blood or mucous in the bowels.  Typically a normal atypical 2 year old... with the exception that he does not gain weight and he does not talk...  Please help and let me know if indeed Colon Cancer can occur in babies like this......  I am so distraught I cannot stop crying and praying....... cry    shakehead    Thank You from the bottom of my heart!

 

Posted 2/28/2013 12:45 AM (GMT 0)
My son didnt talk until he was 4. He is normal health and weight at 16 yrs old...

Carlie
Posted 2/28/2013 12:51 AM (GMT 0)
I think you are being a worrywort although I would probably be the same. Don't count your chickens before they're hatched. It might not be as bad as your worries.
Posted 2/28/2013 1:04 AM (GMT 0)
I don't have any answers for you unfortunately. Just wanted to say I hope he is ok. My 17 month old is small too (not that small, but I do understand the worry these things can cause). Try to take a deep breath and relax and wait for the results. There isn't much you can do in the meantime. Some kids are just late talkers (think Einstein!). Good luck let us know how it goes.
Posted 2/28/2013 1:54 AM (GMT 0)
This forum is for UC not colon cancer. I suggest you calm down until you receive actual results. No point in stressing over nothing.
Posted 2/28/2013 2:24 AM (GMT 0)
Hi Grandmaworrywort,

I am sorry about your grandson, but try not to jump to any conclusions yet.  I can totally understand as I also worry alot and give myself alot of what if's.  I am currently working on it though and can tell you one thing that I try to tell myself is to look at the odds.  Chances are at that age it would not be something like colon cancer.  You are also taking action which is good --the Dr took the scopes and I am assuming you will have the biospy results back very soon and will hopefully know what you are dealing with.  I started reading Dale Carnegies book on how to stop worrying and he suggests to live in daytight compartments.  Meaning try not to forecast ahead...just deal with today and today only.  I know, easier said than done. 

As far as talking is concerned, I know lots of kids who are late talkers especially boys so I wouldn't worry about that now. 

I am glad you are addressing it w/ a Dr.  Pls keep us posted and we are here for you!

B

Posted 2/28/2013 5:21 AM (GMT 0)
hey there :)
Sounds like you have been through alot of stress with your grandson, who you clearly care about alot, having gone through such procedures at his young age.

However right now remain calm for his sake and the sake of your daughter. If he doesn't have diarrhoea, blood or mucous then i don't see how he can have UC. I seriously doubt colon cancer either. Just wait for the results, it doesn't sound like it's soemthing serious at this stage. It could just be a parasite or whatever. hopefully nothing.
keep us updated k?
Posted 2/28/2013 5:29 AM (GMT 0)
I hope it's nothing. My youngest daughter (non IBDer) didn't speak until she was 18 months and then started speaking in complete sentences and has a vocab of a child much older. She's also just 35 pounds and is almost six. She's the tallest kid in her class but she's just very skinny. My closest friend didn't speak until he was five - his teachers blamed his parents and told them all sorts of scary things but he's now a neuroscientist and probably hands down the most intelligent person I know. I wouldn't worry about that unless you have reason to.
Some inflammation is normal - everyone has it but it's generally transient. That's likely what the Dr saw. Why has he had an MRI? What symptoms have justified scopes? I'm not understanding what issues he's having exactly?
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