HealingWell
Search Close Search
☰

please read this!!!!! my personal cure

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/7/2013 9:29 PM (GMT 0)
****. Ok, that just asterisked laugh my ass off.
Posted 3/7/2013 10:20 PM (GMT 0)
Galil, congrats on your cure and finding what helps you. I've also found foods that have helped me and gone from severe UC to barely-existent UC in the past 13 years, so don't let closed-minded and negative comments discourage you here..you still might be helping someone.
Posted 3/7/2013 10:26 PM (GMT 0)
Thanks for the info on marshmallow.

The interesting thing is that over the past few weeks, since I am eating only a few basic foods and particularly the last week, since being put on flagyl, the gastric pain has virtually gone and not once have I woken up with the searing pain to my mid upper back that had become a daily occurrence. I do still burp a lot though.

I can only assume that either I just was eating too much of the wrong thing for my stomach or whatever the bug was that gave me an infective looking (and smelling cry) colitis (c diff was not isolated from 4 stool samples) was affecting my stomach too.
Posted 3/8/2013 1:06 AM (GMT 0)
Just sayin'... the only thing that helped me get well was an antifungal program (diet and natural supplements) . 7 years and counting. I am now gluten -free as well as there have been links to gluten and UC and thyroid disorders. I recently had all my silver fillings taken out. Also a link to thyroid issues...
Posted 3/8/2013 2:15 AM (GMT 0)
Slippery elm and marshmallow root....the best soothers! Have you tried natural antibiotics to heal? Oregano oil capsules , olive leaf capsules, grapefruit seed extract or bromelain is to reduce inflammation!?
Posted 3/8/2013 2:38 AM (GMT 0)

galil said...

Sara14 said...

You and people like you who claim you're cured by ridiculous things after one day. Cure means healed forever. Yup.

No, it doesn't.
If you have an infection, and you are cured by an antibiotic, does that mean you can never have another infection, even in the same place?
The irritability of your bowel has clearly spread to your mind. You should employ some breathing techniques to help you relax.


lololol
Posted 3/8/2013 3:39 AM (GMT 0)

garylouisville said...
I found research a long time ago that looked good for licorice but because of the serious side effect potential I just tried DGL for a few months. It seemed to help a little, somewhat, but in the end it just wasn't worth it. I believe the part of licorice that is most beneficial is the part that is removed from the DGL so if it is going to help anyone you need the bad part with the possible very serious side effects. Of course you can argue that many of the meds have serious side effects too but then again I don't take those either.

DGL would help you if you had acid reflux or indigestion, but for IBD it may not be doing much.

Glycerhizinated licorice is the specific herb you would want to supplement with for adrenal, respiratory support and as stomach aid.
Posted 3/8/2013 4:02 AM (GMT 0)

Dawn89 said...
Slippery elm and marshmallow root....the best soothers! Have you tried natural antibiotics to heal? Oregano oil capsules , olive leaf capsules, grapefruit seed extract or bromelain is to reduce inflammation!?

Yes I like slippery elm too, and i use oregano herb for its many health benefits. Does your SIG indicate that your son is taking aloe? I have read from a reliable source (Earl Mindell) that children should not take aloe internally so if this is the case you should look into it (I don't know the reason/s)
Posted 3/8/2013 7:41 AM (GMT 0)

Somedude said...

galil said...

Sara14 said...

You and people like you who claim you're cured by ridiculous things after one day. Cure means healed forever. Yup.

No, it doesn't.
If you have an infection, and you are cured by an antibiotic, does that mean you can never have another infection, even in the same place?
The irritability of your bowel has clearly spread to your mind. You should employ some breathing techniques to help you relax.


lololol

Stole my line, man.
Posted 3/8/2013 8:06 AM (GMT 0)
It is a crazy, unique to everyone condition.  I had the best, most perfect BM today after eating fried banana, fried rice and a cooky biscuit yesterday.  All foods I would normally steer well clear of.

Where is the logic?

I do believe I am slowly getting better and the Salafalk, Psyllium Husk and Benebiotics are all helping. 

I am thankful for every good day and pray they continue.  I will continue with my Meds and Sups and continue to eat a healthy diet avoiding sugar, gluten, processed foods, lactose and other hard to digest foods.  Just need to put some weight on (still only 123 pounds / 56kg - 40 year old guy..) 

 

Posted 3/9/2013 2:37 AM (GMT 0)
Lol what a nasty site this can be
Posted 3/9/2013 2:49 AM (GMT 0)
And here we go again....we are a SUPPORT forum. Does it really matter how one "heals" themselves???? We are here to offer support regardless of how they get to "that" special place. We are all in this battle together and instead of criticizing how someone gets to their "cure" or remission, shouldn't we be congratulating them that they are feeling better??
Posted 3/9/2013 2:59 AM (GMT 0)
yup
Posted 3/9/2013 7:29 AM (GMT 0)
Well Red, after being here many years, it's clear that there are those that are so skeptical of everything that they'd rather their negativity rub off on everyone...misery loves company don't cha know lol. They don't realize their negativity is an obvious reflection of how miserable their lives must be if they have to be so mean and condescending towards people that share how they've managed to find some relief...throw jealousy in there too.
Posted 7/22/2014 8:13 PM (GMT 0)
I believe once you go down the road of long term steroids, there is no going back. Although they stop inflammation, my hypothesis as to why they fail long-term and often predicatively cause flares upon stopping is that steroids inhibit the formation of ground substance and fibroblasts and cause alterations in structural protein synthesis, thus decreasing mucosal repair and renewal. This enables intraluminal bacteria to penetrate the mucosa of the intestinal wall. I have refused to take steroids despite many GI's pushing for them and have decided to rely on everything other than steroids. In other words, it thins out the mucus membrane that keeps the trillions of bacteria in your colon out.

My case was never 20+ times a day, but it was as bad as 8-9 times a day with blood every time.

http://journal.nzma.org.nz/journal/116-1183/631/
Posted 7/22/2014 10:23 PM (GMT 0)
I'm new to this community, and I just wanted to thank you all for a very amusing read. It's interesting to see people's different personalities come out. LOVE IT.

You guys are awesome.
Posted 7/22/2014 10:29 PM (GMT 0)
@fightUC - Did you mean to post that in this thread?

Nevertheless, I'm glad you did, 'cos I found it far more interesting than herbal tea.
I never considered the possibility that steroids could worsen your condition, but they are known for impeding healing. I think it makes good sense to avoid steroids except in emergencies - something I wish I had done - but most folks just want a quick fix when they're flaring. Steroids are that perfect quick fix; until when they aren't.
Posted 7/23/2014 2:44 AM (GMT 0)
Just out of curiosity, has anyone tried dandelion root or had any success/failure with it? I'm working on my nurse practitioner degree and my evidenced based practice project/literature review is on the relationship (if any) between diet and UC- one of the articles revised dandelion root which I found interesting- but I'm up to my eyeballs in UC research/literature right now :-)
Posted 7/23/2014 2:56 AM (GMT 0)
@ fightuc, i definitely came back from long term steroids. I was on pred for 2 years, once i got on imuran, i was able to taper down the pred to 0. Now the imuran has been tapered and I'm doing just fine. Been over a year since pred and I hope to be med-free by the end of this year.
about dandelion root, yes, I eat them fresh in the sping and in tea the rest of the year, it seems to help with no negative effects.
I like to read "cures" that impart relief on we poor UC sufferers, whatever works for even one person, yes I want to know about it!
Posted 7/23/2014 3:30 AM (GMT 0)
beatUC I am glad that my hypothesis was false. Ever since I went to the dermatologist and got an intralesional kenalog injection, my UC flared the day after and I started bleeding again. Only by using sfRowasa 2x a day and slowly waiting it out did it get better.

I gained like 25lbs in 2 weeks on those steroids, along with acne, depression and anxiety! But it's all getting better, hopefully the damage to my intestines will recover like yours.
Posted 7/23/2014 6:07 AM (GMT 0)
galil - congrats on your cure! I've spoken to a few who found great benefit from herbs. Thanks for sharing your story, hope it keeps up!
✚ New Topic ✚ Reply
12