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Frustrated with my doctor

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Ulcerative Colitis
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Posted 3/9/2013 9:27 AM (GMT 0)
A couple of weeks ago I was having a colonoscopy for undiagnosed abdominal pain. I asked my doctor to do an endo at the same time. He convinced me it was unnecessary. I am still in pain. Still running fever up too 100.5. Sometime having up to 15 BMs a day but some days just two. I can find no food correlation. So I had an ear infection and finised meds on Wed. My ear still felt weird so my GI wanted to see me to see if I could take my Humira on Fri because I just started back and really needed to take it. He said I could take the Humira but also come back that with the amount of inflammation I had I should not be in pain. Although he said the opposite right after my colonoscopy on Feb 22. So he schedules an endoscopy. Which I wanted to have done the same time as my colonoscopy. So now I have to be put to sleep twice, get a ride twice, go without liquid twice and so on. Also he decided to take me off the 10 mg of prednisone I am on. I dropped to five that day for one week then five every other day for a week. Also even though he has been my doctor since 2007 and I have never requested pain pills he is being weird about it now. He says it is because he doesn't know what he is treating but it is still frustrating. I really like my GI and he really listens but I am so frustrated right now.
Posted 3/9/2013 12:04 PM (GMT 0)
In my personal experience, doctors are nimrods.
I think most people should go to multiple doctors to try & get an accurate
diagnosis and then just do your own research, everything the doctors tell
you can be found on mayo clinic.com

Have you tried FMT. When I hear of someone have such problems I think they
must have some really bad bugs in their flora wreaking havoc. FMT, although
not pleasant, when you take that out of the equition, its not invasive and
pretty harmless as so far I don't believe there are any reported cases of someone
contracting something from FMT.
Posted 3/9/2013 12:32 PM (GMT 0)
My belief is, he did not see what he wanted to see in colonoscopy and hence he is asking for endoscopy. He could not have done then because of consent signing issues. He must have asked consent for only colonoscopy and not for endoscopy.
Doesn't really ring a bell but I truly hope you feel better soon.

Pls ignore my question on this topic in Wellbutrin post.

@tankor,
bad advice to seek more than one practitioner. I would not do that. You could stop seeing one and go to the other but not two at a times, unless both of them know what they are doing.

FMT, are you referring to fecal transplant?
Posted 3/9/2013 12:52 PM (GMT 0)
Well I told him before we did the colonoscopy we should do an endoscopy and he was like you are too young for that. So I agreed not to. Also when we had the colonoscopy he said your pain is definitely from your UC. Take your Humira and you will feel better. Then yesterday he said what I saw in your colonoscopy could not be causing your pain.
Posted 3/9/2013 2:58 PM (GMT 0)
you are too young for an endoscopy? ***?
Obviously he didnt see what he thought he would on the Colonoscopy.. but still, do you know that he sent biopsies to pathology atleast? I HATE it when they just take a looksy. dont think they see anything and dont take lots of freaking biopsies.
Posted 3/9/2013 5:04 PM (GMT 0)
There's a difference between liking a doctor and his abilities. My exwife was an RN who went to work in this one doctor's office. Every one of his patients loved him and they felt like he was God. My wife said he was the worst doctor she had ever seen and the sterilization techniques used in the office almost made her throw up and, if inspected, they could have been closed down. She had to quit. From what you posted you are not happy with his doctoring abilities but you like him. In my opinion, that can only go so far.
Posted 3/9/2013 5:10 PM (GMT 0)
from the looks of your sig, you have lots going on -

could any of those be contributing ?
Posted 3/9/2013 5:28 PM (GMT 0)

tankor said...
In my personal experience, doctors are nimrods.
I think most people should go to multiple doctors to try & get an accurate
diagnosis and then just do your own research, everything the doctors tell
you can be found on mayo clinic.com

Have you tried FMT. When I hear of someone have such problems I think they
must have some really bad bugs in their flora wreaking havoc. FMT, although
not pleasant, when you take that out of the equition, its not invasive and
pretty harmless as so far I don't believe there are any reported cases of someone
contracting something from FMT.

I totally agree. I'd rather take an internet strangers information over someone who has gone to medical school for 9+ years any day of the week.


OP, If you don't like the doctor then see someone else. I would first ask the doctor why he is doing/not doing certain procedures to see if there is maybe something else he might be looking for.
Posted 3/10/2013 2:16 AM (GMT 0)
I do have a lot of medical problems but the only one that causes pain is the back thing. It is not hurting at this time. My pain is on my left front side at waist level. I do have a very difficult case of UC. He has tried all the in the box approaches in the right order IMO. He just doesn't deal well when weird stuff happens.

I am going to give him a little leeway here but if he doesn't start taking this pain more seriously then I am going to look for someone else. It is just hard for me because he has done a lot right and I worry that I could end up with someone worse. Or someone that doesn't believe other treatments don't work for me and I will regress.
Posted 3/10/2013 3:32 AM (GMT 0)
Go see a pain management specialist.

Carlie
Posted 3/11/2013 11:27 PM (GMT 0)
So I did my endoscopy today. They did not find any problems. The doctor has now reversed his mind AGAIN. Now he says the pain is the UC. I asked him to go on Uceris. He didn't know what it was. I explained it was like Entocort but released in the colon. He said we would consider that. Right now we are upping my Prednisone to 20mg. While we wait on my third Humira shot in this round. He says a lot of people get better after third shots. He is scared to up my Humira shots to once a week because I got an infection on Remicade. Also when doing my loading doses I got what they thought was an infection.

I have started having this new problem. When I have a BM it sets off my pain. It is not every BM. I am not eating any high fiber foods. The BMs are solid but not hard. It is like I can feel the poop moving in my intestine past my pain area and hurting it. The pain area is on my left at waist high. Some times it is excruciating. Sometimes taking a Percocet does not help.
Posted 3/12/2013 12:41 AM (GMT 0)
My doc couldn't calculate how much imuran to give me and asked me if I was good at math to figure it out. Then it took him a few mins with his iPhone to figure it out!
Posted 3/12/2013 12:55 AM (GMT 0)
that's a real vote of confidence !

but then again, i know some brilliant people that can't spell -

everyone's brains are wired a little different -

Posted 3/12/2013 1:26 AM (GMT 0)
There are a lot of brilliant people that can't spell. A long time ago I worked at a convenience store which sold gas and one of our regular customers who came in all the time was a college professor who had bought a new car with the gas tank fill hole on the opposite side as his old car. He pulled up to the pumps on the wrong side and realizing his mistake, got back in his car and turned it around for another try, still pulling up to the pumps wrong. He scratched his head and did it again and again, scratching his head every time. I think it took him four tries before he finally figured it out! It was hillarious watching him.
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