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Doing a walk for Crhons and Colitis and feeling bad about it.

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Ulcerative Colitis
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Posted 3/3/2013 4:50 PM (GMT 0)

I am planning to do a walk to help support Crohns and Colitis, but now I feel guilty for doing it. It is because I am in 100% remission and I am off all the drugs and am using natural things. I don’t know why I am in 100% remission it is weird. I had a bleed and had trouble with the UC after a cold about 3 weeks ago. But as you know I have been off the meds for ages but I had to go back using them because I had that bleed. When using the pentasa (the oral one) I started to get stomach spasms and lose stools, and so the doctors told me to come off of them. I came off and had a bit of mucus return but then it just seemed to go. I haven’t had any for a week. I feel like something is different (can’t promise that) but I feel really healthy. So now I feel guilty about doing the walk because I am in remission and there will be people who are opposed to natural alternatives, there will be people who it will not work for and have tried it, there will be people who have never tried it and don’t believe it works, and there will be people who are genetically related to someone with it (for them it is DNA),   and although my biopsies said I have ulcerative colitis, I question:  what if they are wrong what if it is just a bacterial matter and can be solved, therefore I feel the medical industry should recognise this, and treat other people for bacteria, but this matter will never be looked into.

 

Should I do the walk even though I am healthy (at present) and others will not be and will be struggling.

 

Let me know if my thoughts are just completely silly. Thanks guys

 

 

 

Posted 3/3/2013 5:02 PM (GMT 0)
I'm not quite sure why you feel guilty for doing the walk. There are a lot of UC sufferers out there that are too sick to walk (or are afraid to leave a bathroom too far behind) or whatever other reason. I think that's AWESOME that you are doing so well without meds.
Are you thinking that by doing the walk, you are therefore supporting the drug companies? I think most of the money raised from the walks is to help fund research and education. Yes, research does so often involve new drug testing, but I have the highest hopes that someday people will give the more natural "cures" a closer look. I would LOVE to see a whole lot more research, acceptance, trials for fecal bacteriology (fecal transplants), but alas the drug companies don't get much money from that.

ANyway, I think that no matter how healthy or unhealthy you are at the moment, by doing a walk, you are showing support for UC-Chron's-IBD sufferers and IBD research and education. Good for you. Walk and enjoy it, spread the word, and may we all find something that works for us.
Posted 3/3/2013 7:10 PM (GMT 0)
There are people that do cancer walks that never had cancer or even none of their loved ones had cancer. They walk to raise money for reasearch and awareness not because they have cancer. Dont feel guilty.
Posted 3/3/2013 8:25 PM (GMT 0)
ditto
Posted 3/3/2013 9:49 PM (GMT 0)
Why would you feel guilty? You have suffered with the disease and luckily you have achieved remission. I think it's terrific that people do these walks to raise awareness whether they are sick or not.
Posted 3/3/2013 11:03 PM (GMT 0)
I agree, why feel guilty??? I wish I could do a walk/run to support my crohn's but I can't, knowing others like yourself are able to help support makes me feel happy!
Posted 3/3/2013 11:53 PM (GMT 0)
Anyone who judges you for not taking meds is wrong. If I could go med free and be in remission I would be thrilled. Heck if I could be on meds and get into remission I would be thrilled (haha). You are doing a great thing to support all of us. I respect you
Posted 3/4/2013 3:59 AM (GMT 0)
i have NO DESIRE to do a walk for any fundraiser.... no guilt there at all.

If you want to go...go. Guilt shouldn't cause you to do it or not do it...anyone else's thoughts about anything shouldn't be the measuring stick of what you think or do.

Enjoy yourself....be well!
q
Posted 3/8/2013 7:27 PM (GMT 0)
Thanks everyone, I am going to do it. I signed up for it all ready and my family wants to do it with me.
Posted 3/8/2013 7:34 PM (GMT 0)
good to hear...Let us know how it goes!
q
Posted 3/8/2013 7:42 PM (GMT 0)
Very Awesome kitty!!!! I'm so glad you're going to do and even better that your family will as well!
Posted 3/8/2013 7:46 PM (GMT 0)
Yes, do the walk. I don't see why you would feel guilty at all.
Posted 3/11/2013 12:33 PM (GMT 0)
Do the walk, don't feel guilty. I am off all meds and Remicade and using natural and homeopathic treatments and they are working well. I think there are several reasons one gets UC and this is not a cookie cutter disease as most GIs want it to be. Knowledge is power and sharing that knowledge with others to get them off of the "big pharma teat" is awesome. Had I listened to both my idiot GI Drs, I would no longer have my colon, they were more interested in pumping the latest and greatest drugs into my system and then cutting my guts out. That's was it, takes drugs, if they don't work, we'll cut it out. Ta Da, NEXT! Doing the walk shows support for all of us who have dealt or are still dealing with this horrible illness. Walk well and God Bless!
Posted 3/11/2013 12:50 PM (GMT 0)
"Do the walk, don't feel guilty. I am off all meds and Remicade and using natural and homeopathic treatments and they are working well. I think there are several reasons one gets UC and this is not a cookie cutter disease as most GIs want it to be. Knowledge is power and sharing that knowledge with others to get them off of the "big pharma teat" is awesome. Had I listened to both my idiot GI Drs, I would no longer have my colon, they were more interested in pumping the latest and greatest drugs into my system and then cutting my guts out. That's was it, takes drugs, if they don't work, we'll cut it out. Ta Da, NEXT! Doing the walk shows support for all of us who have dealt or are still dealing with this horrible illness. Walk well and God Bless!"

What natural and homeopatic treatments do you do...Must be some miracle treatments, because I tried quite a bit.
Posted 3/11/2013 2:01 PM (GMT 0)
No, not miracle treatments, 4 years of trial and error. The biggest error was listening to all those idiot GIs who just kept pumping me full of poisons. I also never said "cure" or "remission". I'm doing better but still not out of the woods; however, I'm seeing positive results and it's without all the pharma hype crap and I'm actually attacking the root cause, not just treating symptoms. I have a good idea what caused my UC so I've addressed those issues and so far it seems to be working, not 100% but better off than I was on all the drugs.
Posted 3/11/2013 2:18 PM (GMT 0)
Do you mind expanding on the treatments that you do?

What do you think cause your UC? what is the root cause?
Posted 3/11/2013 2:26 PM (GMT 0)
i'm with you E man - done with the drugs -

told my wife if at some point i can't control this stuff on my own, i'm goin baggy !

Posted 3/11/2013 11:13 PM (GMT 0)
My family formed a team and did a Crohn's/Colitis walk in Arkansas. Frankly, I couldn't tell who at the event had Crohn's or UC and who didn't. I didn't even notice anyone running towards the portable bathrooms! Seemed to me like a big group of people that were together to raise some money and have a good time. I didn't observe anyone standing around talking about if they were or were not in remission or what medications they are on. There were booths set up and games for the kids and it was a very positive experience.
Posted 3/12/2013 4:18 PM (GMT 0)
Somedude,

It's a long long list of stuff, the causes and what I do.

In short: My UC was caused by antibiotics, overuse of NSAIDS, eating poorly (acidic foods) and other environmental issues among other things. I also stopped working out the 3 or 4 days a week like I use to and was no longer sweating out or burning out all the toxic crap in my body. And this list goes on....

I am now working out again, eating to achieve an alkaline body PH, using probiotics, using digestive enzymes and proper food combining, using supplements, and I'm avoiding certain foods that I found out I have an allergy or sensitivity to. And this list goes on and is every changing....

What I did was really dig into what made ME tick and not tock. Example, Fish Oils are suppose to be good for you and also anti-inflammatory. Not for me, I have a fish allergy, Fish Oil supplements actually made me worse but I was taking them EVERY DAY. I knew I had a slight allergy to cows milk and cows milk products. Not a big deal when I'm healthy, but when I was flaring and weaker it tore me up. So I started drinking Almond milk, come to find out I'm allergic to Almonds, no wonder I was flaring and feeling bad. VSL #3 works wonders for some people on here, for me it didn't do squat but make me fart. I had to find the right Probiotic combinations that worked for ME. Like I said, I'm not in remission or cured, but I'm doing better now doing these things and staying off the prescript drugs, when I was on those that's when I felt my WORSE.

Be well, E...

Posted 3/12/2013 4:33 PM (GMT 0)
which probiotic do you use.
Posted 3/12/2013 4:37 PM (GMT 0)
I know a lot of jpouchers who do these walks for the CCFA. They no longer have UC and are not sick, but they enjoy raising money and feel as if they are helping to find a cure. And remember, those that ARE NOT in remission couldn't do the walk anyway!

Sue
Posted 3/12/2013 4:50 PM (GMT 0)
Somedude,

Metagenics Spectrum has given me good results so far but I'm still looking and trying others.

Posted 3/12/2013 5:48 PM (GMT 0)
don't feel guilty about it at all; be happy and kick ass!
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