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1 year mark in remission ~ THE FECAL TRANSPLANT LOG

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Ulcerative Colitis
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Posted 3/27/2013 6:52 PM (GMT 0)
Hi everybody and happy eastern to those of you who are celebrating it or are planning to be off work. I am still here and still in remission. I try to post every so often to give my input on threads related to FT but not as frequent visitor as I was when I was active with my FT infusions. To those of you who did not follow my fecal transplants: I did a 27 day long FT with my wife as donor following a pancolitis diagnosis. See my signature for a link to my full log.

I have had zero symptoms since I went into remission a year ago. I have still not returned to eating gluten and wheat type food. Mainly because I have gotten used to eating better food than stuffing myself with carbs when I am hungry. I am not the type of person who goes around craving for candy either so its really has not been a big deal for me to adjust. I still also eat Asacol. I guess life has taught me not to trust anything I believe to 100% and since it doesn't cause me any side effects then I see no reason to jeopardize being in remission.

Keep questioning and challenging yourself and your ideas. The day you become certain about your belief is the day you grow old and stupid.

Lots of hugs and best wishes to all of you and especially to those out there currently suffering from flares.
Posted 3/27/2013 7:03 PM (GMT 0)
Thank you so much for sharing and I am so glad you have found something to keep you in remission.  I think FT is gaining steam even in the mainstream Dr's offices.  I really hope they will continue to research this.  Pls check in to continue to let us know how you're doing!

B

Posted 3/27/2013 7:23 PM (GMT 0)
Curl, that is great news!

How far into your FT's did you feel you achieved remission? I started flaring Jan 1st, did 8 FT's using my daughter as a donor in Feb, and it didn't help at all. Had to use some cortenemas to calm things down and am now 7 days in to a new round of FT's using a different donor. This time around is going better, I am feeling pretty good but still have a little mucus that I can't seem to get rid of. It is difficult to tell if the FT is helping, I am supposed to do a 10 day course, but I am wondering if I should try do more than that? What would you recommend?

Posted 3/27/2013 7:37 PM (GMT 0)
@Mama2girls;
This is how my brain has reasoned around the length of the transplants: When you take antibiotics they normally tell you to take it for at least 10 days so I assume that they have tested how long the bacteria can survive under the conditions when they are bombing them with the drugs. The suggested length of transplants for C-diff patients is only like 1-2 days but that is when using a scope at Dr Borodys clinic which I would think is more effective than when doing it at home. From what I read, bacteria in UC also seems more deeply rooted into the wall of the colon than the bacteria they kill when they cure C-diff patients with FT.

FT surely isn't as aggressive as antibiotics so I would think we really need longer to be sure. With FT you're trying to outnumber bad bacteria with better bacteria and there really is no way to know exactly when this will be completed. My gut feeling tells me it should be longer than 14 days. I would try to aim for a month if I were you, I know its hard work but I would give it a fair chance while you're at it.

I was still on prednisone when I started my FT's so that helped me to bring my aggressive inflammation down. I also had some hemorrhoids bleeding so its very hard to know when the actual inflammation really died off but I went to my GI when I had just finished my transplants and at that point the inflammation was gone, all he could see was that there was some blood coming off the hemmoroids.

The "funny" thing is that the hemmoroids then healed up and disappeared completely about 2 weeks after I had visited the GI and I have not had them return since. I think that the general consensus is that hemmoroids has nothing to do with UC but I still find this unlikely to be a coincidence. Draw your own conclusions.
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