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Asacol and uceris question

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Posted 4/8/2013 6:57 PM (GMT 0)
Hello,

I started Uceris today, I know asacol doesn't help me much, in fact I think it gives me bloody D sometimes. I think it help with the pain of the inflammation, but never any really relief. I think what works the best for me is the enemas (rowasa) I have left sided colits.

If asacol does nothing really for me, should I still be on it with the Uceris? Or just do my enemas and uceris?

Also  I take just one pill in the morning 9mg is that the same as taking just taking 9mg of pred? If so why do they start you out with 40mg of pred and taper? I guess I'm confused on the doseage of Uceris.

Hopefully Uceris really helps me. Pred was TERRIBLE for me! I didn't squat in the way of blood and the side effects were awful!

Thanks for the help

 

Posted 4/8/2013 7:09 PM (GMT 0)
Uceris acts differently than prednisone, so the dosages are going to be different. 9 mg is probably the high end for a prescription of this med.

You should not stop Asacol. You will not be able to stay on Uceris forever, and you'll need a maintenance med to hopefully support your remission.
Posted 4/8/2013 7:28 PM (GMT 0)
Thank you, thought that would be the feeling. Hopefully something good comes of this!!
Posted 4/8/2013 7:34 PM (GMT 0)
Yeah. It's like comparing apples to oranges. Yes, they are both fruits but that's about where the similarities end. Prednisone is systemic, goes in the blood stream and works from there. Uceris has a coating and releases in the colon like a topical treatment. I would ask your doctor about the Asacol. If it's not working I would talk him into dropping it.
Posted 4/9/2013 12:42 AM (GMT 0)
Asacol didn't help me either but Rowasa did also. The Asacol didn't help because it was going thru undigested.

I'm curious why you think it's giving you bloody D. I wouldn't think it could act that differently than the Rowasa...?
Posted 4/10/2013 2:12 AM (GMT 0)
If Asacol is really giving you bloody diarrhea I'd consider taking a different maintenance drug. Have you tried MTX? How about Remicade?

Are you sure though that the bloody d wasn't from the flare?
Posted 4/10/2013 2:17 AM (GMT 0)
9mg of budesonide is equivalent to 40mg of prednisone.
Posted 4/10/2013 2:12 PM (GMT 0)
My Dr prescribed 3 9mg of Uceris each morning. Does that seem excessive?
Posted 4/10/2013 2:16 PM (GMT 0)
Are you sure? I'm moderate UC and I only take one pill.
Posted 4/10/2013 2:44 PM (GMT 0)
I know. I only took 1 today after reading this forum and the drug co info. The problem is unless I make an appt. (which costs) I get the secretary and she is terrible at relaying info. I'm supposed to meet with the dr on tues and I can ask her in person if that is right. Also three a day will cost me three grand a month vs one a day at 1k a month.
Posted 4/10/2013 4:38 PM (GMT 0)
Seems like Entocort, which is similar to Uceris, came in 3mg, 6mg, and 9mg tablets. I could see the 3mg Entocort getting prescribed 3 pills per day. Uceris comes in 9mg tablets. Maybe the doctor confused prescribing the Entocort with the Uceris. I think I would really check into this before taking 3 9mgs pills of Uceris per day. That just doesn't sound right.
Posted 4/10/2013 4:42 PM (GMT 0)
I'm on my second week of Uceris. My RX says to take one (1) 9mg pill every day. When I was on Entacort I took three (3) 3mg pills a day.

I took this off the Uceris website:
"Because of the way UCERIS is absorbed and processed in the body, most of it does not enter the bloodstream, and therefore it has a safety profile similar to placebo (sugar pill). UCERIS also helps heal the lining of the colon. UCERIS decreases the severity of inflammation in the colon, thereby helping to eliminate UC symptoms.

UCERIS is a single pill taken once a day by mouth for up to 8 weeks. Additional 8-week courses can be given for patients whose UC remains active."
Posted 4/10/2013 5:08 PM (GMT 0)
Little Buddy, so how are you feeling being on it? I'm on day three.
Posted 4/10/2013 6:12 PM (GMT 0)
Today is day 8. Generally, I'm feeling good (really energetic, not much pain) but I am still having major symptoms - blood, urgency, M, D, etc. I'm on Rowasa too, hoping that will help, but today I'm frustrated and annoyed at how often I have to run to the bathroom! Go away flare, I want to live my life!

On the side effect side, today I uncharacteristically got teary about a family dog that died many years ago - its the right time in my cycle for extra emotions, or it could be the Uceris, I don't know. On the plus side, I have been killing it in my workouts (feeling super human) this week, I think that is the Uceris. I figure I'm only through 13% of the 8-week dose, so hopefully with time it'll work itself out.

I'm going to try to do a better job staying away from high-fiber foods (while still eating resistant starches) until I feel more healed, it's a challenge since most of my diet is veggies and carbs. MMM, cold white rice for lunch.

How are you doing on day 3?
Posted 4/10/2013 6:30 PM (GMT 0)
I started out with some formed poo today but with a lot of white stuff with it, is it mucus or yeast? Then it went to a pile of mush back and forth for about a hour but not as bad in the past. I did get up and go to gym for a 45 mins but still not like back in the day before UC.

I don't go to the bathroom at all during the day usually. Rarely at night, just usually in the am unless I have something like ubiquinol (supplement) and this will ruin my day I found out.


Why would it be formed then to mush, any thoughts on this?

I've been having my tea every morning with a tablespoon of black strap molasses for iron.

Yes I will be on the look out for emotions too.

I hope it gets better for you:) too!
Posted 4/10/2013 7:01 PM (GMT 0)
Why is everyone likening entocort to uceris? I thought entocort wasnt delayed release like uceris?... Correct?
Posted 4/10/2013 7:10 PM (GMT 0)
Not exactly. Entocort is delayed release but Uceris is even more delayed release.
Posted 4/10/2013 11:30 PM (GMT 0)

freddyj said...
Why is everyone likening entocort to uceris? I thought entocort wasnt delayed release like uceris?... Correct?

Because they are both budesonide. Same active ingredient, slightly different delivery system.

Entocort does treat the colon. Just not the far end.
Posted 4/12/2013 2:25 AM (GMT 0)
Ok my drs office called today and it turns out that they did error in prescribing me 3 9mg of Uceris. It was only supposed to be one pill a day. After consulting this forum a few days ago, I decided to only take one until I could talk to my dr next week. That's why I love this site. Thanks guys.
Btw second day on this and I feel I can function normally again. Only two bowl movements today vs 20+ the days leading up. I feel I can breathe normally again.
Posted 4/12/2013 12:17 PM (GMT 0)
awesome news! I'm holding steady nothing awesome to report.

Does anyone know when people started to see improvement in the study?
Posted 4/12/2013 12:24 PM (GMT 0)
Hey Miracles, have you ever though of trying a biologic such as remicade?
Posted 4/12/2013 12:26 PM (GMT 0)
well you know i tried humira and though I was going to die and tried imuran and I got pancreatitis so I think me and biologics don't get along.

I feel like I got a lot of IBS too. I don't go to the bathroom at all during the day and hardly at night, it's mainly in the morning I "dump" per say everything and then start all over.

Thanks for responding
Posted 4/12/2013 12:28 PM (GMT 0)
Oh right....I forgot, you did try Humira. Never mind, my bad. I remember now....it's early in the morning...
Posted 4/12/2013 3:11 PM (GMT 0)

therearemiracles said...
awesome news! I'm holding steady nothing awesome to report.

Does anyone know when people started to see improvement in the study?

Good question mt bm was the same as what you described. I was so happy when I had a formed bm I almost cried and then it turned to mush. Still, I'm glad for the reduction.
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