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Best diet for bleeding?

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Ulcerative Colitis
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Posted 4/15/2013 7:51 PM (GMT 0)
My son is tapering Prednisone and bleeding again, down to 30mg a day, was 25 and back up.  What has been your best diet for bleeding leftsided and lower UC?  We are starting Vancomycin tonight, which worked last year and he is on his 3rd MTX injection, doing nothing so far.  Thanks!
Posted 4/15/2013 7:54 PM (GMT 0)
rectal meds should help a lot.
Posted 4/15/2013 8:19 PM (GMT 0)
Low residue diet or low fiber. Also 1 tbsp blackstrap molasses a day. This cleared up my bleeding in 3 days.
Posted 4/15/2013 8:26 PM (GMT 0)
I also recently read about extra virgin olive oil, clearing up uc inflammation, so trying that today. Have done a week of cortenemas already too.
Posted 4/15/2013 8:35 PM (GMT 0)
For me it was gluten-free that stopped my bleeding. But I also know that foods with high amounts of insoluble fiber also cause bleeding for me. And yes, definitely use mesalamine retention enemas. They work wonders.
Posted 4/15/2013 8:40 PM (GMT 0)
Mesalamine enemas seemed to make him worse? Nothing is working right now, so hard to tell. Thanks! Can you continue VSL#3 while your are bleeding everyday?
Posted 4/15/2013 8:43 PM (GMT 0)

I would personally stick with the mesalamine enemas, I noticed that I always seem to get "worse" (looser) when I am on them but gradually things start to improve over time. Usually takes em 2-3 weeks to see noticeable results, I usually wait until i'm in pretty bad shape so he might see result earlier. Just my suggestion :)

Posted 4/15/2013 8:45 PM (GMT 0)
I am scared to try anything at this point, gave him the enemas 4 nights in a row and each morning worse, so stopped them. Not sure??
Posted 4/15/2013 8:46 PM (GMT 0)
Do you think bananas, apple sauce are okay and VSL#3 while bleeding?
Posted 4/15/2013 9:24 PM (GMT 0)
Are you sure the renew life probiotic 80 billion is working? There have been a few here, including me, who got worse and had bleeding from that particular probiotic. If you're not sure that that is helping you might try eliminating that one for a while. Seems like you made a lot of diet changes and are taking many supplements. Some of them might be making him worse instead of better, unless you know differently for sure. It seems like if that stuff were actually working he would be doing much better already.
Posted 4/15/2013 10:09 PM (GMT 0)
I haven't been giving him probiotics much lately only Kefir. Just giving him mainly multiple vitamin and his chewable iron pill, Folic acid and fish oil.
Posted 4/15/2013 10:27 PM (GMT 0)
I have also gone gluten free, I am also not eating anything made with any kind of flower, no bread, pizza, I also am avoiding potato's and my symptoms have gone away, but I am also using Rowasa. I only eat foods that are not inflammatory.
Posted 4/15/2013 10:42 PM (GMT 0)
Maybe we will try no potatoes too. He will starve though. Ate you eating cheese or yogurt?
Posted 4/16/2013 12:13 AM (GMT 0)
What seemed to help me was cooking carrots and putting them in a juicer then drinking them. Happened to me to me to when i went down to 20 mg of prednisone so i'm back to 30 mg. Also on 9 mg of entrocort.
Try less cheese if he is lactose intolerant or if he can't tolerate it well.
Posted 4/16/2013 12:25 AM (GMT 0)
colitis91895 - How long were you on MTX before they stopped it?  I think mtx is making him worse.
Posted 4/16/2013 1:02 AM (GMT 0)
 I think you have to take out his iron pills .... Many UC people cannot tolerate Iron pills in general. When flaring it makes everything worse . Because his colon is inflamed, it is hard to get it absorbed from natural food source. So, if his Iron level is low ,its better to have iron infusions. We were so scared to get this done for our daughter but everything worked out fine and she felt so much better after each infusions.

Another thought- Take out rice and potatoes(as these are inflammatory foods) and replace it with pureed squashes and pureed veggies. Give him plenty of home made chicken broth. For protein give him broiled fish and boiled eggs.

  

 

Posted 4/16/2013 1:08 AM (GMT 0)
Thanks Bloom93 - The doctor's give me the iron pills - lol they never mentioned infusions. He had homemade chicken broth twice today and boiled eggs. It is hard getting potatoes away from him while he is on Prednisone, he is sooo hungry.
Posted 4/16/2013 1:32 AM (GMT 0)
Hi, Dawn89. Bleeding has always been my most troublesome symptom. Unfortunately, diets have only helped with other symptoms like gas, bloating, and frequency. Cortenemas are good but try cortifoam. It's foam instead of liquid and easier to hold and treats closer to the exit which might help bleeding that's new.
Posted 4/16/2013 1:40 AM (GMT 0)
i'm not a real smart guy, so what works best for me when i'm trying to solve a problem, is to eliminate all the stuff that might get in the way - can't really give you an example other than when i'm working on figuring out what foods are giving me fits, i get rid of EVERYTHING that i'm currently doing that isn't an absolute necessity - you know, like water or ..........

i have gone hungry a lot and i know that would be difficult for your son, so ya, things like the iron pills should probably go - and these are not permanent changes, just for a few days or weeks just to see if something jumps out - he'll live without a lot of the things you are giving him -

it's just easier for me to get rid of potential problems before i start trying to add things to the equation -

definitely agree with bloom & gary !

Posted 4/16/2013 2:16 AM (GMT 0)
Dawn - My son was not able to get rid of the bleeding since dx in September (Neither prednisone nor Remicade stopped it completely). His diet looks very similar to yours (no gluten, no dairy, no corn, no red meat). We think what finally helped e most thwas taking out tomatoes (nightshades). He still does potatoes with no skins (cooked, chilled for resistant starch and much needed calories). He feels rather certain the it was the tomatoes that helped.
Posted 4/16/2013 2:41 AM (GMT 0)
I do green smoothies. All the fruits and vegetables that used to scrape up my insides going down are pulverized in a rich and creamy and delicious drink. Get all my vitamins and nutrients. No bowel troubles... no gas, etc.. can't say enough about it.
Posted 4/16/2013 2:31 PM (GMT 0)
I have not had any improvement resulting from changing my diet while bleeding. I notice the less I ate, the less I bled. You have to eat though. PBJ is a good sandwich when you're flaring, light on quantity and fills you up.
Posted 4/16/2013 2:37 PM (GMT 0)
I got so desperate I drank nothing but elemental formula for like 2 months. Then started on some baby food. Eventually I got better and I'm eating mostly normally again (which for me is a vegan diet).

Before I did the formula I tried blending all of my food, but even that didn't help.
Posted 4/17/2013 2:29 AM (GMT 0)
Thx for all the input. I'm afraid to give him anything now. What about kefir or yogurt or small dose proboitics? I have an organic partially digested whey shake I make with almond milk, ingredients are close to absorbplus.
Posted 4/17/2013 12:27 PM (GMT 0)
Dawn I'm so sorry for the late reply. I was on methotrexate for 3 or 4 weeks. After the 4th week I stopped urinating which is what caused me to stop it and it made my colitis worse. The doctor told me "oh it's nothing just keep using It till it starts working" after that I switched doctors.
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