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Ulcerative Colitis
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Posted 4/22/2013 8:11 PM (GMT 0)
Rectal steroids are useful for short-term treatment, but over the long term they can thin the tissue. I don't know the time-span for short vs. long, but I would guess that anything longer than a couple of weeks is long.
Posted 4/23/2013 2:09 PM (GMT 0)
What would be the best med to add to Canasa? I hate to waste what I have it is so expensive. Sounds crazy, but I prefer something rectal due to less side effects. For example could I do the enemas on certain days and Canasa on the others or do one in the morning and one in the evening?
Posted 4/23/2013 3:20 PM (GMT 0)
You can use the Canasa twice a day, no problem. Or you can use an enema at night and then Canasa in the morning.

Have you tried adding fiber to your diet yet?
Posted 4/23/2013 3:24 PM (GMT 0)
Mesalamine enema would be the best IMO. I use generic but others use brand name Rowasa if they have good insurance coverage of Rx meds. You can use the enema at bedtime/overnight and the Canasa during the day.

BTW I order Canasa from Canada because it is so d--n expensive in the US. Way, way less expensive. They require an Rx script from your doctor then mail it to you. Sometimes it takes a while to get through Customs but it's not prohibited to ship.

Mesalamine enemas on the other hand are pretty much the same price in both countries.
Posted 4/23/2013 3:40 PM (GMT 0)
Thank you for your suggestions. No I have not tried fiber. It's funny because I did ask my GI about it and he said it was not necessary I get enough from plant fiber in my diet. I will say I do eat oatmeal twice a day and the vegetables I eat most are potatoes, but without the skin, sweet potatoes, carrots, spinach, zuchinni, and yellow squash. Do you think I should try more fiber? From food or suppliment?
Posted 4/23/2013 3:59 PM (GMT 0)
I guess it depends on what's going on with you. I think you said that you are still having multiple BMs per day? Are they solid or loose?

My experience with fiber was that I couldn't tolerate a supplement until I was better (but I had inflammation in the TI and cecum too, which makes fiber a bad idea IMO). When I was really feeling better I was having a problem with slow motility. I've had good results with a psyllium supplement. I also eat a lot of plant fiber and whole grains but the psyllium really improved things for me. It bulked up my stool (which I needed).


If you decide to try adding psyllium, do it slowly.
Posted 4/23/2013 6:27 PM (GMT 0)
My bowel movements are more solid with the ocassional loose. I think I may be better sticking to fiber in my diet for now. Yesterday was a bad day. Today is much better, but I know it won't take much to rock the boat again. I did just call my doctor's office to see about adding something to Casasa. I just feel like I need to get better control of my symptoms. Thank you for all of your help! I'll let you know what he wants me to try.
Posted 4/24/2013 7:18 AM (GMT 0)
I've had proctitis for six years, my symtoms were controlled immediately with 1g pentasa supp at night. I've never had your symptoms (praise God) My symptoms were pus like mucous and constipation. Never had D as a result or fever. I had blood but not alot. I changed recently to enema to ensure coverage of the area. Dose was not increased. I've since noticed IBS symtoms, mainly trapped wind but I attribute it to the anxiety of learning this is a chronic condition. I'm having a fecal test done to rule out inflammation as I've only recently had a scope which came back clear.
Posted 4/24/2013 10:22 AM (GMT 0)
Treat from both ends, oral and rectal. Ideally enema at night suppository during the day combined with an oral.
Posted 4/24/2013 3:50 PM (GMT 0)
As it turns out the doctor wanted to see me today and also had me come in early for some bloodwork. Good news that my white cell count and hemaglobin are normal. They had to send out for the other test that I think had something to do with protein??? I was put on Apriso 4 per day. I go back in 3 weeks for a follow up. I hope this med works quick and with no side effects!
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