HealingWell
Search Close Search
☰

longest hospital stay for flare???

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
1 23
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/1/2013 2:13 PM (GMT 0)
6 days once and 11 days another.

Carlie
Posted 5/1/2013 3:02 PM (GMT 0)
interesting responses everyone, thanks for input...

I'm on day 15 and holding still
Posted 5/1/2013 6:04 PM (GMT 0)
I did 13 days back in 1991 when i was 14. I got discharged on Christmas eve and was allowed home for Christmas and boxing day. Had to come back in on the 27th for a couple of days for a barium enema, before the days of Colonoscopies.
Posted 5/1/2013 6:04 PM (GMT 0)
40 days in the hole
Posted 5/1/2013 6:37 PM (GMT 0)
wow... really ? 40 days???
Posted 5/1/2013 7:29 PM (GMT 0)
Canadagal, that is a huge bummer. I wish you the best and am sending lots of positive energy to that Remicade to get a move on!
Posted 5/2/2013 4:11 AM (GMT 0)
14 days.
Posted 5/2/2013 12:22 PM (GMT 0)
yes 40 days, TPN, blood transfusions, the whole 9 yards. Wasn't sure I'd make it out alive, but I did. : )
Posted 5/2/2013 12:29 PM (GMT 0)
wow beatUC - you can gladly keep the record :)
Day 16 for me right now and I'm shifting from the patient compliant patient to the frustrated and more assertive patient...
unless I'm dying or in danger... let me out of here... give the drugs time to work... yes flaring sucks but i don't feel like I'm anywhere near surgery.. not mentally nor physically....
this lets see what tomorrow approach is not giving us anything... life must go on.
Posted 5/2/2013 4:53 PM (GMT 0)
17 days
Posted 5/2/2013 11:46 PM (GMT 0)
14 days, went through antibiotics, thinking, long weekend, oops we forgot about you,pred,pred, solumedrol,eventually they said-Man you're in bad shape, what happened?Then remicade-two days later discharged.
Posted 5/6/2013 11:33 PM (GMT 0)
2 one-week stays, followed by 4 days, and 3 days, and then 3 more days... But I was pregnant and getting blood transfusions - maybe they were being cautious.
Posted 5/7/2013 12:12 AM (GMT 0)
grand total.... 19 days, 6 hrs.... plus another 6hrs in emerg the next day...

Hope I don't go back .... ever....

Glad to be home...
Posted 5/7/2013 12:30 AM (GMT 0)
Yikes! Why did you have to go back to ER??
Posted 5/7/2013 1:12 AM (GMT 0)
see other thread but basically extreme leg/foot pan threw night... needed something stronger than tylenol and worried about clots...

all good though for now, hope it doesn't happen during nigh again but if so I have meds...
Posted 2/26/2014 8:38 AM (GMT 0)
I have been in the hospital twice since 2007. The very first visit was for one month, but that was also neglect on my part, and the doctors not knowing what was causing the problems. Which was UC. I was on morphene, prednisone and asacol 800. The second flare two years later I was in the hospital for one week. Same meds. In both cases I was very sick. As much as I HATE Prednisone. It worked.
Posted 2/26/2014 11:24 AM (GMT 0)
My first and only admission 15 days, felt lke much longer!
Posted 2/26/2014 5:33 PM (GMT 0)
7 days because no one thought to give me a colonoscopy and stop pumping liters of cipro into me until DAY 6!!!!
Posted 2/26/2014 8:52 PM (GMT 0)
2 hospital stays for flares, once for 21 days and another for 23 days. both were for Cyclosporine. Total 44 days. For my last uncontrollable flare they offered me Cyclosporine again, I said no thank you...If I am going into the hospital it is for surgery.

I could add some days on to the total due to surgery for a J-pouch. 6 days for the 1-step and I have step 2 coming up in a few weeks.

As crazy as it sounds the hospital stay for surgery was much easier than the UC flares....probably the flares were more painful too. Recovery was just as long for surgery and the flares.
Posted 2/26/2014 10:07 PM (GMT 0)
4 days on first stay, was discharged (which later my doctor told me I shouldn't have been), then less then 2 weeks later was back in there for 13 straight days.
Posted 2/26/2014 10:09 PM (GMT 0)
4 days. I came home on TPN for another 2 weeks.
Posted 2/26/2014 10:21 PM (GMT 0)
I've stayed 3 times for 7 days each, and last week I was in for 4 days.
Posted 2/26/2014 11:54 PM (GMT 0)
4 weeks for my son - tried everything during that time - eventually iv ciclosporin and iv steroids calmed everything down. Was back in hospital 4 months later when the ciclosporin made him ill and the azathiapriin had kicked in but wasn't enough. This time remicade saved him but only worked for a few months.... UC can be so nasty.
Posted 2/27/2014 2:26 AM (GMT 0)
18 is my longest.
Posted 2/27/2014 3:29 AM (GMT 0)
9 days, 8 nights total. Was suffering in silence for about 3 weeks prior and didn't reach remission after the hospital for 4-5 weeks after. The first week home I was almost readmitted as I was not improving. I turned a corner when they finally got me the right combo of meds. I was given incorrect discharge instructions by the resident doctors on my floor, not my GI Specialist.
✚ New Topic ✚ Reply
123