Amino Acid Therapy Week 3 & 4 Results

Hi chroninator! I'm very excited to see someone with Crohn's try this!

I head ya on the limited diet... Honestly, I couldn't figure out what exactly to eat. On the crohn's side of things I had very similar symptoms as you describe. Including high fever when things were really bad.

I think it would be amazing if you were to share with us... It took me quite some time and there was a lot of ups and downs, but my Crohn's symptoms went away somewhat fast. I'm really curious about how it will effect you. I'd say expect some rough days, but try your hardest to stick through with it.

Is your crohns in your small intestine only? And do you get nauseous from it? I don;t think bleeding comes with Crohn's though... But I could be wrong. Some people on here might not be familiar with exactly what full on Crohn's Disease feels like etc...

As of today - after yesterdays/last nights crazy meals and bad eating I made it through the day with zero issue, if fact I spent the day shoveling and getting some sunshine outside although tonight there's a slight ummm not quite perfect feeling right now - but it's very, very minor. I actually think it's because I was away from home and forgot to bring my supplements with me so instead of 4pm I couldn't take them till just after 7pm.

I'm curious how the night will go.

The added fiber from the bread (I assume) made for a second trip to the bathroom early today - but since then zero issue.

Hey King,

Well I'm not really surprised to be honest. Not sure what to say other than first, is there a reason you chose that particular dosage? It doesn't seem to match anything - even the old literature. Did you just come up with it on your own? Or did you have some sort of plan you were working on?

Also that's 1/18'th the amount of L-Cysteine we are all taking. And what about the co-factors as lemon mentioned. They are probably important.

And finally, if no effect (good or bad) how do you plan to change your dosage? They do come right out and say not to bother trying this without the tests as it will not work.... Will be interesting to find out if this holds true.

I wrote Dr. Stein just letting him know I'm not seeing any improvement and ask him why? I get my next urine test back this weds so he'll call on Thursday probably.

My mornings are getting worse. Nausous and dry heaving on the toilet. I have these depressed moments when I want to cry. It sucks right now.

I'll let you know what my next dosage change will be.

Lemon any improvement since starting tyrosine? Wouldn't you find it weird that if Dr. Stein asks me to start that too after my second urines test, do you think we're all being treated the same?

 

Canada Mark said...
Hey King,

Well I'm not really surprised to be honest. Not sure what to say other than first, is there a reason you chose that particular dosage? It doesn't seem to match anything - even the old literature. Did you just come up with it on your own? Or did you have some sort of plan you were working on?

Also that's 1/18'th the amount of L-Cysteine we are all taking. And what about the co-factors as lemon mentioned. They are probably important.

And finally, if no effect (good or bad) how do you plan to change your dosage? They do come right out and say not to bother trying this without the tests as it will not work.... Will be interesting to find out if this holds true.

Okay, I did not follow and specific dosage strictly, however I tried to imitate the 4 Neuroreplete/day dosage. With regards to L-Cysteine your are probably right.

I will modify my dosage accordingly.

Holy crap I have just come across this thread and read the first and last page! How many people are trying this amino therapy now? Mark you had fantastic results- has anyone else been on it long enough to see results (good or bad)?

@Chroninator...

They are terrible diseases. But then again so are a lot of other conditions. I think more than anything I want to see and end to these...

I can't begin to imagine what you have gone through on a daily basis. Email me anytime if you have questions or anything.

I hope with everything I have that this helps you as well... It;s not fair. It takes to much from our lives.

Think super extra positive! And I got a feeling this is going to work... It has to! no - there's just to much of an effect, both good and bad for it not to. My gut tells me there's something to this for sure.

Hi Aussiet- that's cool. Would be nice to have such an open minded doctor. Will be interesting to hear what he thinks after speaking to Dr. Stein.

I bounce back and forth - and now I actually eat a lot of SCD/Paleo food just because I became used to it. To me I think it's just a healthy way to eat.

For meals I use these two cookbooks - The food is amazing, Even for non scd folk. In fact last night a relative asked me for a few recipes: http://www.amazon.com/Grain-Free-Gourmet-Jodi-Bager/dp/1552856682 / http://www.amazon.com/Everyday-Grain-Free-Gourmet-Jodi-Bager/dp/1552859185 If you eat SCD they'll open up a whole new world! haha. It does however take prep and cooking time. There's no way around that regardless of what you try and eat.

Bottom line is if it's fresh real food - you're going to be spending time in the kitchen. You have to cook in large batches and freeze in order to get ahead.

Thanks Mark for the book links.. I'll order them. Just for interests sake what are your top 5 meals you freeze?

My Dr House is pretty cool. I've only been seeing him a short time. He used to be a surgeon and then got stomach issues and did lots of research and healed himself. Now he is a GP who uses western and eastern medicine. The other day he actually gave me some pills he got in America and they gave me formed BM's within a day. My large intestine is pretty terrible so my BM's were thin like a pencil but that is amazing for me! Normally its liquid. It's called "new vita immuny II" if anyone wants to give it a try. I took them with some weird nano drops.

Here I googled the website http://www.newvita.com/shopdisplayproducts.asp?catalogid=35#anchor
http://www.newvita.com/shopdisplayproducts.asp?catalogid=102

On another note I met with my gastro today and she is going to do a Fecal Transplant for me when I get my next colonoscopy and teach me how to do them at home so that's pretty exciting!

If I don't get better from the FT im going to come to USA in August and try this with Dr Stein. Well.. depending how you guys go anyway! How are symptoms today?

That is about what I am on except I am only on 2 Macuna pills a day. (And of course the Tyrosine). Hope you start feeling better soon.

really all I'm adding is one more neuroplete and one more mucuna

I actually had a great day yesterday. Only went twice...both in the AM before work. No issues the rest of the day. Today I switched from the Tyrosine pills to the powder. I think it is upsetting my stomach a little. At lunch I mixed it with applesauce and that seemed better. I am super tired and a little grouchy and emotional. Today, 3 morning BM's. All mostly formed, but we are back to when I flush they all disintegrate. Still pretty thin. So, I think there is still some inflammation going on in there. But I dropped my colazal from 8 to 6, and am not planning on taking my Humira shot today, so I guess I am feeling ok.

@Aussiet - Hmmm.. the five most common. Well I think it depends on your tastes - But in general I make ahead and freeze slices of carrot loaves, home made chicken soup, crepes for sandwiches and such or on their own with SCD syrup, zuchini lasagna, southern fried chicken (with almond flour batter), spiced chicken, and usually make yohurt a lot - oh and English French dressing for salads and waffles. When you get the cookbooks try a few recipes and see what you like - then when you make them either make two batches and freeze or freeze the leftovers.

No matter what you do cooking is hard work and takes time. The alternative however is microwave and packaged foods... I've been eating mostly fresh food for so long that I've just become used to it. I really don't like a lot of processed foods anymore. I have the odd craving from time to time - but it's minimal and if I eat something like a snack that's scd friendly usually the craving goes away. The trick is to have a TON of food pre-cooked in the freezer then it;s easy as pie to stick to. The problem is always finding the time to cook the TON of food.

Ask relatives for help and explain the issue perhaps.