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Started Uceris last night

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Ulcerative Colitis
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Posted 5/23/2013 5:50 PM (GMT 0)
I'm very optimistic!

Also, my GI took very seriously my description of the apparent link between gluten and this flare, and has ordered a test for celiac disease. I don't think I have it, as my symptoms don't quite line up (although my niece has it, so there's the genetic connection), but I really appreciate that he's taking it seriously.

I'm glad I listened to you guys about staying with him. There's every likelihood that my visit with him yesterday would have convinced me anyway, but I think I went in with a more positive outlook on him than I might otherwise have had, and I felt very taken care of.
Posted 5/23/2013 8:17 PM (GMT 0)
I hope the Uceris works for you ! :)
Posted 5/23/2013 11:39 PM (GMT 0)
Good luck w/ the Uceris and keep us posted!
B
Posted 5/24/2013 1:12 AM (GMT 0)
I started two days ago. I was having very minor bleeding and that seems to have stopped, so that's positive, but frequency and urgency haven't really changed I think. But it's early days.

I'm a bit confused by Uceris really. I have 10-15 cm proctitis, so sticking it in my mouth and expecting it to be at all targeted on the affected area by the time it gets to the other end (because it's meant to be topical in effect, not systemic) seems very hit and miss. Why it would work better than, say, Cortifoam is a mystery to me. But we'll see I guess.
Posted 5/24/2013 2:09 PM (GMT 0)
Uceris has been a lifesaver for me. I wish you all the best on it and that it will help you to achieve remission.
Posted 5/24/2013 6:25 PM (GMT 0)
Thanks you guys! I haven't seen any difference yet, but I'm not expecting to see any changes for 5 to 7 days. Well, in fact, I had a really bad morning today, but I'm starting to think that in addition to everything else, I need to go on that FODMAP elimination diet.

My birthday is next week and my boyfriend's birthday is the following Sunday, and I'm going to become a hermit or something for a few weeks following that and stick to a diet with zero gluten and few or no FODMAP foods to see what happens.

But I'm still pretty excited about Uceris.

PalaceDan, I have UC through the mid-transverse colon and yet corticosteroid enemas help me a LOT so I hear you on that. In fact, my trouble today is probably due to my not using the steroid enema last night. Dumb me. :-(
Posted 5/24/2013 8:10 PM (GMT 0)
Do they have uceris enemas?
Posted 5/24/2013 8:12 PM (GMT 0)
Ahhh.. That's entocort.
Posted 5/25/2013 1:13 AM (GMT 0)

janey47 said...
Thanks you guys! I haven't seen any difference yet, but I'm not expecting to see any changes for 5 to 7 days. Well, in fact, I had a really bad morning today, but I'm starting to think that in addition to everything else, I need to go on that FODMAP elimination diet.

My birthday is next week and my boyfriend's birthday is the following Sunday, and I'm going to become a hermit or something for a few weeks following that and stick to a diet with zero gluten and few or no FODMAP foods to see what happens.

But I'm still pretty excited about Uceris.

PalaceDan, I have UC through the mid-transverse colon and yet corticosteroid enemas help me a LOT so I hear you on that. In fact, my trouble today is probably due to my not using the steroid enema last night. Dumb me. :-(

I seem to be improving today. Definitely better than yesterday - but you know how it is, cause and effect with this disease is impossible.

My understanding is that it's the inflammation in the rectum that really drives frequency and urgency. I have no stomach pains, and based on the last flex sig really a tiny area of inflammation, but it's enough to make my colon work overtime. So I would guess that if it's these symptoms you're thinking about then a steroid enema or suppository would make the most noticeable difference.

Happy birthday for next week. Hope it works for you and you can really enjoy the day.
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