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UC is coming back

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Ulcerative Colitis
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Posted 5/28/2013 6:17 AM (GMT 0)
Hey guys, so I am almost 6 months pregnant now, and for about 3 months, my UC seemed to go into remission. Now, it is creeping back on me and I am pretty nervous. I have a dr appt Thursday, but symptoms are bleeding, on toilet paper and in stool, sometimes d sometimes not, some times mucous, sometimes not, and I have average of 3-4 bm a day. Just feeling scared :(. I am taking Asacol hd 800 mg 3x a day. And pre Natals. Anyways just looking for any encouragement etc or thoughts on what would help.
Posted 5/28/2013 6:18 AM (GMT 0)
Oh, I should also mention the blood tends to come and go as well
Posted 5/28/2013 6:20 AM (GMT 0)
Are you still on some rectal meds? I assume since you were healing that it's only in the rectum now and some enemas can catch it well. But your GI is better to tell that.

I hope you're feeling better soon.
Posted 5/28/2013 9:50 AM (GMT 0)
Congrats on pregnancy Chrissy,

Hope this is just a minor bleep, but I too would suggest retention mesalamine enemas, or even the next step of steroid enemas (would be a lot less absorption than oral steroid) during the pregnancy. Hope your Doc. has suggestions too.

The consensus seems to be, of course the least possible drugs the better, but more important to keep mommy healthy and flare free with DRUGS! than to be flaring badly without MEDS. during pregnancy.
Posted 5/28/2013 11:37 AM (GMT 0)
Chrissy,

Congrats on the pregnancy!

It's likely due to the wild hormonal fluctuations.

Least medicine, the better - I agree.

How about slippery elm powder, l-glutamine?

How are your vitamin d3 levels? Make sure you keep them high.

LDN is perfectly safe for pregnancy.

And yes, there's the rectals too.

 

Posted 5/28/2013 11:56 AM (GMT 0)
Ask your peri and GI for rectal meds - lowest impact to the baby
Posted 5/28/2013 12:47 PM (GMT 0)
Thank you I will see about rectals. I know diet has a role too, I am struggling there as well
Posted 5/28/2013 7:14 PM (GMT 0)
This happened to me during my first pregnancy. You can beat it so stay positive. Ask for a melsalazine enema and I would also ask for suppositories. Start taking them ASAP - time is not on your side. Suppositories work on the very bottom part of the rectum and anus; enemas work slightly higher up and can hit most of the left side. Lots of red blood and mucus can often be sorted through this alone and it isn't risky to the baby. You'll end up taking a lot of melsalazine, but almost all of it won't be absorbed and there is no evidence it is risky to the baby (unlike steroids).

Diet is a very experimental thing and you don't have time to experiment. From everything I read on these boards I wouldn't worry about excluding things - it is too risky nutritionally. I would just commit to eating spinach every day along with some resistant starch (e.g. greenish bananas or cold pasta/rice).
Posted 5/28/2013 7:18 PM (GMT 0)
Chrissy you know that the best thing now is the rectal meds...hopefully you can retain them without problem and you'll get this flare umder control.

The food, while having some of your symptoms and discomfort helped, it's not going to cure your flare.

Just feel better so that you'll be ready for the baby when it comes....everyone knows it'll be a stressful time, and you need to feel better!!!

Keep us posted.

q
Posted 5/29/2013 5:12 AM (GMT 0)
Thanks guys, yeah getting with gi soon. Yeah, also having a lot of stress, need to try to curb it, I think I'll have less strain on colon/baby
Posted 5/29/2013 12:05 PM (GMT 0)
Chrissy, definitely get on the rectal meds again and don't stress too much about your diet! I know that you can really get yourself worked up over that.

And I don't know if this will help you feel better, but I was really sick with a cold that turned into bronchitis pretty much the entire third trimester. I coughed hard enough that I either cracked or strained some ribs -- I was in pretty severe pain.

I didn't gain any weight at all (actually lost a little bit) during that entire time, and my OB was fine with it because the baby was still growing. She was 7 lb 13 oz at birth, so she was fine despite me being pretty sick.
Posted 5/29/2013 3:17 PM (GMT 0)
That's good. I tend to have more symptoms with stress as well. I also can't into gi until June 13 which is a bit worry some for me but I guess I will do my best until then
Posted 5/29/2013 3:27 PM (GMT 0)
I'd go ahead and see if they'll call in a script for rectal meds in the meantime. That's quite a while to wait. You can also ask to be put on a cancellation list to perhaps get in sooner. And do they know you're pregnant? If so, they might work you in more quickly.
Posted 5/29/2013 5:42 PM (GMT 0)
Ditto...get the script for rectals.

Good suggestion on the being pregnant point...stress it as well.

q
Posted 5/29/2013 9:50 PM (GMT 0)
Yeah. You need to start taking rectal meds tomorrow, not next month. Walk into the emergency room if you cannot figure out how to get an audience with a GI any other way. My current GI is hard to get hold of ("write me a letter" nonsense - who writes letters nowadays?!?) so I've taken to doing this to see someone.
Posted 6/1/2013 3:37 PM (GMT 0)
I wish my dr called in something for me :( my symptoms are worsenin, this seems to be escalating rather quickly. I still have to wait 2 days to see the dr. I'm surprised they are making me struggle and not call something in. They say they have to see me before they can prescribe. Kind of pisses me off because I'm starting to have more symptoms
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