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Done with Pred, but....

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Ulcerative Colitis
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Posted 5/31/2013 2:50 AM (GMT 0)
After 4 months on Prednisone, with dosages ranging from 35-60 mg/day, I finished tapering off about a month ago. Thing is, since then I have noticed that I seem to be losing more hair that I ever was while on Prednisone? Is this normal after quitting that awful drug, and if so, how long might it continue?

I also noticed that my skin was MUCH clearer than it had ever been while I was on Pred, but since getting off of it I am breaking out a lot more. I wonder if this will ease up at all, or just be normal from now on?

A few other things seem to be "off" right now. Maybe it's just part of having been so sick and the continuing recovery process, I hope none of it is anything bigger or new problems....
Posted 5/31/2013 3:00 AM (GMT 0)
hair ? what's that ?

i don't have a clue (dummy here) but i think time will improve things, not make it worse - i know, hard to do when everything seems to be going sideways, but based on my experience, it will get better -

and then someday, you'll be old like me, and the words " who gives a rip" will become part of your every day vocabulary :-)

healing is a wonderful thing - it just takes too darn long !

hope everthing else is going ok for you what !

Post Edited (soystud) : 5/30/2013 9:05:01 PM (GMT-6)

Posted 5/31/2013 3:06 AM (GMT 0)
Least of your problems wouldn't you say.. :) Congrats on feeling great and healthy....
Posted 5/31/2013 3:54 AM (GMT 0)
It will take a couple months for you to straighten out.
Posted 5/31/2013 4:58 AM (GMT 0)
Don't get me wrong....I am thrilled to be feeling as good as I am at this point!! And yes, there are some other problems that are worse than those I've mentioned, but none as big as the problem that was fixed when I got the big surgery. I was only asking to be sure if these were just more pred side effects and not some new ailment cropping up.
Posted 5/31/2013 5:02 AM (GMT 0)
ah yes... good question.... from personal experience...I am only 3 weeks into Pred ... new to UC as well...

Here's my thread I posted yesterday... https://www.healingwell.com/community/default.aspx?f=38&m=2746011

No hair loss or joint pains yet as many have experienced... but who knows what's in store.


Best wishes to you.

Posted 5/31/2013 5:05 AM (GMT 0)
"Least of your problems wouldn't you say.. "


either you're a dumbass or you just sound like one -
Posted 5/31/2013 5:23 AM (GMT 0)
yeah well that did not come across the way I meant it to... after all the pain and sufferring he must have gone through... this current thing must pale in comparison... is what I meant.. oh well
Posted 5/31/2013 5:27 AM (GMT 0)
that would be SHE !

da
Posted 5/31/2013 11:24 AM (GMT 0)
Please be respectful of other members whether you agree with what they have to say or not.

UCWhat-yes the hair loss will stop...mine got worse when I was off of it too. I think the acne will level out too.
Posted 5/31/2013 12:20 PM (GMT 0)
i was ;-)
Posted 5/31/2013 12:32 PM (GMT 0)
"i was ;-)"

No he wasn't. Give him a ban, he's a gluten free, and worst of all grain free sympatizer. ;)
Posted 5/31/2013 1:28 PM (GMT 0)
Welcome to the post prednisone after effects. Much of the prednisone damage doesn't show up until AFTER prednisone is stopped. It's going to take a while for your body to recover from prednisone use.

Sue
Posted 5/31/2013 2:02 PM (GMT 0)
Hurtbyuc~ I did understand what you meant by your comment, and yes I AM beyond thrilled and grateful to be doing and feeling as good as I am at this point. This doesn't meant that I don't worry about every little possible health issue that crops up, especially given all that I've been through. Just wait until I start the thread about wondering why I haven't had a period in almost 6 months!! EEK!!

Thanks everyone, I figured getting off Pred couldn't be all THAT easy...HA!! I did have a bone density scan about a month ago, and all looked good. Also got checked out by my eye doctor who said there was some very minor damage, but nothing he would've noticed had I not asked him to look for it. All in all, life without a colon continues to be GREAT and hopefully the other issues I'm having will sort themselves out in time.
Posted 5/31/2013 2:11 PM (GMT 0)
"i was ;-)"

Then either you are a jackass or you come across as one.

With all due respect of course.

UCwhat? - I just woke up and read your comment. Glad you did not not take it the wrong way. I am in pain myself and still trying to sound positive... sometimes my delivery needs work. I didn't mean to minimize your worries... apologies if it came across that way.

Best wishes to you.
Posted 5/31/2013 2:15 PM (GMT 0)
of course :-)
Posted 5/31/2013 2:35 PM (GMT 0)
Yeah, the withdrawal from pred causes a lot of problems. For me, prednisone made my hair come in twice as thick then I lost it all as I withdrew and stopped (plus I was sick so that makes you lose hair)

Congratulations on being off pred. Four months on those doses is not such a long course. I was on for 1 and a half years.
Posted 5/31/2013 6:59 PM (GMT 0)
My hair sheds more every single time I lower the dose, and I lower it every 2-3 weeks. I'm only on 6mg, lowered from 7mg a few days ago and it started shedding again today.  So I suspect its a reaction to the hormone reduction (for me anyway) and after the hormones even out the hair loss evens out. I also get a very red scalp so I'm sure lowering the Pred, which is an anti-inflamatory, makes the scalp inflamation act up.

I have battled hairloss for about 10 years now though and have topical solutions I put on my scalp to take inflamation down. The Pred taper certainly has made it act back up again.

As a side note, when on a higher dose of Pred - even above 10mg, I barely lost a few strands of hair a day!

Posted 5/31/2013 9:49 PM (GMT 0)
Don't now about hair. But them breakouts on my are annoying. Though after I finished tapering has gotten better, but still not fixed.
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