Had my appt today, UC flare and C diff, FT possible

I'm on a 10 day course of vancomycin for C diff.  Then I have a colonoscopy scheduled for 6-14.  Luckily, I have the only doctor in the area who will do a fecal transplant and said he would do one if I needed it.

I am off Asacol and Rowasa...I feel like they were CAUSING severe cramping.  So right now the only RX meds I am on are the vancomycin and Zofran for nausea.

Doc said that the slapped skin/sunburn sensation I have been having could be from the C diff toxins.

I asked about sodium butyrate and L-glutamine supplementation for mucosal healing and he thought that they might help and couldn't hurt (Yay!)

He did not want to prescribe prednisone or VSL3.  He thinks OTC probiotics or just plain yogurt are enough, and that VSL3 is heavily marketed but not necessarily superior.  I am on Culturelle and Florastor.

He is allowing me to do the senna pill prep for the colonoscopy...the thought of drinking that gallon of slime prep is more than I can stomach right now.  Do any of you have experience with the senna prep?

 

Sorry, I'm rambling. The FIRST thing we should hope for is that the vanco takes care of my C diff which will then allow my gut to heal. IF there is a recurrence, he will do the FT on me. Would probably use my son as donor...never have I known such a prolific pooper and he is in great physical health (18 yo athlete)

*doc's name removed*

Post Edited (geeker) : 6/12/2013 4:40:41 PM (GMT-6)

NomasUC: I noticed about 3 weeks ago (my flare started almost 4 weeks ago) that my skin, especially on my arms, burns and tingles I felt like someone had slapped me, then later realized that it also felt like a sunburn.

This was while I was only on the maintenance meds I have taken for years otherwise I would have thought it to be a reaction to something I was taking.

This burning skin kept me awake for a couple of nights. Had me worried about early MS neuropathy or other horrible things. Still have it, but have only been on vanco for 1 full day so maybe it will get better as the C diff is diminished.