Officially off Remicade

Well the time has come. I am officially off Remicade as my GI and I have agreed to stop it after having a perfect flex sig done after approx 8 weeks after my last Infusion. I am at the 10 week mark now (the time I should be getting my infusion) and I feel great. I hope it is the Imuran that is keeping me in remission and not the remicade because I hate remicade with a passion...well maybe not as bad as pred but you get the idea. Every single time I get a reaction during the infusion and the following 2 days are not fun. Anyways just thought I would start a thread to go back to in the future to keep people up to date with how I am doing off of remicade incase other people may be in the same situation. Quick history: On remicade approx 2.5 years, "thought" to be the thing that got me into remission, on imuran for 2.5 yrs and currently still on it, been in remission since early 2011.

As far as I know it's a fairly common thing to be on both at the same time. Of course that is if nothing else is working for you, which it hadn't for me. As my GI tells me it could only benefit me to me on both the imuran and remicade at the same time as imuran helps you to not develop antibodies to remicade should you ever have to come off, like I am. That is why my GI is telling me to stay on imuran, it helps my chances of being able to go back on remi, if that time comes. Personally I wouldn't worry about going on imuran, as I had no problems being on both, just my experience.

Yup, I was the EXACT same way, felt just like you do about it. Like you said though there are risks to everything. I guess it depends just how bad you are and if you really feel like it is something that will benefit you. At the time I felt like I did need both remi and imuran and it has paid off getting me in remission for the past couple of years.