HealingWell
Search Close Search
☰

Any other meds i should try?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/8/2013 1:50 PM (GMT 0)
"my remicade dosage is 304 mL every 8 weeks"

That is a weak dose. I was doing 640ml per 6 weeks. You can ask to increase it if you want.
Posted 7/8/2013 2:02 PM (GMT 0)
You mention mesalamine enemas (Rowasa) as "failed". Mesalamine enemas really help stop bleeding and help with urgency. I really, really suggest you try them again use them every night. They are different than steroid enemas and different than suppositories (they are better).

If your doctor says they won't help you get a new doctor because they do help and there are no side effects (unless you are are of the rare people sensitive to sulfa in them and then there is a sulfa-free version). They reach a larger area than suppositories and coat the area that is where UC usually starts. Like you I had no good results from all Rx oral meds I took except mesalamine enemas.
Posted 7/8/2013 2:58 PM (GMT 0)
I had my first true 'flare up' a month ago. Been in bed most of time with 15lb loss in weight. On Mesalamine but in the county system so follow ups etc not possible.
I had no idea this UC could be such a debilitating disease.
I've read so many posts on the range of drugs etc. I think the next step for me may be steroids which my CHF and heart problems will not tolerate.
So, looking around the internet I come across raw, juiced cannabis leaves.
Can anyone point to a person here who has had success with this?
Posted 7/8/2013 3:07 PM (GMT 0)
You might be able to increase the Remicade to every 6 weeks and 10mgs per kg. I'm not sure becuase you are under 18 years old.
Posted 7/8/2013 3:32 PM (GMT 0)
someone said:So, looking around the internet I come across raw, juiced cannabis leaves.
Can anyone point to a person here who has had success with this?

We aren't allowed to discuss cannabis here, sorry.
Have you tried regular green juices?
I can tell you that green juices made from collards with some carrot juice have been fantastic for healing my gut. It loves wheatgrass juice too but don't have any locally (need a special grass juicer to make it).
Vitamins go directly into your GI system without the fiber that is sometimes a problem for our inflamed guts. Give green juice a try.

BTW do you live in a state that allows medical MJ?
Posted 7/8/2013 5:01 PM (GMT 0)
"BTW do you live in a state that allows medical MJ?"


you can't talk about that ;-)
Posted 7/10/2013 4:49 AM (GMT 0)
My doctor is very stubborn, he wouldnt give me a prescription for colazal at first... then when he did.. 1. he wrote the wrong dosage 375 mg instead of 750 mg.. 2. my insurance needs his authorization (same thing happened with uceris).. fml
Posted 7/10/2013 6:37 PM (GMT 0)
oh, what a dork! Hope he'll get on it quickly so you can get on the Colazal...
(had to look up fml ;-)

q
✚ New Topic ✚ Reply
12