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Natural remedies, diets for UC

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Ulcerative Colitis
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Posted 8/8/2013 11:45 AM (GMT 0)
Has anyone discovered a diet plan to aid in the healing of UC ?
Acupuncture? I have been in a mild to moderate flare for over a year and I am ready to try anything hoping to stay off Prednisone.
I was diagnosed 10 years ago and am taking 6mp, Lialda, and Mesalamine Enemas which I find hard to tolerate.
Posted 8/8/2013 11:52 AM (GMT 0)
Toolkit,

Welcome to the forum.

Yes, I've discovered quite a few things that have helped greatly:

1) elevated vitamin d3 levels, - what are your levels at?

2) Probiotics, good ones and lots of them - are you on any?

3) slippery elm powder coates the intestinal tract

4) l-glutamine amino acid powder for long term colonic repair

5) diet modification as in gluten and dairy free, I am on PALEO diet which is anti-inflammatory

6) LDN, low dose naltrexone, non-BIG Pharma, low cost and virtually no side effects put me in total remission

If any of these interest you,  there are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.

I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.

For more info on the protocol which has put me into remission, please go to this link: https://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.

I hope you feel better and let us know how we can help you.

 

Posted 8/8/2013 12:00 PM (GMT 0)
Thank you for the info!!
Posted 8/8/2013 12:04 PM (GMT 0)
My pleasure.

Let me know how else I can help you.

:-)  

Posted 8/8/2013 3:30 PM (GMT 0)
I have adopted many of InSoFla's suggestions and have experienced a BIG improvement during the past 2 years.
I, too, have avoided Pred and many other drugs because of the side effects.

The enemas are a pain but I wish I had continued using them longer. After stopping for several years, I asked my GI for a new scrip to get rid of last bit of inflammation.
Best of luck with your efforts.
IAS
:-)
Posted 8/8/2013 3:34 PM (GMT 0)
Have you looked up SCD on the forum? It's a gluten/sugar free diet.
Posted 8/8/2013 4:32 PM (GMT 0)
I guess I am mentally dealing with this change that I need to make. I am a foodie at heart and a fancy beer lover. I know it will be worth it, it's just going to be very hard.
Posted 8/8/2013 5:21 PM (GMT 0)
What goes a long way (for me) is to take out the processed food from the diet. After I started following PALEO, my symptoms went away quickly and I was able to get off Humira within a month, and have stayed off since last Nov. What I have also noticed is that even when I do get a flare, it comes quickly under control. Before this, I never thought food would be that big a factor (when I was diagnosed, my GI said food is not a factor and I always believed that). I am not saying that everyone would respond the same way, but eating clean goes a long way.

You always have to pay attention to what triggers your symptoms. I went through stress, hot weather and eating all processed food while on vacation late last month. Each one, a sure trigger for me. I did get a solid flare up when I came back from the vacation but am feeling much better and am able to carry the daily activities without any interruption once I am back eating clean (and the weather in Bay Area is much cooler for the summer this year)
Posted 8/8/2013 5:23 PM (GMT 0)
Yes I understand it's very hard at first. But there are gluten-free beers believe it or not and, you can look into those I think.

As far as foods that are gluten-free and prepared products, I would say stay away from them they are generally full of some other type junk even though gluten-free.
Posted 8/8/2013 5:25 PM (GMT 0)
Toolkit,

Then there's always the idea of the food journal. Start keeping a food journal and see what correlations come forth between different foods symptoms etc...
Posted 8/8/2013 11:18 PM (GMT 0)
A food journal is a great idea. I did one for two years before i realized food alone wouldnt solve my problem. It was my whole lifestyle change that did it for me. But it seems everyone is a bit different.
Posted 8/9/2013 1:05 AM (GMT 0)
Thanks for all the advice, I am reading up on the SCD diet. I am already on a good path since I don't eat any processed, canned, fast food. I'm going to start with a simple diet and gradually introduce things to see what affects me. I'm lucky that I have a good support system in my home
Posted 8/9/2013 5:36 PM (GMT 0)
Good luck with that whatever diet you decide to try. Now is a great time to start SCD because it's summer growing season and the markets are full of delicious fruits and veggies right now.

I think for me planning ahead with that diet is essential because when you want to have a snack, if you don't have food ready to go, it's tempting to want to grab whatever's close by.
I keep banana's and Laura Bars handy. Also I cook meat up in the evening in large amounts and then it's ready for the next day or cut up fruits and veggies to toss in the pan when I'm ready - Honey carrots are delicious BTW

I've also tried baking with Almond flour. I've made biscuits and peanut butter brownies and they satisfied my bread craving. I haven't done too much of that, though because I'm trying to keep it simple.

I really hope diet helps you out. Let us know how it goes.
Posted 8/11/2013 8:34 PM (GMT 0)
Adventureuc - What are honey carrots? They sound wonderful!

Thanks for all the info, InSoFla! I'm also trying to avoid prednisone and you've given me a lot to read up on!

Actually, my PA called in a prednisone prescription for me last week without even discussing it with me first, then had her assistant call me to inform me of this decision. I told her I wouldn't be taking the prednisone, but that I would be happy to come in and discuss the next course of action in person. I'm going in this week to have that conversation and I want to be prepared as possible.

Given my PA's history of trying to push a new prescription down my throat (or up my ...) at every new appt (and phone calls between appts), should I try to discuss natural alternatives with her or should I just do it on my own?

I've been on the paleo diet since the end of May and saw a great improvement at first, but that disappeared after about 2 weeks. I'm currently taking balsalazide (6750 mg), a hydrocortisone enema (100 mg), fish oil pills (1100 mg), and Reuteri pearls probiotic (15 mg). Every single one of those had the same effect as my diet change - big improvement at first, but each only lasted 2-3 weeks.
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