i'm treating UC and H pylori, very scared

Hi everyone, i've been reading this forum for a while and it helped me a lot. but in a few days i am going to start very hard treatment and i need advice on how to survive this.
i am 34 year old mother of 3, have been absolutely healthy up until march this year, i spent a week at the hospital with my 5 year old daughter who had some sort of tummy bug. after that week i noticed blood in the toilet and paper after BM or sometimes instead BM, also i had very bad epigastric pain. went to the doctor, did colonoscopy and endoscopy, which showed proctitis (5cm) and inflamed cecum and h pylori in the stomach. the doctor didn't explain anything just gave me prescription for predsol suppositories and antibiotics for h pylori. i read the side effects and decided not to take them, instead i asked for solofalk suppositories, which helped with bleeding. i went on Gaps diet and it helped with stomach pain so much that i decided not to take antibiotics for h pylori.
i've read about FT and went to doctor Borody yesterday, who performed again colonoscopy and endoscopy, my h pylori still there but my UC is much worse, the whole right colon is inflamed now, and i was so sure that i am fixing it with the diet. so Borody told me that i have to get rid of H pylori and gave me stronger antibiotics Amoxycillin, omeprazole, levofloxacin, rifabutin (the side effects are terrible) and after that i suppose to start a new round of antibiotics for UC RIFAMPICIN and METRONIDAZOLE and after that he will perform FT. i need any advice on how to reduce side effects while on these drugs.
did anyone tried this therapy before, did it work? what to expect? i need any information as i feel so powerless and just don't know what to do anymore, what food to eat and which supplements to take.

HI InSoFla, thank you for the reply, i asked about probiotics and they said it's ok to use them, but which ones should i use? i've tried VSL#3 but it made me to go to the toilet more often and gave me cramps. as for the diet i was on GAPS diet for 2 months and my symptoms improved but as it turns out it didn't help with healing at all

If you have H. Pylori, do you also have gastric ulcer(s)? If so, let me mention Zinc Carnosine. It has been used for years in Japan to heal ulcers. It does way better than PPIs, and doesn't have the nasty side effects. I had (hopefully it's "had' now, instead of "have") a gastric ulcer. Never had any pain, but took Zinc Carnosine for it.

For diet-related healing, it can take a long time. I've been on "SCD minus" for over a year, and just now experiencing symptomatic healing. (SCD minus means SCD diet (similar to GAPS) minus a lot of foods that I can't tolerate).

Definitely agree with pro-biotics, as much as you can stand. Its possible that your previous VSL#3 experience was too much probiotics too soon. You could re-try, just start kinda small and work up to a larger dose as your body tolerates it.

DGL is a wonder supplement for stomach ulcers and indigestion. I am not sure if that is a good idea not taking the antibiotics for the H-pylori. As far as I know that is the only way to get rid of it once you got it. Otherwise I would consider some oregano oil in gel cap form and some probiotics (s. boulaardi) in particular. Maybe this and time it will take care of it.

My understanding is that Antibiotics kill good bacteria which would make Probiotics useless-dont take at the same time. Both Oil of Oregano (with at least 70% naturally extracted carvacrol) or Olive Leaf Extract are very effective killing H. Pylori.

Best...

thanks for the advices, i think i'll take antibiotics for h pylori and just pray there would be none or minimum side effects.
did anyone take antibiotics for UC RIFAMPICIN and METRONIDAZOLE? i have to take them for 50 days, it seems very long time to stay on antibiotics.

ok so i started antibiotic treatment for h pylori, i am day 4 out of 14 and feeling really crappy, nausea, chills, no energy and i thought i've got it all but today i started bleeding, after 2 weeks of normal life without much urgency, meds and no blood i am back to square one. what do i do? stop antibiotics or put up with it and treat bleeding with suppositories? i am scared that antibiotics will ruin my gut even further and i will end up with bad flare. but if i don't treat h pylori i might get gastric ulcers. i do take probiotics at night time and all the l-glutamine, slippery elm, VSL#3, vit D. what else could i do to protect my colon while fixing my stomach?

Hi Sara i was diagnosed with proctitis and inflamed cecum at first or they didn't go far enough to see the rest i don't know. But I think Borody has a better diagnostics, so he said i have mild inflammation of the rectum but the entire right colon is badly inflamed, is it called pancolitis (Borody didn't call it that way )? (sorry i am new to this and only just started to learn all the right words). I do take VSL#3 in the morning and an hour later i take antibiotics, and Florastor 3 hours after last dose of antibiotics at night. the real question is how do i protect colon from bleeding apart from probiotics? Salofalk suppositories?

UC starts from the bottom most of the colon - i.e rectum. Then it spreads up - Sigmoid, Descending, Transverse, Ascending and till end of the cecum i.e the starting of the large intestine.

Cecum and the Ascending forms the right colon. Transverse the middle, Descending, Sigmoid and rectum form the left side.

So if you were told that right side of the colon was badly inflamed then I would have asked were the Sigmoid, Descending, Transverse were OK? Because UC ends at the right side of the colon starting from the rectum. I'm not sure if the rectum and the right side colon are inflamed then its UC. Rather it would be Chrons. But your Biopsy says that its UC.

I'm not that experienced like other members we have here. But I have the basic understanding of the UC. Pancolitis is a sever case of IBD where the entire large intestine is inflamed i.e starting from the rectum till the ascending and the end of the cecum.
I would suggest you to call your doctor and understand about your diagnosis.
Questions could be -
1.) Were my Sigmoid, Descneding, Transverse were ok?
2.) If they were ok, how did they confirm UC? Because UC starts from the rectum and spreads up continuosly.
3.) Is it not Chrons - another type of IBD which can occur anywhere in the digestive tract. Where as UC affects only the large intestine.

Difference b/w UC and Chrons is
UC will have continuous inflammation starting from the rectum where as Chrons will be in patches i.e not a continuous inflammation. For ex - your case inflammation of rectum and the right side colon is a typical one for Chrons.
UC affects just the innermost wall of the large intestine where as the Chrons affects the digestive tract much deeper.

Please try to get your diagnosis clarified from your doctor. I would appreciate other members' views as well on your diagnosis.

so i just found the paper with my colonoscopy results it doesn't clear thing much what it says:
she has a short segment of inflammation in the rectum which is scattered and not the classic severe poctitis, she has some scattered aphthoid erosions in the sigmoid but the major issue is the whole right colon including the hepatic flexure are involved in dense inflammation.
so is it UC or not?

@Delta, as Quincy said it doesn't look like you have UC. It could be a infection or microscopic colitis.
You did mention that your 5 years old daughter got a tummy bug which means there could be a chance of a kind of food poisoning which could have affected you as well possibly?

Didn't your doctor share the biopsy result with you?

I would suggest treat one at a time. First the colitis as you are bleeding at the moment.
Once the colitis is stable in remission, start the treatment for HP. In a month or so HP wouldn't cause a massive problem. But check with your doctor.

Seems the colitis he's suggesting is an infective type.

q

@delta30, How are you doing? did you get the biopsy results? what did it say?