Disney World

Hi All,

I am going to Disney World in a few weeks with my family (2 year old and 5 year old) and am now flaring again with UC. I just have bad cramps and have to use the bathroom a lot. Any advice on what I can do to try to clear this up before I go? I will start the remicade when I return. Currently I am taking 100 mg Allopurinol and 50 mg of 6mp with a probiotic and asacol HD. 

Thanks!

Does flaring again mean that you had been in remission? What meds were you on while in remission? Is there any way to start the Remicade before going? Which probiotic have you been taking and for how long and at what dose? How long have you been taking 6MP and at what doses? How long have you been on Asacol HD? Did you just start that due to regular Asacol being discontinued? Unfortunately I don't know of any way sure fire way to fix you in time for the trip. I think the best bet would be to get the Remicade before you go. It can sometimes work very quickly, unlike the 6MP.

My advice is to avoid stressing yourself out with a jam-packed schedule while you are there, feeling like you need to see everything in every park. Build your schedule so that you have plenty of down time to relax. By early/mid afternoon, your kids will probably be exhausted or overstimulated, so plan some relaxing down time for naps and hanging out by the pool.

I went to dw eight years ago during the wost flare of my life. I ate almost nothing and lost 15 lbs in a week while on 40mg of pred no less. There are a lot of restrooms there but not on the boats or buses so i was very anxious. By the end of the trip my family was pushing me around in a wheelchair from dehydration and weight loss. In retrospect i should have cancelled but i didnt have any trip insurance and i would have lost all the money i spent. One good thing was i was able to get seats on the plane next to the bathroom for the two hour flight.

We went in Oct. and I was flaring. I was actually so distracted w/ all the activities I didn't have to go as much :) I had a back up change of clothes in our pack back just in case. We drove (was about 8 hours). I took imodium for the drive so we wouldn't have to stop a ton.

I ate a lot of cheese flatbread pizzas and grilled chicken. I was on pred. and mtx at the time. The only problem was it was unseasonally hot and my knees were super swollen the entire time. Otherwise a fantastic trip :)

Supposedly it can lower your immune system but in the six years i took it i never caught a cold or flu. I was tested for tb prior to my first infusion that was pretty much it.