Posted 9/15/2013 3:32 PM (GMT 0)
I haven't written a signature because my meds and situation has changed so much. With all the Mesa drugs, in about a day or two of starting them I get really bad pain, worsening blood and increased D, mostly watery. They started me on Pred and after a month or so we saw no improvement, my dr wanted to do Humeria. I thought this was a little extreme, so I was willing to try another brand of mesalamine just to be sure I couldn't tolerate any of it (mind you, I had bloody D and mucus, but no pain and I was able to function fine). Well, two days in began the usual symptoms but I stuck it out for a week just to see. I took myself off of it, got a little relief, but it seems that my body never fully recovered and it's been a downward spiral ever since. We tried sulfasalazine, I gave that about a month and finally couldn't take it anymore. I'm afraid that the uceris is doing the same thing, it's only been 2 weeks, is that long enough to call it a fair trial? I'm contemplating stopping it for a week and see what happens. I know with that drug your not supposed to have to taper. My doc wants to do another colonoscopy to see what's going on soon if I don't improve, perhaps this is a good idea. I've also been tested for c-diff and parasites etc, everything normal. I've also just started the steroid enemas two nights ago, as I am having horrible pain in the rectal area.
I've been following loosely the SCD diet, I've not had any carbs, sugar or dairy in about a week and a half, thought I'd see some improvement! This is what's making me think the meds are holding me back from feeling better, this diet is supposed to be so wonderful and make you feel at least marginally better within a few days right?!