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Are you sure, absolutely, positively, SURE, that food has nothing to do with your UC?

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Ulcerative Colitis
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Posted 10/25/2013 3:46 PM (GMT 0)
Obviously this is sore subject for many. I'm doing the whole paleo GHD but certainly it was switching from canasa to enemas that helped then adding Canasa in the morning to get rid of almost all of my symtomes. Still not in full remission yet. For me I was doing great on canasa then went into a flare(most likely stresse induced). I figure I mind as we'll change my life up a little(diet) for now to see if it helps. Also since nobody knows the cause of uc it is certainly possible that we might be dealing with multiple diseases. Would make some sence to explain why some respond to certain meds whiles others do not. Certainly uc sucks and I know many on this board have it way worse then me but most people are dealt with serious issues in there life at some point.
Posted 10/25/2013 3:47 PM (GMT 0)
I thinks it's time for all of us to get together, find a comfy spot, and treat our uc with a couple doobies and 2 hours of pre holiday bliss watching Christmas Vacation !
Posted 10/25/2013 4:35 PM (GMT 0)
I have no idea what originally triggered my UC - from what I remember it was that I got food poisoning and a few weeks later my colon started bleeding.

But I can say, without a doubt, that not one person on this forum is exactly the same as anybody else with UC.  What works for one may not work for another. I treat this forum as a way to get suggestions and give suggestions. What may work for me may not work for another and vice versa. But hey, if it does work for me all I can do is say 'here's what works for me, try it if you like but it may not help you' and let others take it from there.

My brother also has UC, or had it for about 4 years than had to have j-pouch surgery because no meds ever helped him. Me, on the other hand, have had UC for 19 years with no surgery and never as bad off as he was. Meds have worked for me. This is an excellent example of what works for one does not work for another.

Stress is for sure the trigger for my UC. But that can be a hard one to control as sometimes things happen in your life that you just cannot control. But I try darn hard to make deal with stress the best I can. 

In my opinion, if something is working for me and helps me lead a normal life, I could care less what it is - meds, yoga - who cares as long as I'm not sick.

Oh and on a final note, I am absolutely, postively, SURE that food has nothing to do with my UC (that was the original question, wasn't it)? :)  Food does upset my IBS, but that is just temporary and right back to normal the next day.

Posted 10/25/2013 4:38 PM (GMT 0)
Diet has an effect on IBS, so it can definitely have an effect on IBD.
Posted 10/25/2013 5:18 PM (GMT 0)
Diet has an effect on IBS, so it can definitely have an effect on IBD.
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Huh??? That makes as much sense as saying...
Diet can have an effect on depression, so it can definitely have an effect on IBD.
Diet can have an effect on metabolism, so it can definitely have an effect on IBD.

Point? There is no connection between IBS and IBD. IBS is a muscular response without any inflamation response.

Diet can have effect on IBD, but not because it has an effect on IBS.
Posted 10/25/2013 5:20 PM (GMT 0)
The big question is - What is the definition of "diet"? When you get right down to it, probably almost 100% of UC'rs use diet to help control their UC. If you have just one item of food that you try to stay away from or limit then you are using diet to help control your UC.

I think the disagreements begin with using one of the formal diet plans. Some of these plans unquestionably help some people but some of these diets are dyametrically opposed. Eliminate all red meats, go Paleo, etc. What's irritating is when some go beyond the UC world and harp and harp about we should go gluten free (or whatever), even if it does nothing for our UC. That should be reserved for another forum and it is just plain insulting when someone here as tried to do a particular diet and it hasn't worked and yet they are preached down to as if we haven't tried hard enough or long enough and that even if it doesn't work for our UC we should still do it anyway or that if we had done it correctly then there is a 100% guarantee that it would have put us in remission.
Posted 10/25/2013 5:27 PM (GMT 0)
I'll add that my first flare (that I know of) occurred three years before my DX. I had pain, urgency, mucous, a little blood (which I thought were hemis) but my sympotms improved in a few days on their own and I stayed in remission until 3 years later when it came back, but wouldn't go away.

I have no idea what made it go away just like I have no idea why it came out in the first place.

However, had I started hopping up and down on one foot when I had my frist flare i would have found my "cure."
Posted 10/25/2013 5:35 PM (GMT 0)
"What's irritating is when some go beyond the UC world and harp and harp about we should go gluten free (or whatever), even if it does nothing for our UC. That should be reserved for another forum and it is just plain insulting when someone here as tried to do a particular diet and it hasn't worked and yet they are preached down to as if we haven't tried hard enough or long enough and that even if it doesn't work for our UC we should still do it anyway or that if we had done it correctly then there is a 100% guarantee that it would have put us in remission."


show me where anyone on this forum had done that gary ! otherwise, stfu !
Posted 10/25/2013 5:37 PM (GMT 0)
Boys, boys don't make me send you to your rooms: garyloisville and soystud lol
Posted 10/25/2013 5:46 PM (GMT 0)
I mean really, what is there to argue about? For some people diet really has something to do with their UC flares and other people it really doesn't. UC is soooooo individual.
Posted 10/25/2013 5:47 PM (GMT 0)
I do want to point out that I have soystud on my ignore list (my only one) so I have no idea what he says (unless someone else quotes him) so I do not direct any of my posts to anything he has said because I don't know what he has said. The reason I put him on ignore is because he seems to have this nasty habit of directly criticizing just about every opinion I make and frankly, I have much better things to do with my life than listening to constant criticism from one idividual.

JC: You are so right about the hopping thing. That was hilarious!

Posted 10/25/2013 5:49 PM (GMT 0)
jc, diet has an affect on many things, and I'm sure depression is one of them, look at kids that get hyped like crazy on some sugar, while other kids aren't affected the same way by it (or even adults for that matter). I think as a society we don't give diet enough recognition for the many health (physical/mental/emotional) issues that diet causes.

And trust me, I know the differences between IBS and IBD, it was an example...bottom line, you are what you eat has a lot of significance that too many people ignore. Even people that eat a crap diet all their life don't end up with an IBD or even IBS or Celiacs or any other gut diseases/syndromes doesn't mean they won't develop other health issues as a result of their diet.
Posted 10/25/2013 5:58 PM (GMT 0)
"I do want to point out that I have soystud on my ignore list (my only one) so I have no idea what he says (unless someone else quotes him) so I do not direct any of my posts to anything he has said because I don't know what he has said. The reason I put him on ignore is because he seems to have this nasty habit of directly criticizing just about every opinion I make and frankly, I have much better things to do with my life than listening to constant criticism from one idividual."

c'mon gary, grow a couple !

Posted 10/25/2013 6:02 PM (GMT 0)
I won't disagree with any of that pb4.

But understand that for me, there is no correlation I can find between my diet and my UC. That's just me. And as many others have pointed out, UC is probably a lot of different different diseases all lumped under the same problem as evidence by the extent and severity of inflamation, how it responds to medications, and diet.

I have always eaten a healthy diet because it does have a positive effect on my overall well-being and science has proven some of its benefits (e.g. cardio-vascular)

And I again, I am happy for those that have found improvement or even remission with dietary changes. I wish you all well and continued success.

As for me, the search continues and I am running out of options.
Posted 10/25/2013 6:11 PM (GMT 0)
I think it's semantics...that's what's causing it.

q
Posted 10/25/2013 6:12 PM (GMT 0)
Oh I totally get where you're coming from jc, the fact that they still don't know how to deal with IBD appropriately for us doesn't help, especially after over a hundred years of it being around, it's truly pathetic.
Posted 10/25/2013 6:20 PM (GMT 0)
Just in case you were wondering about IBS and inflammation and any relation to IBD.

There seems to be some possible overlap.

Just thought I would pop in on this one, I am busy trying to connect hygiene, infections or lack there of,worms,dust mites,shrimp, tilapia, cross reactivity,IgG tropomysosin isoforms, cell deletion, oral tolerance,bacterial mimics,passive attrition of immune cells, allergies.

Oh My,my head is spinning.

Old Mike

http://www.sciencedaily.com/releases/2012/10/121022081236.htm

this one asks if IBS is a low grade form of IBD

http://farncombe.mcmaster.ca/documents/Berciketal.GastroenterolClinNorthAm2005342235-245.pdf

just of kicks Serotonin messes with both diseases

http://www.ncbi.nlm.nih.gov/pubmed/18185071

Post Edited (Old Mike) : 10/25/2013 12:36:08 PM (GMT-6)

Posted 10/25/2013 6:21 PM (GMT 0)
It's a disease, we inherit qualities that makes some people susceptible and something happens to triggers it.
That's the risk of just living in this world and passing genes onto another generation.

It sucks...it's one disease of a gazillion we can inherit or acquire.......thankfully, we can live without a colon.

q
Posted 10/25/2013 6:31 PM (GMT 0)
And some around here will argue that living without it is easier than living with it!
Posted 10/25/2013 6:37 PM (GMT 0)
I think diet does help some who have UC or UC-like symptoms. It is possible GI's could be mis-diagnosing this due to lack of individualization. I believe that was my case. Coming down with UC symptoms due to Pregnancy seems very different than someone who took antibiotics and has similar symptoms. Food has definitely helped me and I hated taking drugs so I'm glad I found SCD to help me to live normally again. I noticed a change almost immediately. FT made it even better.

If you read the book about the SCD diet, it says if you should follow the recommendation it gives for diet, but also adds that one can alter or tailor it to fit your needs or bodies abilities. Therefore, it is not as strict as some may claim it to be.
Posted 10/25/2013 6:39 PM (GMT 0)
"I think it's semantics...that's what's causing it.  "

well it's about time someone finally figured it out - thanks Heather :-)

Posted 10/25/2013 6:45 PM (GMT 0)
^^ always happy to be of help. Well, that's over....can we go have fun now?

q
Posted 10/25/2013 8:07 PM (GMT 0)

jc1973 said...
And some around here will argue that living without it is easier than living with it!

Yup, I'll argue that! (it's easier living without a diseased one that is) Lol
Posted 10/25/2013 11:04 PM (GMT 0)
Why do people always say 'you can live without a colon'?

The full statement is 'you can live without a colon provided you have major surgery to fashion an internal pouch or external bit of plumbing and, after all that, it won't work as well as a healthy colon, but hey, it's better than letting fulminant colitis kill you'.

J-pouch seems a lot less suckier than a stoma admittedly, but you've got to go through 2-3 surgeries to obtain it. And once you have it, you'll be going to the toilet several times a day. Well, I was doing that for years with Crohn's, tbh.
Posted 10/25/2013 11:08 PM (GMT 0)
I don't know if food or something in our food causes UC or flares. Something is responsible for the higher rates of UC in Northern industrial countries. I am absolutely positive that changing my eating habits and what I eat makes my symptoms much milder in a flare. Many small meals of mild low residue food. Don't believe me then try the raw broccoli, black beans, hot salsa, bourbon and mickey's malt liquor diet the next time you are chained to the toilet. I actually had a doctor scold me that food didn't matter then 2 minutes later tell me to go on a low residue diet.

By the way the evidence that UC is a inherited genetic disease is pretty thin. The strongest correlation is between siblings and guess what they share both similar genetics and environment in a disease that usually appears in the 20s. Basically what is known for sure about this disease is very little. Our genes haven't changed in the last 75 years but food and other things we are exposed to in our environment have. We did not evolve to eat some of the crap we do, live the way we do or to be exposed to the large number of chemicals and such a large variety of microbes and such that we do in the modern world. Lots more autoimmune diseases are caused by something. Really no downside to minimizing refined nutrient free chemically soaked foods. Besides spinach and bananas really do settle my gut.
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