HealingWell
Search Close Search
☰

Newly diagnosed, burning pain

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/31/2013 2:13 AM (GMT 0)
Hello, I was diagnosed a couple of weeks back with ulcerative colitis after a colonoscopy with biopsies. I am now waiting to see a gastro doctor. I am 46 years old. I have inflammation in my entire colon. My symptoms have always been burning pain, mainly above my belly button, but can be whole abdomen. I do have short bouts of diarrhia, but mostly swing back and forth from constipation to loose stool. I sometimes get blood on the toilet paper, but this is rare. It seems like the burning abdominal pain is relieved after a bowel movement and my colon is empty.
Anyone else have this burning? Thanks
Posted 10/31/2013 11:28 AM (GMT 0)
Thanks for the reply. I am not on medication yet. Just found out that my appointment for gastro doc is 4 months away. For some reason I am far down the priority list. Phoned their office yesterday and was put on the cancellation list and explained that I am in a flair. Not sure what to do. Thinking of going back to my family doctor, maybe I can travel outside my area and have a shorter wait time. I honestly feel like i'm dying some days. Very tired, yet I can't get a good night sleep because of pain.Thanks
Posted 10/31/2013 12:40 PM (GMT 0)
Who did your scope? I'm surprised you weren't put on any meds then. I would see your regular doctor and explain the situation. You need to get on meds now because symptoms can get worse. I would also look into a different GI doctor. Four months to wait while in a flare is unacceptable even if you are a new patient.
Posted 10/31/2013 12:51 PM (GMT 0)
ITA with sherbear.
Posted 10/31/2013 2:24 PM (GMT 0)
Never had pain that high, mine is always contained to around my waist line or just below.

I'm on board with the others saying that 4 months is way too long to wait, especially with no meds.
Posted 10/31/2013 3:15 PM (GMT 0)
When i had high pain above my belly button it ended up being my gall bladder. I had to have it removed.
Posted 10/31/2013 4:28 PM (GMT 0)
Definitely go to your family doctor. Get a copy of your biopsies results for sure!!! (we like to ask questions..lol..and for your clarity of what's going on.

Ask your doctor to put you on 5ASA medications...oral and rectal until you can see the GI. There's no way in hell I'd want to suffer for 4 more months to see the GI..

Who did your scope?

The burning could be spasming for a variety of reasons all combining with the fact that you're flaring.  You could also ask your doctor for an antispasmodic such as dicyclomine.  It works well.

Food changes can help....what are you eating on a daily basis.  Some can cause more discomfort.

q

Posted 10/31/2013 7:55 PM (GMT 0)
Hi guys, thanks for the advice. I live in Canada and my colonoscopy was done by a general surgeon. There is a shortage of doctors in my area. The gastroenterologist appointment is taking 4 months because my family doctor felt he was the best and there is a waiting list. Just called my family doctor and he wants to see me today at 5. I'm going to ask if he can start me on meds and try a different gastro doctor, even if it is outside my area. It has taken me 3 years to finally get a diagnosis, had an endoscopy for stomach, hida scan for gallbladder and a 24 hr esophageal pH test, all were normal.
With hindsight, I can see that my symptoms made my doctor think that it was chronic gastritis. I had bad heartburn, was on nexium until pH test came back normal. I don't have blood in my stool (that i know of), or pus and I don't have bad diarrhea. I suffer mostly from constipation, but I always have. I do get occasional diarrhea, but it resolves within 2 days. I'm very confused and tired.
I'll post with results.
Posted 11/1/2013 12:14 AM (GMT 0)
Ok, my family doctor put me on 5 ASA. He is going to find a specialist where I can get an earlier appointment. Thanks again guys, great info.
Posted 11/1/2013 1:13 AM (GMT 0)
When I had burning pain that high, the next night a lot of blood came out. It was ulcers.
Posted 11/1/2013 11:47 AM (GMT 0)
Like you, I too have the constipation aspect of this illness and I suffer from pain above my belly button and also to the right of my belly button. I find a hot water bottle on the area a help. I have also found that upping my daily water intake reduces the pain (between 2 and 3 litres per day) so I am assuming that the issue comes from a constipation blockage/buildup.
✚ New Topic ✚ Reply