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i hate pred., with everything in me right now!!!

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Ulcerative Colitis
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Posted 11/8/2013 8:07 AM (GMT 0)
okay so some of you may have seen my "might have cheated" post earlier where i explained i cheated on my "flare diet" with some very very bad foods. yes i have cramps now and a tiny bit of blood in my last bm, but right now that is the last of my concern!! i am so frustrated with these stupid stupid stupid steriods!!!!! I've been up since 6 am yesterday morning (Thursday), it is now 2 am Friday morning and my poor body is drained but i cannot go to sleep. I've taken a night time tylonel (sp?) four hours ago, anddddd...... nothing. my eyes won't stay shut and i keep feeling the need to get up and do things but my body physically does not have the energy. on top of that, my stomach is completely filled, i mean its bloated. i honestly look pregnant! i know that not another crumb can fit into there yet i am still hungry!!! this is absolutely miserable! i hate these pills with everything in me. i wish i could just flush them down the toilet now and surrender my colon!!!! it seems all a little exaggerated but i am just having a very bad moment right now. i need some sleep, desperately. mad mad mad mad
Posted 11/8/2013 2:10 PM (GMT 0)
Many of here can relate as we've have been there and done that during at least one or sometimes for multiple uc flareups in the past. Flares are misery pure and simple. I know during the worst of my flares I was wishing my colon was gone, knowing myself, I probably screamed it along with some expletives while in pain on the throne. Let us hope that you get your flare under control soon, so you can taper down your pred dosage and get some sleep (lower pred dosages help greatly there). I believe most over the counter sleep aids won't cut it, you might need something prescription based.

Anybody have a sleep aid that worked for them while on high dose pred?
Posted 11/8/2013 2:56 PM (GMT 0)
I am so sorry! When i tried to take pred by day 4 i knew it was NOT for me and i just quit it! There is like 4 or 5 days when you can do that safely. Start taporing now, talk to your dr and tell him you need something else! I hope you feel better soon. I hate pred with all thses stories i read i just dont get it!!
Posted 11/8/2013 2:56 PM (GMT 0)
I take ambien 10mg every night. I can't sleep without it.
Posted 11/8/2013 9:25 PM (GMT 0)
well i finally passed out around 4 am this morning. probably more from boredom than my mind actually shutting up and going to sleep. I've already started tapering down on my pred, i started at 40mg for a week and i taper 10mg every week until i take a half a pill a day which is 5mg. so now im at 30mg until Monday when i start the 20mg. im so torn because it is helping my flare tremendously because when i started the steriods i was going to the bathroom over 20 times a day and in constant pain that kept me in my bed everyday for a month, now im feeling barely any pain, and have about 2-4 bm's a day. so it helps, but its the devil!!!
Posted 11/9/2013 12:25 PM (GMT 0)
But you have to find some other solution or it comes right back anyway! Start looking now!
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