What's the latest on those taking CC Herbal?

My son's been taking the cc for about 5 weeks now - he definitely thinks there is an improvement - he's not going to the loo as much. How are others of you getting on? Thanks

I have been using the CCHerbal for about 2 weeks now. It seems to be helping. But I started out with the Thorne Isatis first and have been on that for about 6 weeks. I use them both together, as I am to scared of going into another flare to stop taking anything that's working. but it's been 6 weeks and no headaches or bad side affects so far

I have been taking CCHerbal since June.  In my case it stopped a year + long nasty flare.  I started out

taking one pill a day then went to two, then 3.  Since I have stopped all steroids and cut back on Apriso,

which is the same thing as Lialda, and am down to taking 1 CCHerbal every other day.  My goal is to

completely stop taking CCHerbal and continue to cut back on the Apriso.  So far I'm not having any

problems with the change.  For me, the CCHerbal somehow settled down and balanced my immune

system when nothing else would.  In my non professional opinion, I'm not sure taking three CCHerbal

a day is neccesary.  For me three a day was too much.  Also for me, taking any other supplement,

such as, vitamin C, D, Fish oil, ginger or probiotics with the CCHerbal made things worst.  As soon as

I stopped taking anything but the CCHerbal and the Apriso things got better very fast.  Again, that is

what happened with me and may not be what will work for someone else.  I know I am very happy to

be normal again and never want anyone to have to suffer with this awful disease.  Hope your husband

has the same success as I have.  Keep away from stress and stay positive.

Prayers be with you.     

MensaMan:

A word of warning: Please, please do not keep on cutting back on the things that work for you, especially to zero at some point. You said, "I never want anyone to have to suffer with this awful disease". You are taking a very huge chance that you yourself will suffer again if you continue on your current path. I have seen so, so many people come on here who had troubles, went into remission, quit what they were doing that put them into that remission, and flared again, much worse than before. Future flares often get harder and harder to treat so you are very much mistaken if you think you can let up or eliminate your treatment plan and if you flare again you can just do what you did before. Usually that just does not happen. I very much plead with you to please do something, even a small amount, on a daily basis - forever, even if you have been in remission for 25 years. UC is a lifelong chronic disease that needs daily attention to stay in remission. It never gets cured or goes completely away. It is always hiding right there in the shadows, just waiting for you to get complacent.

 

I have been taking CCherbal for years with great results.  I have gone back to work after being housebound for so long.  I really don't know where I would be without it.  

Franny is your son still taking ldn as we'll?

bumping this one with my update. Have started cc herbal 12/2 so been about 9 days at 3 times a day. Also taking l glutamine 2 tsp with water every morning, imuran 150mg and colazal 3 x 2 a day.
basically tapering off pred for the 4th attempt 1st with cc herbal. Noticed now only 1 bm a day (formed to mush) but still 20mg pred tapering 5mg to 10mg then slower thereafter.

Obviously while tapering off pred hard to tell if it is definitely working BUT cramping down, anxiety down, putting on weight slowly again (yay) and a generally more calm feeling bowel. I only started at 25mg pred after being off pred for 10 weeks (started pred after constipation issues brought blood back uuurgh!) so i dont think it is all down to pred. My "gut" feel (excuse the pun) is that it is working but true test is tapering pred without issues. So far actually got better when i dropped from 25 to 20 which is not the norm for me!

Will update with hopefully positive news. If there other users of cc herbal please update us on your progress. |god knows we all need some relief and it may help others along the way

Imran123 Scarecrow. Have you stayed on 3 x a day cc herbal all this time or did you cut back. Are you taking anything else along side the cc herbal.

Imran123, I have always taken 3 a day.  I do take Metamucil in the mornings which I think is helpful.  I agree with the people above.  Not sure why you would cut back on something that is helping.  

1 month now on cc herbal. The main theme is 1 a day and sometimes 2 a day bms. Am now taking 1 metamucil capsule with every meal ( so 2 x a day for me) and find this has helped with stool formation and pain is almost gone! I still have 1 or 2 bad days a week but i think this is due to me upping my metamucil to 2xcaps with meals. Went back to 1 and everything is better.

My last flare came back after 2 and half months being off pred due to ibd nurse telling me to use lactulose for the pain diagnosing constipation! Therefore, using metamucil to keep things regular this time to avoid that horrible scenario. I was going 2 - 3 x a days so could not understand how I could be constipated and the volume was scary lol!

Now on 7.5 mg pred (1 day 5 next day 10). Hoping to go to 5mg pred on Sunday. Unlike previous tapers I have not had to bump back up. Really hoping this is the ccherbal doing its thing. By the time i finish the taper it would be over 2 months on pred. fingers toes and everything else crossed!

Post Edited (Imran123) : 12/31/2013 3:20:26 AM (GMT-7)

Thank you for your input scarecrow, it is useful to note your improvement by adding metamucil. I will slowly try and creep up the metamucil capsules if i have issues. At the moment have had 2 excellent days in a row just want to keep this feeling of not even thinking about my stomach pain and bowel issues going. Seems so long since i felt like this but not getting too excited. This disease is anything but predictable

Post Edited (Imran123) : 12/31/2013 3:19:50 AM (GMT-7)

scarecrow when you say 2 spoons of metamucil is that tsp or tbsp?

I use 2 heaping teaspoons of Metamucil in a glass of water, first thing in morning and follow it with 1 tsp Elm bark powder in 2 oz. water. I wait an hour or more to take my Meds, as both can reduce effectiveness of Meds. I've used Metamucil many yrs, started in my 20's, for constipation, but my Mother in law took it for Colitis in small amt of water.
I had 2 episodes of Blood this morning, none this afternoon, staying with 1 CC a day for now, if my symptoms disappear with 1 Great! If not I'll increase. I took it this morning and have a headache, but that went away after few days last time.

When I saw my GI Mon he asked if I had been constipated, as straining might cause the blood, I said I didn't think so, I had been twice that day & 3 day before, tho I do miss a day now & then. Had quite a bit of Blood that evening, read your posts on CC Herbal & decided to try it again. Tues I had more B & 1 BM. Apparently I was constipated without knowing it, cause yesterday was big time clean out day, did have spinach night before. Between headache & colon rumblings, was pretty rough day, was afraid I was going to Flare....but still took 1 CC, a nap & ate light. Feeling much better this morning, so maybe I'm over the hump with headaches & maybe CC will work for me this time!! Best of luck to all in 2014!!