pb4..........how was your c-scope???

and how are you doing today?

q

Thank you for asking Q and thank you as well hateuc.

I'm very tired, doing the best to type this ....apparently no inflammation was found but he's probably not crediting my naturals for that....

Confirmed rectovaginal fistula (2 actually but one isn't connected to anything whatever that means...I think it's a branch off the other one) but no abcess so he was happy about that. Wants me to try either remi or humira.

other findings he wrote and gave to me'\;

Impression 1) Severe anorectal fistula on MRI

This is very unfortunate because the disease has progressed substantially since she was last seen and counselled regarding her disease (in all fairness that time he only offered me Imuran which I told him I had tried and failed)
She will need to consider biologic thereampy--my concern is that if she contines to pursue natruropathic and or non-approved therapies that she will end up with an ostomy.

Pre-biologic work-up has been completed

Plan; RTC in 1-2 weeks to discuss options

Endoscope report;

Findings- The findings were...servere ulceration within the rectum and rectosigmoid with both deep and superficial ulcerations. Superficial ulcerations within the sigmoid.

The descending and transverse colon and views down the ascending colon were normal.

Ulcerations within the anal canal. The scope was the completely withdrawn.

Remember guys, I have crohn's colitis, don't let the word ulceration confuse anything, my DX has not changed, don't know why the term polyps wasn't used instead lol.

Tell me what you guys think...he tried to talk to me when I woke up but I was balling (which wasn't expected so it must have been pretty painful cuz I didn't ball last time with him) and I can't remember what all he said.

At least the scope is behind you. Try to pamper yourself & rest up this week as much as possible. Then you can organize Qs for your follow-up visit with a clearer head. Take care. / Old Hat (33 yrs with left-sided UC; presently in remission taking brandname Colazal)

Mine wrote an entire page.
I've blocked it out. Just going to take the Simponi. Maybe it will all go away!!!!!!!

Hey pb4 - I was reading your post and kept saying man, this girl sounds like she has my scope results - and I had/have a fistula as well but it seems to have closed up or be completely inactive. I was like it sounds like this girl has Crohns-Coltis.. then I got to the end, haha.

I just wanted to let you know that I had great success with Remicade when I used SCD and proper diet but I had to do both and once I did I went into clinical remission - BUT I still had IBS like symptoms and mucus and the odd urgency issue during that same time. I think in your case you really should try it. Especially with the fistula. I got two very good years out of Remicade. Are you going to try it or thinking about it?

Also I'm going to sound like a broken record on here but here is my results with a natural approach (WOO/Thyme Oil for Crohns-Colitis) www.healingwell.com/community/default.aspx?f=38&m=2970239

I forgot to mention on this post, that since starting this my Fistula seemed to have closed and become inactive. I have what they call a complex Fistula - so there are a few tracts. All of them seem to be fine and closed now.

I mention the above cause prior to trying this my only option was to try and re-start Remicade or try Humira. Neither of which I was looking forward to. It might be an alternative for you to try. I knew very fast (within a week) that it was making a difference because of the way my stool changed. That's why I stuck it out for so long. 4 months now.

Post Edited (Canada Mark) : 1/21/2014 3:21:11 PM (GMT-7)

Thanks Canada Mark,

I'm definitely going to try Remi or Humira, whichever my GI thinks is best (and just hope I'll be eligible to get it if hubby's insurance doesn't cover it)...Thank you for sharing your experiences with your similar to mine situation...I want this fistula(s) gone, GI was glad to share they weren't abscessing so hopefully that alone will help heal them quicker...I really don't see myself handling abscesses on top of everything else...I'll by a rope and hang myself before I let myself go through that lol.

Helped with symptoms. Still had urgency.

Hey pb4, maybe you mistyped but you said that "no inflammation" was found but the endoscope found severe ulcerations -- that is inflammation. Just wanted to call that out in case there's any confusion. You also were wondering what the hepatic flexure is -- that's the one of the "corners" of the colon, between the ascending and transverse colon (they call it hepatic because it's near the liver). I find it a little odd that they didn't scope all the way to the terminal ileum but sometimes doctors aren't able to advance the scope that far due to inflammation or just tricky anatomy.

yup, ulcerations = inflammation. I don't think you had polyps at all, they would say polyps if they were found.

Sorry to hear about the fistula troubles but I've heard nothing but good stuff about Remicade healing fistulae, hopefully if you choose to go that route it will work for you too!

Ulcers and polyps are two different things: polyps are outgrowths and ulcers are open sores. Polyps are usually harmless, but can occasionally turn cancerous.

Ulcers are the result of advanced inflammation, but inflammation itself is the body's healing response to injury, leading to redness, swelling, and heat in the injured tissues. In the case of inflammatory diseases, the inflammation becomes chronic and counterproductive, but that's another story.

Anyway, sorry about your results, pb4. Hope the Remicade works; I really would do anything to avoid having an ostomy, having one really does suck badly. I'm also slightly depressed to learn that fistulas are still a possibility for me - wretched disease.

diffuse = spread out, all over

Blergh. I hope whichever biologic you end up on works!

Thanks for the explanation (you guys are like walking dictionaries lol) I wonder why he didn't RX me some Cortifoam on the spot? I wonder why I'm not feeling tenesmus either, that's so strange to me, anytime in the past that I've had tenesmus I've had proctitis, I wonder what the heck is up with this.