fatigue weakness pain

Hey guys.....

Yesterday, monday, I ate lightly seasoned chicken breast all day and thats lretty much it. Ive been having fiber in my water for the last few days and having squiggle poops. I decided to eat just the chicken so i could try to have even more formed of stool and less poop stew.

Well last night I had horribly painful gas pains. And then Hell began around 4am. Explosive poop stew (mucous globs, random food from days ago, seasonings.) Explosive gas meaning can not lay down without running back to the toilet. No matter what position i lay in.

And i dont think its the chicken. And honestly I didnt eat much, like two breasts all day. And same brand and prep I've had before.

Im very pale, very fatigued. Super tired. Headache/migraine for last 3 days. I didnt get much sleep because of the bathroom trips... but now I've taken 2 different 3hr "naps" and am not refreshed. The gas grumbles have stopped. And all the explosiveness has already come out.

Waiting for a call back for initial appt from GI. So still no GI.

I feel like I could go back to bed. Sleeping has been great but I dont wake up feeling better. Nothing different with pills. No cough. No nausea. I do have a random cancker sore under my tongue, a psoriasis patch in my armpit, and zit like painful bumps on the inside of my thighs. And lots of acne on face and head.

I feel like this post is rambles and confusion. I just am so exhausted.

Maybe this has just been a long time coming? Just some crappy UC thing?

Haha, yep EXACTLY scarring the poor things for life ;)

I started losing weight again after having maintained for almost 2 weeks!
and the bentyl seem to be doing nothing for me :(

I think my body just gets used to meds and they stop working. Like my zoloft... im at max dose 18 months after starting it and I can tell its not working great anymore. Beh.

Its hard looking in the mirror and see a pale zitty face with deep circles under my barely open eyes. And its a polar vortex again so very very hard to keep warm today. Just feel bleh.

And scared that no foods are safe :(
Back to eating almost nothing again. That should save me some bathroom trips. Oh boy...

Up at 430am again. Headache still here. 2 trips to the bathroom within 20 mins. Pale skin.

Really hope I get a call back from that GIs office today.

My urine is clear so im not sure where this 4 day headache is coming from :(

I was up too! You really need to find a maintenance med that works. I hope you're able to get into the GI soon. It sounds like what you're doing is not cutting it at all. What are you going to try? Maybe something as simple as a new 5ASA would help? Maybe enemas?

Bentyl doesn't seem to do anything for me at all. I think AsacolHD would probably be beneficial considering the symptoms you describe. You should also consider Lialda if it's cheaper. With their copay assist, I get mine for $10 a month! Mesalamine enemas are good but I can't imagine retaining one right now. Steroid foam is good and easy to retain but the dose is pretty low. Does the bentyl help you? Do you have cramps if you take it? I do.

That's how I am. Anything makes me go so it's pointless to be all picky. I just eat very small portions and not often. Isn't there a GI you can see sooner than March? That's a very long wait when you're feeling crappy :( I have ordered mesalamine 1200mg generic from outside the US for reasonable cost. Have you looked into doing this?

I'm so sorry you are not feeling well Katie, but this disease is constant ups and downs so i do hope you'll get back to health quickly. Maybe you should stay in bed for several days not doing anything and take vsl double strength? You should definitely try eating small portions all day long - in Poland people who have a flare up usually eat apples (absolutely not raw but cooked in a little bit of water until soft) mixed with plain white rice. I keep my fingers crossed so that you are on a healthy track very soon!!!

Do you think coconut water would make us poop? I was thinking about giving it a try.

Oh my! You can't wait until march to see a GI! Did you tell them how horrible you're doing right now???? Can't they at least give you a prescription?? You poor thing!!!

Some places will allow you to provide a medicine bottle as a prescription. I would think your colazal bottle would probably suffice to get you whatever mesalamine you want. I don't know if this is the best idea for other people but it was necessary for me when I was uninsured.

I got some organic tomato and red pepper soup. It was actually yummy! And I have drinking water and watered down fruit juice.
I was going to have my homemade scd safe chicken broth... but as it was thawing my kitten got to it... gnawed it open and ate half of it. Literally chewed through the Tupperware lid... SOOOO sassy! Ugh.

I do have a prescription for pentasa... errr whatever I mean to say and spell correctly. They sent it in like 4 months ago but it was too expensive so I never filled it... do you think the pharmacy would still have it on file and fill it?

Im going to eat small meals through out today of soup and broth and pretzels.

Was up at 5am again. Were is this terrible gas coming from??? No matter how little or much I eat, I have these debilitating gas pains and super explosive poops. Like pure pain. How does so much air get in my guts suddenly ??

Aw man...I came looking to see how you were doing and am sad to see its not so good! Ugg! Hugs!