I have osteoporosis

quit taking tests and having scams ! screw em - just keep beasting

thanks lonnie. i can't stop crying. i try everything to get better for my UC and always get something else instead. just such bull.

i can only begin to imagine how you are feeling j - that is some effed up s**t !


i know, don't you get so pissed when you see people doing such dumbass things to their bodies and they just keep right on defying all logic and reason and living these pain/sick free lives !!!!

Post Edited (soystud) : 2/15/2014 7:56:09 PM (GMT-7)

sg, i've read so much about k2 in the phd book but haven't ordered any. i will pick some up tomorrow! i do use epsom salts and mag oil these days. i eat liver once a week- chicken or beef- and use butter daily.

lonnie, couldn't have said it better myelf, buddy.

katie, thanks for being there for me, girl!!! i dont know what i'd do without you!!

big question here- is there a way for me to purposefully induce my period?? when i was diagnosed with uc in 2011, it stopped. i got it once in sept 2013, but that's been all since then. im sure that has a devastating effect on my bones. i've never seen an endocrinologist but think i should get my hormones checked. i've never taken birth control pills either.

Sorry, that's really a tough blow. Fwiw, I bawled all afternoon when I was diagnosed and I'm old!

Keep eating right and keep exercising! I know doing those things didn't keep your bones totally safe from osteoporosis, but they will likely help you from suffering future problems. My mom's kind of a success. 30 years with osteoporosis (81 years old) and she is strong, upright, active and never had a broken bone.

I think one of your first things to do is to figure out what's going on with your monthly cycles. There may be further answers there.

Good luck!

Cry today then get up tomorrow and do something each day to help your bones recover. I'm a believer in getting better day by day.

StealthG had good advice and I'll chip in mine: look into using a mini-trampoline like this
www.sears.com/nordictrack-folding-mini-trampoline/p-00615315000P?sid=IDx01192011x000001&kpid=00615315000&kispla=00615315000P

I've read studies that gentle bounce exercise can build bone strength. Bob Hope (so I read) carried one around with him to use in hotel rooms while on the road. Just using it 10-20 minutes a day makes your bones denser. Watch TV while bouncing

I have heavy bones (genetically) and have always weighed about 10 pounds more than most people my size but even I worried that UC was hurting my bones. I try to walk for 1 to 1.5 hours a couple times a week.

Good luck. You have many years to add bone density. Stay away from calcium supps as StealthG said.

Here's an article about bouncing from 2009. Skip to the bottom to get there fast
well.blogs.nytimes.com/2009/11/11/phys-ed-the-best-exercises-for-healthy-bones/?_php=true&_type=blogs&_r=0

Post Edited (imagardener2) : 2/16/2014 7:56:04 AM (GMT-7)

So sorry to hear this, Joanna. Rebuilding bones can be a really difficult thing, but you're doing everything you can. Bone-building medications are available, but I'd say use these with caution. I was on Fosamax for a while, but of course got a bone cyst in my lower jaw. I was lucky that it was caught and treated early with a bone graft, but some people have lost huge parts of their jaws. On the other hand, thousands of people have been helped. I guess everything in life is sort of a crap shoot, eh?

What the heck.... you can't seem to catch a break.. grrrr

I remember talking to the nurse the last year when I had my bone scan - she said it's amazing the difference that can be seen visually between kids who exercise and have access to good diet and nutrition and those that don't.

What we talked about was how it was sad that less fortunate kids who's parents could not afford to sports/exercise equipment or decent food are the one's that suffered the worst damage from a loss in bone density from pred. We talked about how awesome it would be to set up some sort of fund for these kids so they could access exercise or get to it and so on.

In any case she had mentioned seeing improvements after being away from pred for some time. So perhaps things will take a turn for the better in a little while and just keep up with the exercise and good diet.

you guys made me feel so much better!! i am going to be positive and try to fix it as much as i can. no sense in crying about it- just need to be proactive!

i ordered a 6 month supply of algaecal and strontium supplements. it has k2 in it, too. it's $300 but i figure i need it and my bones are worth it.

i also want to find a rebounder so i can jump on it for a little every day. i usually don't do jumping movements on the floor because my neuropathy and knees are bad. it just aggravates it too much- same with running. i prefer walking.

ive been reading about ways to "force" my period to start. different herbs, fertility massages, and estrogen therapy. i honestly never cared that i didn't get a period because i was bleeding so much from the UC. i was like "hey, at least i'm not getting a period, too. then i'd need more blood transfusions and iron infusions." but then there's the side effects from not having a period and i didn't realize how important it was for me to have one. this will be the first time i am actually looking forward to getting it. i'm still a little underweight for my height (107 lbs now and 5'5") but it's way better than my previous 84 pounds.

"I often think somebody just messed up and I got a wrong diagnosis."


unfortunately, if you got that from a person in the medical field, probably a good chance you are right -

I WAS able to REVERSE mine. Age 37, dx with osteoporosis in my spine due to prednisone therapy, and was told had the spine of a 50 year old. Taking calcium CITRATE (not carbonate- that form is not very absorbable) and lifting weights and walking/hiking, at age 40 I then had the back of a 40 year old. My doc said I have to keep this up and I do. One other note, the scores are RELATIVE meaning that you are compared to a group of individuals in your age range and then given a Z score compared against that group. One problem with this is that the group for young people is very small so there isn't good data. Every year since age 40 I have been able to increase my score so now I have a spine like someone younger than my real age. Of course, I have not been taking prednisone! The other thing I would urge you to do is to make an eye exam and see if your ocular pressure is high, as prednisone can cause an increase in that.

Sorry to hear this. I was diagnosed with it this year, in the midst of my colectemy and j pouch construction. Because I don't have a "proper" digestive system anymore, I can't take any of the pills. They put me on Prolia, which is a 2x a year injection, totally painless. It is said to increase bone mass. Recently had my first shot, so we'll see. I've had 2 bad bone breaks (a foot, and a horribly shattered arm that has left me with permanent disabilities) as a result - darn prednisone! What an awful, evil drug.