MAP and goat herders IBD-India

Radom find.

Old Mike

http://www.ncbi.nlm.nih.gov/pubmed/21703899

Are there any mainstream physicians going this route at say Mayo or other big name hospitals like Chicago?

Hey T,

MAP is apparently extremely difficult to detect. Professor John Herman Taylor in the UK claims to have developed a test that will detect MAP in CD patients and that he is very close to a vaccine. He claims that 100% of people who have CD are are infected with MAP and that he believes it is causing the intestinal inflammation.

Here's his daughter's story who is trying to help him raise 100,000 pounds for the research team at King's College.

www.justgiving.com/Run-For-Crohns-Men3936

Like you, it's been a while since I really looked into this heavily. I do know Red Hill Biopharma's new drug had an amazing remission percentage-80% in a very small study. I think they are setting up a phase III study now. I wonder what the relationship is with MAP and UC. My CD tends to be more UC-like so I don't know if anti-MAP antibiotics would be effective for me. Plus, it seems a lot of the small bowel inflammation could be cause by the AIEC bacteria if you're looking for bacteria cause, so maybe MAP could be prevelent in UCers too, i dunno.

www.redhillbio.com/product-pipeline/rhb-104/

www.rttnews.com/2202591/redhill-s-rhb-104-combination-shows-80-remission-in-pediatric-crohn-s-study.aspx

I have to post yet on my WOO/Thyme thread but I keep forgetting to mention I take cinnamon oil along with WOO/Thyme. I make my own capsules with a mix of stuff. Been doing so for about 6 months now.

After 12 years of constant symptoms and even IBS while in clinical remission on Remicade, I think I am symptom free... I poop better than before I was ever sick.

I don't know what else to say other than it's as if.. well.. I don't have the disease. 1-2 perfect poops a day for a few weeks now.

12 years I lost to this ****ing disease..

Hey Thoreau - yes I just looked and they are "00" gel caps if that means anything to you or double zero. So I just fill it full - half woo/thyme half cinnamon oil. SO about 10 drops of each fills it. I take one cap 3x daily along with reuteri, kefir milk and renew Life 100 Billion at night. Also I take 150mg Immuran daily along with it. It was part of my plan.

So I have stuck with this every single day for 6 months now. It took up until a few weeks ago to really make a huge difference.

But perfect poop and I think (though I don't try often) that it doesn't matter what I eat anymore. I'm used to eating CSD/Paleo type food. Though yesterday I had the following to test things out:

2 sausage and egg McMuffin's, 2 Hash Browns for breakfast
Protein shake for lunch
Hard boiled egg and fruit for snack
A restaurant cooked hamburg, french fries with all the toppings, and even a loaf of Brushetta Bread with pesto.

Normally this would kill me... specially all the bread.

Today - perfect poop this morning though a bit of a headache haha.

Yeah - maybe customs did!

I was all over the map for a while... increased frequency, loose stool, sometimes good stool, gas. odd feelings etc etc etc.. I don't know why other than I was out of options, but I just stuck with it. As mentioned it was not an overnight thing in any way. Blood went away overnight, and most mucus, but things were wonky for many months after that till finally settling down recently.

Also don't overlook the "Immuran" aspect of it... I feel this was very important. And contributed greatly.

EDIT: Single zero "0" caps... NOT double zero

The cinnamon oil I just get whatever is on the shelf, haha... I can't find "food grade", but have an order coming soon. WOO/Thyme: Health First, Orega-Supreme Oil. Medicinal Ingredients:Each drop contains: Mediterranean Oregano* aerial parts oil (Origanum vulgare) 20% w/w (6.0 mg per drop) Providing 80% Carvacrol Thyme* (Thymus vulgaris) leaf and flowering top 13% w/w (3.9 mg/drop of a 55:1 extract)
(214.5 mg crude thyme) Providing 63% Carvacrol

But I haven't seen anyone with UC have success with this - again I have Crohn's-Coltis so may be a different ball game.

Also two things: again, the importance of Imuran added to this in my opinion. Actually I feel it's very important. And most importantly I did this WITH my GI's permission and have blood tests regularly to ensure that nothing is wrong liver wise. This I feel is very very important... to do this with your GI. I wouldn't want to see anyone hurt by trying it for some weird reaction or side effect or whatever. So I honestly don't suggest or even want anyone try it without talking to your GI first. To me that's number one important.

And yeah, I take them daily without break... it's actually hard to stick to it for so long. Hence the GI involvement, for so long.

I don't know if I'm disease free, but I sure am symptom free. I'm excited to go in and see my GI on April 2'nd... If it hold's till then he's going to have the funniest look on his face. The real test will be dropping Imuran, or the oils, or both. I haven't decided how to approach this yet.

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And finally I really don't want to hijack OM's post here! But do make sure to search and read his older MAP posts, it's quite interesting. He has a really good one but I can't quite find it at the moment. Lot's of intriguing info though.