I have to use a mesalamine enema nightly or in a 3 to 4 days my symptoms return. I had recently dropped to 1/2 a bottle a night instead of a whole bottle and was doing fine then tried to go on half a bottle every other night and symptoms returned in 4 days. I then had to use a whole bottle a couple nights again to get back to where I was and now tonight will be back on half bottle a night from here out. I also had tried asacol hd 800 for 2 years and it never helped me. I am now taking Colazal 3x3 and it also doesn't seem to matter either. What does matter is if I don't take rectal meds. I am also considering getting a smaller dose of the enema because I seem fine on the half bottle and it should be easier and expect it to be half the price.
I defiantly have to use rectal meds nightly or I get in trouble. I am wondering if I even need the orals or are they just insurance for the rest of my colon? I have to admit the Colazal is much much less out of pocket than the asacol but was hoping that taking it 3 times a day instead of twice a day would help me more and not have to do the enemas. But this is not the case. Bottom line is I have to use rectal enemas.
I have been keeping a food log for over a year now and food doesn't influence the above whatsoever. I tried no carbs no sugar and basically paleo with no effect. I have always stayed away from sugar most of my life anyways. I try eating really healthy for a ling time and it doesn't matter at all. I cant seem to gain weight but am going to start to eat more carbs again and hope I can get some back. I use the Generic Perrigo enema and it works well for me as long as I do it regularly. I have also tried many supplements and take probiotics daily but either don't seem to matter. I have used probiotics and have stopped and no difference at all. I only take them for peace of mind really. I want to find a supplement or something that will help me out a bit but cant seem to find anything that makes a difference. I even tried psyllium seed fiber and no change.
I am considering trying aloe juice again daily. Not sure if I want to try it as an enema but will surely start drinking it daily. I can get it at CVS for 10 bucks a gallon. It is good stuff and they use the inner part which contains no Aolin or the outer part of the plant.
Is it reasonable to ask my doc if I need to take the orals? I am going to see about the smaller size enema next visit to my doc at end of month.
Post Edited (twiggs) : 2/10/2014 7:07:22 AM (GMT-7)