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Why do I feel so awful??

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Ulcerative Colitis
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Posted 5/9/2014 5:34 PM (GMT 0)
I'm 2 weeks post hospitalization and my bowel is doing much better. Down to 2-4 poops, sometimes m, no b. But I'm exhausted. Having a shower is draining, folding laundry or doing minor chores is a challenge. I can't wait until 9 pm so I can go to bed and I don't get up before 11am. I'm so weak, slouched over and need to lay down all the time. I also seem to have daily headaches. I thought since my bowel was getting better, I would feel more energetic and like my old self, ready to zumba and climb mountains again, but I can't even walk my dog.

Any ideas as to what's going on?
Posted 5/9/2014 5:47 PM (GMT 0)
Fatigue is a common symptom of uc. You're healing so a lot of it should go away if you give it time. Despite uc, I climb mountains, kayak, ski, and I'm generally a pretty active person.
Posted 5/9/2014 6:22 PM (GMT 0)
While it may be a normal thing with UC, you're still healing from a very serious flare and you're on big-gun meds that could also contribute to the fatigue.

I would suggest you call your doctor and tell him that you're totally wiped and have absolutely NO energy to even function. he should, at the very least, do basic testing to find out possible whys.

Are you eating enough during the day?

Enough fluids? (not meaning excessive)

What supplements do you take?

etc...
q
Posted 5/9/2014 6:23 PM (GMT 0)
Give your self sometime you have been through a lot. Your body is telling you to rest don't worry about it. I'm sure if you give it what it needs your energy will come back. As for the headaches I get those when I sleep too long.

Maybe, have a nap during the day and don't sleep more than 10 hours at night. I find that when I don't move for too long my neck and back muscles get stif and I get headaches.
Posted 5/9/2014 8:39 PM (GMT 0)
Hi Ladies: I truly am barely functioning. I feel just awful. I go for blood work on Monday. I'm worried because my next IVIG is the next 2 Fridays and if I'm already feeling wiped I'm not sure how I'm going to handle it.
Mornings are the worst. It's not that I'm sleeping all that time, I just can't get out of bed. Wondering if the headaches are the increased Pentasa? Tylenol is not touching them.

I'm eating a bit, actually hungry. Smoothie in the morning, chicken, rice, salmon. I've actually broke with gluten free and had a couple of grilled cheese sandwiches. I figured why not and my resistance to stick to a diet is limited right now.

I'm not taking any supplements. Not sure what to take at this point. Any suggestions re: energy wise?
Posted 5/9/2014 8:57 PM (GMT 0)
I'm glad your getting bloodwork done. Your Vitamin D is could be low as well as your iron if you had been having a lot of bleeding. Both of those being low can make you very tired.
Posted 5/9/2014 9:06 PM (GMT 0)
it could be an IVIG side effect. hopefully it will pass.
Posted 5/9/2014 9:08 PM (GMT 0)
Were you anemic while in the hospital? I know even being low but not low enough for a blood transfusion still makes me very tired.
You may want to try supplementing with Vitamin D3... and B vitamins help with energy. I still take them some days when I just cant function. Iron can be hard on the tummy, but if you can try to eat more iron rich foods, that might help.

Major fatigue can definitely be your body still fighting very hard to try to get your bowels right. You faced some pretty crappy situations over the last month + and your body will need time to recover.
Honestly, for 2 months I let my body do whatever it wanted. Besides going to work. I slept whenever it wanted. I ate whatever, whenever it wanted. I tried to not sleep for more than 10 hours at once. which, with bathroom trips wasnt hard. But made sure I got some sunlight and fresh air before allowing myself to nap.

I spent A LOT of time napping. Heck... today I had to nap cuz I am starting to feel cruddy again.
Napping is amazing.. when your body needs it.

Good luck and keep up the good work fighting this dumb disease!!
Posted 5/9/2014 9:12 PM (GMT 0)
In fact two weeks after the hospital is really not much, i think you should give yourself more time for convalescence, without unnecessary worrying, sometimes it takes months to regain full strength. Don't require too much from yourself and focus on stress free slow life and things will smooth up on their own, i wish you all the best!
Posted 5/9/2014 10:38 PM (GMT 0)
When I think about everything you went thru while in the hospital before they started helping you, I would guess you need a lot more time to recover. Have you went back and read that thread? It might be interesting to you to read it now.
:)
Posted 5/9/2014 10:46 PM (GMT 0)
https://www.healingwell.com/community/default.aspx?f=38&m=3046056

If you want to read it. Only you know if it's a good idea right now or not.
Posted 5/9/2014 11:02 PM (GMT 0)
I could have written your post exactly. I feel that way every single day. It's so draining. I don't know why I am this way but I can't blame it on a hospital stay... I am just fatigued all the time. I wish I had an answer for you. Do you drink coffee? It helps me a little.
Posted 5/9/2014 11:08 PM (GMT 0)
what parasite did you have when you were 16?
Posted 5/9/2014 11:19 PM (GMT 0)
I have no solutions, but I'm sorry your still suffering. Worth mentioning to your dr.
Posted 5/9/2014 11:33 PM (GMT 0)
about your headaches Tylenol can give you rebound headaches if taken regularly. I now have codeine for these so I end up having less headaches and taking less medication then when I took Tylenol to manage my headaches. But then again codeine required an RX.
Posted 5/10/2014 2:03 PM (GMT 0)
Maybe it's the LDN?
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