Posted 7/6/2014 2:03 AM (GMT 0)
Last October I was diagnosed with ulcerative colitis (pancolitis) and c-difficile. For 4 months the GI tried all of the usual medicines and nothing worked. The urgency was horrible I was actually having ‘accidents’ on the way to work and would have to come home! In February I started Remicade and within two months complete remission! Then came May, I developed a terrible cough, sinus infection and joint pain that prevented me from getting out of bed. Like many of you know this crazy pain starts in the elbow, moves to the wrist, the knee, then neck etc. It will last a few days and then all is quiet for a day or two and then it is back! Sore throat, just felt like I had the flu. Saw the GI who said this was peripheral arthritis but sent me to the Rheumatologist who said she felt this was psoriatic arthritis. Rheumatologist ordered lab work which showed an homogeneous ANA 1:1280 and that I had developed antibodies to the Remicade. At this point I felt I had drug induced lupus and while each doctor says it is ‘possible’ the GI feels 100% it is the colitis manifesting in the joints and that I need to start on Humira or Cimzia right away. As we all know these biologics have the potential for some ugly side effects and since I am not having any GI issues I am hesitant about starting another biologic. The Rheumatologist put me on a 7 day course of prednisone which helped to clear the cough but did not do much for the joint pain. At this point I feel like I should wait it out since I had to stop the Remicade and see if my GI symptoms come back before taking the Humira or Cimzia which is not what my GI feels I should do. Can any of you tell me if you have experienced a similar scenario and how you handled it? This site has been a life link for me. While my husband and friends are supportive I think it’s only those that deals with this truly understand. Thank you!!!
Current: Lialda, Fish oil, Vitamin B,C,D, Biotin, Selenium, Zinc