HealingWell
Search Close Search
☰

My UC is constantly on my mind

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/7/2014 5:59 PM (GMT 0)
I can't stop thinking about my UC. I started a flare in December after a colonoscopy. Before that I was in remission for about years. I will wake up in the morning and see how I am feeling and then every time I eat something I am waiting for the other shoe to drop- so to speak.. does anyone else feel this way. I am also on the fence about starting Humira and constantly go back in forth in my mind about whether or not it is a good idea. I REALLY want to get off all of the steroids ( currently on Uceris every other and .5 Pred taper , VSL3 and Florastor). I am having about 2 BMs a day but earlier in the week I started with bloating and pain/cramping in my lower abdomen so I have no idea what is going on. I rarely post because I always think that there are people sicker than me. Blah
Posted 7/7/2014 6:04 PM (GMT 0)
Try not to belittle yourself by comparison. We all have different symptoms at any given time. Some are worse, some never heal, some have surgery, some do very well.
We're all worthy of posting....

It could be that your symptoms at this point are that you're healing. As the area of inflammation gets more limited in the rectum, you could have more bloating and cramping.

Are you using the rectal meds at this point?

As well, as you taper the pred, your symptoms may regress.

When do you get the cramping and when do you take the probiotics....

We all worry about flares and probably most symptoms when something is out of the ordinary. We know what could come of them....I think that's a normal part of having any illness.

q
Posted 7/7/2014 6:18 PM (GMT 0)
Hi Quincy-
Thanks for responding. I don't know how to change my signature ( I went into profile) and it is incorrect. I use the rectal meds on an " as needed" basis. I am going to call today to get some more mesalamine enemas. I always go for the quick fix and go directly to the hydrocortisones but as I stated earlier I am trying to get off the steroids. I feel like the only reason I am ok is because I have been on the steroids and I occasionally feel a full ness and squeezing type sensation. I am worried when I go off completely it will be game over -again. I REALLy do not want to take the Biologics at all but I do want to feel better. It seems as if its a toss up as to whether or not they really work.
Posted 7/7/2014 6:36 PM (GMT 0)
I think when you go off the steroids you will stop thinking about it I think I kept thinking about it too.
Posted 7/7/2014 6:39 PM (GMT 0)
But when it went away and there were no steroids I stopped thinking about it maybe the same with you. It's ok.
✚ New Topic ✚ Reply