Pain/discomfort during clinical remission

Hello everyone,

Hope all you are doing good.
Some things are on mi mind for a while regarding pain/discomfort during clinical remission.
My GI stated my UC „in remission with mild UP“ . I‘m on Salofalk 1 g. suppositories every second day. As I‘m scared to death of a possible flare, I take Salofalk 60 ml enema for night once a week.
Comparing with how I felt before diagnosis and now it’s like day avs night, but there are thing that bathers me.
After I wake up I have this sensation of very mild pain/tenderness/ heaviness in my lower abdomen and all this go away with my bowel movement after breakfast (I have 1 bowel movement in the morning after I drink my coffee (after breakfast) and it is soft not fully formed because eat a lot of green or fried vegetables and fruits.)
I search a lot and this looks more like IBS than UC.
Also I have some very mild pain when I press my abdomen (mostly in left side) and it „walk“ from place to place in my abdomen.
So do these „thing“ can be from UC? I know everybody are different but still...

I have mild proctitis, but my GI says I‘m in remission. I also do not thing this is remission but he says I am and should be ok with suppositories. As I have no other symptoms (mucus, blood, urgency, diarrhea) he refused to put me on oral salofalk saying it wound do much good cause inflammation is at the end of my rectum. I‘m ok with that but this mild pain/tenderness/ heaviness still persists and I do not understand how come if my gut is „without any signs of inflammation“.

I eat a lot of vegetables and fruits because I‘m afraid to constipate, and it happens almost immediately if change something in my eating habits (adding bread or pork for example). Constipation is nightmare, I prefer to have softer BM once a day than hard with pain and bloating and discomfort and hemorrhoids and fissures once a week.
Sorry for my expressions, English is my 3 language and sometimes it’s not that easy to make expressions right.


p.s. coffe makes only one change - if I take it, I go to restroom almost immediately,if i I don't I go after an hour after breakfast, so not a big difference.

I agree he sound stupid, but there is nothing I can do only to follow the prescription. I would also prefer enemas, I feel they do better job than suppositories, but without GI approval even my family doc cant prescribe them to me. Still have some left from prior prescription but save them and try to live with suppositories and... google...I think I'm doing quite good so far with UP but going crazy trying to avoid anything that could make me flare.
I'm tring to know all the sensations in my body and what can be the cause of them in order to prevent myself from flare.

What vitamin D has to do with pain/tenderness/ heaviness? I do not know if mi GI tested me for that, thou he did some blood tests (do not know what he looked for) but said everything is ok.

Your Drs not an idiot for saying that your ulcerative COL-itis is in remission but your PROCT-itis isn't.

As in the Colon is in clear(Ulcerative Colitis)
The rectum is not(Ulcerative Proctitis)

Your Dr is simply speaking in smart technicalities, and in this manner, he is correct.

Never said they were different diseases, just different manifestations of the same disease.

Think of it this way; let's say I have chrons, which is manifesting both as inflammation in my rectun and esophagus, but through treatment,
the inflammation in my esophagus is remitted, it would then be accurate to say that the disease is remitted(remission) in my throat but still active in my rectum, would it not?

What I'm wondering is how can somebody have active Colitis when their colon is healthy?

CDN26, let's be clear. There is a disease called Ulcerative Colitis, which affects the colon. The rectum is part of the colon (it is the very end of the colon).

The condition of inflammation in the colon is called colitis (small "c"). You can have colitis due to UC, Crohn's, infection, ischemic stroke, etc.

The OP no longer has colitis (small "c") but she still has UC, and it is actively affecting her rectum, perhaps a part of her sigmoid colon.

I wasn't there when her GI told her that her colitis was in remission. Perhaps he meant the small c kind, but what the OP heard was that her UC was in remission, except for her rectum. I can understand how this is confusing to the OP and to many other people. I regret that the OP's GI failed to accurately communicate his meaning. Meanwhile the OP is wondering why she doesn't feel well when she's supposed to be "in remission."

Proctitis is a ***** to get rid of. It can take a really long time. I think I used rectal meds for years before I was clear of inflammation there. And proctitis can make you legitimately miserable, with urgency, and gas, and sometimes even upper GI problems. OP, your GI should take your complaints seriously.