Some of you know from my past posts that I am in remission except when I start my periods. From a week before I start to about
a few days after I end, I have mini Uc flares. Last month I flared so badly that I thought I was going to have to have the hubby take me in to the ER because I was bleeding so heavily Uc wise. The next morning things were sort of ok again. Scared me though! I know now that my mini flares are hormone related. Last April my primary put me on progesterone to help regulate my cycles. I was having some pretty odd cycles such as spotting for 3 days and bleed heavily for 1 then nothing or bleeding super heavy for 6 days etc all of which were accompanied by red hot searing cramping pain. This pain and my Uc symptoms increased too when I started progesterone so I mentioned this to my GI. He said he wanted me to stop the progesterone immediately because women with Uc have a higher chance of blood clots in the legs and add any hormone and it doubles the chance. Now my primary says that is not the case, that it's the estrogen that increases that risk not progesterone - yeah, talk about
being confused! My docs seem to be at odds with each other. But in either event, I just can't be on any form of hormone because it increases my Uc symptoms immensely. And no I can't even take b/c's because it gives me horrible terrible migraines and yes again it aggravates my Uc.
So here is where I need opinions. I know that surgery is my own personal decision and only I will truly know what I should do but it's nice to put things in perspective by others. I went into my primary today and she said honestly she doesn't know what else to do with me since obviously my hormones are out of whack and she can't prescribe me anything in fear of it making my Uc worse. So she referred me out to a GYN to talk to him about having my ovaries removed or taking some shot that will make my ovaries dormant. Oh and I also have a history of ovarian cysts. So what would you do? Would you go ahead and have your ovaries removed knowing that if you do that you would be unable to take any sort of HRT (I would have to be on calcium supplements to prevent osteo) and be put into an early menopause in order for you to keep your Uc from flaring for a week and a half every single month?? Or would you suffer threw a week and a half of hell every month to keep your ovaries?? Oh and I'm done having kids so this isn't an issue for me.
I have never had any sort of surgery as this and truthfully I'm sort of uncertain as to what I should do. Any advice, comments, opinions would be greatly appreciated. Thanks! And sorry for the long post!