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Posted 9/14/2014 12:51 PM (GMT 0)
Hi I'm new to the site. I'm 51, diagnosed with Proctitis colitis June
of 2013. I don't have diarrhea but chronic constipation. I use
Salofalk enemas and can't seem to get off them longer than four
week with out constipation coming back, falls urges with bleeding
for most of the day. My Dr. tells me to eat more fiber, but I thought that people with UC can't eat wheat. Can this be causing my problems,
I feel fine when I eat regular bread. Is everyone wheat sensitive?

Soooo frustrated Moe

Post Edited (Prep girl) : 9/14/2014 6:59:38 AM (GMT-6)

Posted 9/14/2014 1:30 PM (GMT 0)
you can and should use some kind of fiber supplement to keep your symptom working. I use starwest botanticals organic psyillum seed powder two teaspoons twice per day at the moment.

Start small though to build up like maybe take a two metamucil pills a day after a meal.

I recently started the psyillum seed powder because I read on here that the seed powder is a little more gentler on your system. the metamucil pills are psyllium seed husk.

hope you feel better soon.
Posted 9/14/2014 2:30 PM (GMT 0)
Thanks Carol I tried Metamucil in powder form didn't drink enough
water and the results were horrible. How do you get the
psyllium husk to dissolve?
Posted 9/14/2014 3:45 PM (GMT 0)
psyllium seed powder dissolves in water if you can get that and not husk that would be better. Take a teaspoon to start and drink an entire glass of water afterwards if not more.

If you take the metamucil pills drink a full glass of water afterwards and usually after a meal.

I never used the metamucil powder but others have.
Posted 9/14/2014 3:52 PM (GMT 0)
btw prep girl you were the same age as me when I was diagnosed with ulcerative proctitis.
Posted 9/14/2014 11:50 PM (GMT 0)
Thanks for your advise I'll look for the seeds, not the husk.
Being still new at this have you found your colitis has gotten worse
over the years at all. My Dr. tells me Proctitis rarely gets worse if
managed. If only he was available more when I need him.
Posted 9/15/2014 12:14 AM (GMT 0)
The problem is managing it. I was on asacol when I was first diagnosed and it did good for me, then they discontinued it and had to try a new oral medicine asacol hd which did nothing for me and my proctitis did advance about 3 inches more since I first got it which is 3 1/2 years ago. Which I suppose is not bad considering, but I am very concerned that it will get worse or go further so I do try to keep on top of the flares with mesalamine enemas and now I am on balsalazide.

I do know what you mean about the doctors not being available when you need them or that you feel that you are bothering them to much. My doctor always says its down low and he even said to me that it hasn't gotten worse since I was diagnosed, but I say yes it did it went up 3 inches more, I don't know if he considers this not getting worse.

He called it ulcerative proctitis when I was diagnosed but it was 20 cm which is 9 inches of my colon not sure if that is considered proctitis but now it is 30 cm which is about 12 inches. Had my last sigmoidoscopy in February of this year.

I am currently having a flare and am doing hydrocortisone enemas nightly, which helped get me out of my last flare (fingers crossed it will work again).

I hope you feel better soon.
Posted 9/15/2014 9:53 AM (GMT 0)

Prep girl said...
but I thought that people with UC can't eat wheat. Can this be causing my problems,
I feel fine when I eat regular bread. Is everyone wheat sensitive?

Soooo frustrated Moe

Don't know where that came from but not true. Proper nutrition is important since it fuels us day in day out, but for a lot it doesn't change anything with UC. I wouldn't bother eating a piece of bread to help with constipation though. I have never been lucky to change something small and it work though. Metamucil pills did nothing, fibercon did nothing, clear fiber coolaid stuff did nothing. I would like to try the seed eventually but you can also take the husk but it's not pleasant to drink. It's more pleasant than being constipated I would think though.
Posted 9/15/2014 9:05 PM (GMT 0)
Sounds like my Dr. His attitude is, don't bother worrying about
it until you start filling the toilet with blood. Nice eh!!
Posted 9/16/2014 1:59 AM (GMT 0)
I have issues with constipation. Psylllium didn't work well for me. Horrible gas. Miralax is my go to of choice. I add it to a cup of tea. I also eat lots of olive oil with things like artichokes. Some people can't do the artichokes, of course.

I eat all sorts of things people with UC aren't supposed to be able to eat. For example, I can still eat salads. I need salads, actually. I can't add things like broccoli and cauliflower, but I can have things like snap peas, cucumbers, mushrooms, radishes and carrots. I eat wheat. In fact, the gluten free stuff tends to give me more trouble than straight up wheat in terms of stomach pain and gas. Who knows why.

It's hard to figure out what to eat. As is said many times here, we are all different. I learn by trail and error. For example, onions and garlic are horrible for me.

My husband tries to help me by making all of these special foods from complicated diets. In truth, I do so much better with things like omelets, ground beet (burgers/meatballs), baked potatoes, macaroni & cheese and the like. That's why I'm glad I can eat the salads for some element of health.

I hope you figure out what works well for you. By the way, I definitely need my Asacol to keep things moving.
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