Posted 10/29/2014 5:24 AM (GMT 0)
Hey garette, sorry to hear about your situation and hope you are on the road to improvement. I actually have a really similar timeline! I (luckily) had my first/major flare shortly after graduation but was really sick all summer until beginning Remicade, also in August 2013. Wish I had began Remicade sooner actually, I needed it! This year I had no issues with Remicade also up until very recently; I just got out of the hospital from re-flaring and am trying to figure out how to move forward too. I am on mesalamines and Remicade, but not Imuran yet. When in the hospital they put me on Uceris, which is like prednisone, but is targeted towards the gut and thus has less side effects. However, prednisone I think is a little stronger. Like has been mentioned, your doctors may see if prednisone/Uceris can help make your symptoms feel better while you try new treatments and get stronger. They aren't a long-term solution but like was previously said may help you feel a little bit better. The Uceris I think is helping me feel a bit better during this time. Although I know steroids don't always work in everyone.
You mentioned that you have a high fever; I'm assuming you've seen your doctor at the major hospital and are possibly admitted by now due to the fever and being on Remicade/Imuran (please keep us posted). If so, I know it sucks to have to spend time in the hospital, and I really feel for you having just gotten out myself, but I always reminded myself that it's probably the best place to be when you're not feeling so well. They can give you good meds for your pain, make sure you're hydrated, check you for infections, and the doctors see you every day so that you can figure out a solution faster. If Remicade isn't doing its job, they can figure out if you have developed antibodies (done by the Prometheus test) or if you need an earlier "booster" infusion. If it's determined that Remicade just stopped working, and you seem to be worse off, then the doctors will probably suggest some of the other "biologics" mentioned above. There are anti-TNFs, which work the same way as Remicade (Humira, Simponi, Cimzia) and there's the new one Entyvio, which works with a different mechanism.
The best advice was given in the previous posts about taking this time for yourself and your health. You sound like a hard worker and it will pay off when the time is due; right now you def deserve to take a breath! A really great nurse I had who also had UC actually had to take time off too in college to fix her UC and then get back to it - but she finished and seemed to be doing great! Wishing you a swift recovery.