HealingWell
Search Close Search
☰

Remicade question for your sunday!

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/9/2014 6:11 PM (GMT 0)
Hello, all!

I've been on Remicade since May and I'm about to go in for my 6th infusion on Tuesday. I started seeing a small bit of blood yesterday and today it is definitely there. My question for you all on Remicade is: Is seeing blood common for you when you're almost to your infusion date? And how long after the infusion does it take to get things back under control? I feel like I'm still fairly new to Remicade and I'm still trying to figure it out!

Thanks a bunch, you all rock!
Posted 11/10/2014 2:21 AM (GMT 0)
Hey there, sorry nobody replied to you all afternoon.

I've been on Remi since January 2012. I'm stopping taking it, at least for one infusion, for issues with a side-effect. However, I've definitely had enough experience with it to lend a word or two to you.

I've seen blood before while on Remi during the normal 8 week cycle. There wasn't a lot, but I remember it. It happened either once or twice. Personally, I usually did just fine up to and past the next infusion date. One time though I delayed the infusion for one week due to this side-effect issue and I flared intensely, will blood and all, within about 5 days.

As far as your situation goes, I wouldn't be concerned right now. It is worth mentioning to your GI doctor, but I think you'll be just fine. I remember one of the times I was seeing just a little blood and thought it was curious because I was on Remicade (had been for a while at that point), but it soon went away and I was fine. I think stress or exhaustion may have played a role in that incident.

For what it's worth, right now I'm 19-20 days past when I was supposed to get my infusion of Remicade, and I'm not seeing blood yet. It's a very unpredictable thing, haha.

Please ask more questions if you'd like and if I'm able to be on again I will try to answer (been very busy lately).

Good luck!
Posted 11/10/2014 2:31 AM (GMT 0)
It is possible to have a small return in symptoms just before your next remicade infusion. Keep an eye on it and keep your GI informed. At this point, nothing to worry about he/she will say be mindful of this before your next infusion. It could be a sign that you may eventually need remicade more frequently, that remi is running out before the next scheduled dosage. Tests can be run, anserifx is a blood test by Prometheus labs that can check the levels of remi within your blood a few days prior to your next infusion. Some build up antibodies to remicade over time, and that test checks for those antibodies within your blood.
Posted 11/10/2014 2:34 AM (GMT 0)
hey, I was busy all day, avoiding blood - bloodSHED that is - mine !

besides t-man, I knew you'd handle it = you're in good hands Co guy :-)
Posted 11/11/2014 3:06 AM (GMT 0)
Thank you all for the response! There wasn't any blood today so it may have been a fluke. I'll see how it goes tomorrow!
✚ New Topic ✚ Reply