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53rd infusion

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Ulcerative Colitis
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Posted 11/19/2014 9:16 PM (GMT 0)
I was diagnosed 13 years ago today. I had my 53rd Remicade infusion today. Not anniversaries I ever thought I'd see, but life doesn't always work out as we planned. At least I'm in remission and feeling good colon-wise.
Posted 11/19/2014 10:14 PM (GMT 0)
So happy it is still working so well for you. I hope it continues for many years to come.
Posted 11/19/2014 10:34 PM (GMT 0)
Nice to hear a success story for long term Remicade. I'm a Remi newbie and this gives me hope.

Thank you and glad you are doing well :)
Posted 11/20/2014 1:03 AM (GMT 0)
it is nice to hear someone doing well... Good For You... it gives us hope
Posted 11/20/2014 1:11 AM (GMT 0)
Happy anniversary
Posted 11/20/2014 1:17 AM (GMT 0)
it's not an anniversary but a means to let you enjoy other many future anniversaries in your life. I'm happy you're feeling well and it must remain like that :)
Posted 11/20/2014 1:21 AM (GMT 0)
Hooray for happy colons!! Long may it last.
Posted 11/20/2014 1:25 AM (GMT 0)
My mom has had about that many for her RA. Hey, as long as it works....it's all about quality of life. Keep it up!
Posted 11/20/2014 1:31 AM (GMT 0)
That's so awesome you're still doing well! :) I've lost count of mine lol On one hand it's a hassle to go in sometimes for the infusions but on the other it's a relief ya? I look for forward to my infusions because I know it truly does help. Congrats to you :)
Posted 11/20/2014 2:51 AM (GMT 0)
Awesome woman, our Judy2!!!!!!!!! / Old Hat (34 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 11/20/2014 3:07 AM (GMT 0)
Great to hear! I've been reading about TNF inhibitors causing huge weight gain, is that true?
Posted 11/20/2014 3:16 AM (GMT 0)
Tunnel, I'm not sure if that's true for everyone that has been on a TNF. For me personally, I don't honestly know what has caused my weight gain. I've gained 20lbs in 2 years....was it because I hit remission and was able to retain my nutrients better? Was it because I hit middle age? Or was it because I have a thyroid cyst and my thyroid levels are a bit on the low side. At least for me, I wouldn't have an answer for you :) All I know is that since being on Remicade, weight gain or not, I've got my life back after flaring and simmering for 22 years. Weight gain to me is a fair trade off.
Posted 11/20/2014 11:47 AM (GMT 0)

Red_34 said...
Tunnel, I'm not sure if that's true for everyone that has been on a TNF. For me personally, I don't honestly know what has caused my weight gain. I've gained 20lbs in 2 years....was it because I hit remission and was able to retain my nutrients better? Was it because I hit middle age? Or was it because I have a thyroid cyst and my thyroid levels are a bit on the low side. At least for me, I wouldn't have an answer for you :) All I know is that since being on Remicade, weight gain or not, I've got my life back after flaring and simmering for 22 years. Weight gain to me is a fair trade off.

Sorry, I probably should've made my own thread instead of taking this one off topic, but thanks for responding, Red! I can understand weight gain like that, but I was reading threads where people were having dramatic and sudden weight gain, but I think most of them were years ago when biologics were newer for UC/CD, so I think it may be nothing now.

But again, thanks for your response!
Posted 11/20/2014 5:45 PM (GMT 0)
I'm glad you're doing so well Judy!! It's always nice to hear about the few that are doing well and in remission, the longer the better!!
Posted 11/20/2014 5:56 PM (GMT 0)
Woohoo!!! Happy to hear you're doing so well.
q
Posted 11/20/2014 8:33 PM (GMT 0)
Congratulations and wishing you and others for whom Remi has worked many more happy years of remission!
Posted 11/21/2014 2:28 AM (GMT 0)
Judy, thank you for posting this. I'm past the point of learning about Remicade, but when I was it really helped me to hear of people like you that had been on it quite a while. It gave me a lot of hope, and I bet this post will not only give present people hope, but also future people searching for info on this site.

Thanks, and congratulations!
Posted 11/21/2014 4:30 AM (GMT 0)
Congratulations, I hope you have an endless remission. Thank you for the inspiration.
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