HealingWell
Search Close Search
☰

Enteropathic Arthritis: a new site

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/11/2014 7:55 PM (GMT 0)
Hi friends,
Here is a new site created specifically with the purpose of talking about and sharing information on enteropathic arthritis. I have started the conversation with a brief description of my story. I plan to continue to post additional coping mechanisms, lifestyle updates and stories weekly. Please feel free to comment on the page. Good luck to all and be well.

http://enteropathicarthritis.com/

www.enteropathicarthritis.com
Posted 12/11/2014 8:02 PM (GMT 0)
Hey, Bearflag, nice blog. A couple of questions for you -

have you tried sulfazine? This helped me a lot in reducing joint pain. Your blog notes that you are taking asacol + remi. I wonder if subbing sulfazine for the asacol would be a helpful change for you.

you also note that you are a "high carb vegan." Have you considered a gluten free diet? This was a change I made about 3.5 years ago. The sulfazine took care of the random enthesitis I was getting in my hands and wrists and elbows, but I still had a chronic aching knee until I went GF. Just something for you to consider.
Posted 12/11/2014 8:25 PM (GMT 0)
Hi kazbern,
I tried gluten free for 6 weeks and from a personal anecdotal point of view I saw no change in my joint pain.
I would love to try sulfasalazine again...I was on it as a child before joint pain, but I am trying to have a family and sulfasalazine causes temporary infertility. Maybe after that goal is achieved in can switch drugs.
The rhum just increased my remi dose to 600mg from 400 and increased methotrexate from 7.5 to 15mg every week...so we will see. He wanted to take me off remicade for humira after the induction doses because I still had severe joint pain even though my bowels were great...I talked him into letting me ride remicade as long as I can...he said I was more conservative than he is lol
Posted 12/11/2014 8:28 PM (GMT 0)
I totally get it about the fertility issues. I hope that you are able to achieve your goals! If the joint pain gets to be too much you can always bank some sperm and then try sulfazine.

I hope you feel better very soon.
Posted 12/11/2014 8:55 PM (GMT 0)
Thank you Sir!
Posted 12/11/2014 8:57 PM (GMT 0)
heheh I'm a gal not a guy, but my DH and I spent many years doing advanced fertility treatments for reasons not related to IBD.
Posted 12/11/2014 9:06 PM (GMT 0)
Thank you Miss!
Posted 12/16/2014 4:17 AM (GMT 0)
Hi friends,
Here is an example of my lower extremity workout I do that my PT has tailored for me and my arthralgia. I definitely was not where I'm at back in July and the program started with just basic stretches. Might be of interest to those with knee problems. The mini-bands are great. You can find an amazon link on my site via the house icon below my screen name. I would suggest seeing your MD and PT before starting any new exercise routine. I'm stoked with my progress even though I measure progress in months. Cheers.

https://www.youtube.com/watch?v=AqrVm_LejM4
Posted 12/18/2014 6:24 PM (GMT 0)
Wait! You do know that methotrexate is contraindicated during pregnancy, right? Bc you said you were avoiding the sulfazine so you can start a family. I think you have to be off MTX for 6 months before you can even start trying.
Posted 12/18/2014 6:34 PM (GMT 0)
bearflag is male. he wanted to avoid sulfazine because it reduces sperm counts.
✚ New Topic ✚ Reply