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Proctitis diagnosis, Athlete needing advice.

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Ulcerative Colitis
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Posted 1/8/2015 8:08 PM (GMT 0)
A little of an update.

As of today I am still using Canasa "as needed", this is generally when I notice a flat side to my stool meaning there is inflammation inside. I would say I use it on average once every 3 days.

When on Canasa the upper right quadrant pain is non existent, so that pain was likely in relation to the inflammation.

I still feel good, bowels movements are still normal, I still drink coffee though as it's the one thing that MAKES me go. If I skip my coffee it slows me down and since I generally go once a day. I don't want to skip that.

I currently take Mega Red extra strength Krill oil (500mg once daily), I also use Natren B. Infantis 1/2 teaspoon daily, and quit doing fresh veggies and instead use a NON GMO - Organic super greenfood powder blended with dark chocolate almond milk (carrageenan free of course)

The B. Infantis and lots of prayer work best, most days I don't have symptoms at all really.

Thanks again for all the help everyone.
Posted 1/8/2015 9:44 PM (GMT 0)
Glad you came back to give us an update.

Funny story - I fell out of remission and developed rectal inflammation this past November! Put all of my posts about rectal meds to the test because darn I was reluctant to get some.

But I did finally call my GI and ask for Canasa. $200 (OUCH) later I had a 30 day supply. I started using them daily in December.

Let's just say that it's the 2nd week of January and I still have 14 left in the box.

One week of daily use got me pretty much all better but I've continued to use them and I will do that until I have zero symptoms. I'm hopeful that catching this fast will not leave me using rectal meds for another 5 years!

The one thing that this episode made so clear to me is that aside from passing some mucous and a very tiny bit of blood, the most obvious evidence demonstrating that I had inflammation was the awful, awful gastroparesis and heartburn I got coinciding with the bloody show on my stool. Whoda thunk it - rectal inflammation = upper GI pain? Yes.
Posted 1/8/2015 10:24 PM (GMT 0)
so any idea what caused the great fall kaz ?
Posted 1/8/2015 10:55 PM (GMT 0)
No idea. random luck? My annoying 15 year old daughter?
Posted 1/13/2015 2:50 PM (GMT 0)
That's so weird! I've had a similar "diagnosis" and was so confused about how I've got "very mild inflammation" but absolutely no sign of inflammatory bowel disease. I have two excellent doctors and I'm inclined to believe them because they're both very experienced and well respected.

I've had stool tests, blood tests, and a flex sig and the most they've found is "mild erythema" in the rectum which just means small patches of slight redness. I get mucus and blood (although I also have a fissure so it's always hard to know the source of the blood) never had any diarrhoea, maybe slight constipation but nothing major. I've also never had any pain. I reckon you and I are in pretty similar boats. I'm starting to wonder if I have an allergy because I also have chronic rhinitis (inflammation of the nose) Here's to conclusions for us both!
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