UPDATE: SCDiet Post

Hi all --


My original post may be found here https://www.healingwell.com/community/default.aspx?f=38&m=3292927

I just wanted to update if anyone wanted to know what happened -- I had been planning on going to the hospital because I was so sick of everything going on.

I felt more exhausted that I had ever been in my life when I woke up the day I already planning on going. I was admitted to the hospital after discovering my heart rate was 157 (they brought the dr to me when they were triaging me immediately) and after doing one blood test, my hemoglobin was 11.4/114 (was shocked it was so high - I hadn't eaten in a few days and the only reason I was having any BMs was to bleed) and dropped to 9/90 within 2 hours. I was also having chest pains and breathing felt like a chore (was taking short shallow breathes) and it was the most terrifying experience!

Well, it turns out I got freaking c. diff (for the second time, first time was last October). The first time I got it, I had about 8 stool tests done before they finally found a positive. This time I gave them my first sample and they came back in an hour!

However, I did respond to prednisone so I get to be on a round of that once again, plus 2 weeks of vancomycin 125mgx4/daily, and then 125mgx2/day for another two weeks.

So I have probably had this for the last few months, which is why i have such intense nausea/vomiting and also why Humira only worked for me for about 5 weeks and even a double dose didn't work (was probably fueling the fire by keeping my immune system down). So I am actually happy to have c. diff hahaha.

Thank you everyone who took the time to answer my questions last week, I will no longer be trying this SCDiet since I can't afford to lose more weight, and the majority of my problem didn't seem to be a flare (vanco is already slowly helping).

c diff is such a killer!! it's interesting that you also got it while on humira. i got c diff a few days after my humira loading dose. i knew something was off because i had extreme bloating. then the very high, delirious fevers came and tons of bloody diarrhea and nausea. i thought it was just a terrible reaction to humira but i couldn't believe how much worse i had gotten in such a short time. i missed the second dose and ended up in the hospital. i needed 2 bags of blood, lots of fluids, iron, and flagyl/vancomycin. the gi doctors said that if i had taken the second dose of humira, it would've killed me. by the time i was in the hospital, i already had paralytic ileus in my colon.

i really hope you can get rid of it! i had to do three rounds of antibiotics. the last round was 1.5 months of vanco and that killed it off.

such a terrible time in my life! i feel bad for everyone who has to go through c diff.