How do you deal with another incurable illness besides UC

Are you talking in general or about a specific one?

Sorry you are not feeling well.

To answer your question, I wouldn't be able to deal with it.

Some part deep inside of me (call it my spiritual essence or soul) never believed that the disease was incurable. I think the western modality of treatment tends to look at it from the suppression angle, rather than treating the root cause (which is heavily favoring the microbial side of things).

Looking at the dozens case reports of people who eliminated their UC using FMT, as well as other methods gives me tremendous hope for the future. It basically invalidated everything the medical establishment said about it not being curable.

For instance, PK and briggs (see Briggs protocol) are two posters I look up to. They no longer have UC pathology and are med free (and they don't post here anymore which is a bummer).

In psychology, the idea that there is nothing one can do to help themselves is called learned helplessness. We've all been there. I strongly believe there are many things people can do, but just don't have access to the right information.

Best.

I think it depends on what this other "incurable" disease is. That is just something doctors tell us. The paradigm is changing, science (as well as alternate modalities) are advancing. There is tremendous progress.

I wish you the best Andrina, you will find a way to cope. I have for years! You can!

I thought UC was a pain, now I have type 1.5 diabetes. Everything I ate sent my blood sugar almost to 300. I was so depressed when I was first diagnosed. Diabetes is a disease that destroys basically every organ in your body if it's not well controlled. I decided to treat UC and diabetes as one autoimmune disease so I cut out grains and sugar and have seen marked improvement in both conditions...luckily. My hbA1c is holding steady at 5.5 and I'm going to have a colonoscopy this year to make sure my remission is legit.

Thats one helluva cure!

People tend to get too bogged down on the term "incurable". It is only a relative term meaning that RIGHT NOW, we dont have a cure. It does NOT mean that we can NEVER find a cure. Without a doubt we will one day. Its impossible not too. It is complex, but not impossible.

That kind of realism helps make me optimistic about these "incurable" diseases

When exactly is the last time anything was actually cured?

Sorry to hear of your situation Andrina. Take it one day at a time, don't believe the worst, no one knows anything absolutely for sure how your life will be lived.

Poppie, sorry about your dx. I had to look it up and now have this in my memory bank to worry about along with all the other random worries.

A family member recently had emergency open heart surgery out of the blue (aortic dissection). I know it could happen to me or spouse but my mind can truly not even grasp that reality. What we have is today. Hug your loved one(s).

There is a possibility that I got meniere's disease. I hope the ENT was wrong but it still bugs me that he brought it up.

I'm sorry Andrina. I didn't know about this diagnosis. I think there are ways you can treat menieres without medication? My cousin has it and he's been able to do okay with some lifestyle changes. Maybe he is lucky. I don't know much about it. I hope you don't have anything else to worry about. I feel like in my case, another thing would just be another things weighing on me. It's the last thing I need but I just try to be thankful for the days I feel okay and I try to look at the positive side when I can.

Andrina.. I do think doctors sometimes have a habit of speculating out loud when they are unsure of a diagnosis, and so at this stage I would hold off worrying. I can tell you that my husband had a vertigo attack about 2 years ago, and whilst it was a shock, it was a one off occurrence, and it never happened again!

ewafromwarsaw...I like your story!