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Posted 4/23/2015 11:42 PM (GMT 0)

kiptyn said...
If you doctors are hesitant to give you oral prednisone, you should try to get hydrocortisone enemas. They can work really fast and the amount of steroid that gets absorbed into the rest of your body is lower than with oral medication.

You can do hydrocortisone enemas along with the other enemas.

If it were me, I'd also do a short course of oral Pred where, like for asthma, you start at a high dosage and taper quickly over 10 days or so. But my current philosophy on stopping a flare is to hit it early with everything you can.

What about cortifoam? I have a few bottles left from my pro titis dx
Posted 4/24/2015 12:00 AM (GMT 0)
Yes, you can use the cortifoam, are those what you were on before?

q
Posted 4/24/2015 12:34 AM (GMT 0)
I was using it as needed, they weren't part of my daily routine meds. How far up does it go? I've never used cortifoam for more than a week at a time. When should I use it? Mid day. All these rectal meds are useless when you're in a flare.
Posted 4/24/2015 2:42 AM (GMT 0)
uh, not true....but it's a commitment. You don't know the value of them or how long you need to use them yet.

What was your daily routine of meds in the past?

I'd suggest you give this all a go for a few weeks...mesalamine enemas x2 daily. If all is good, then all is good.
If the cortifoam hasn't expired, you might use it for a boost if things go awry with tapering the enemas or maybe switching them for the day one.

Please, please get a copy of the results of the biopsies for your records...hard copy so that you can have it in your hands.

zengirl's suggestion of urine colouring the water when taking mesalamine if there's bleach in the toilet water....I never asked if the red urine was in the toilet or you noticed it coming out? Her thoughts make sense.

Hang tough....its good you're starting to feel a tad better.

q
Posted 4/24/2015 10:47 PM (GMT 0)

zengrrl said...
When you're using Mesalamine enemas, your urine can appear brown/dark red in a recently bleached bowl. I assume hospitals bleach daily.

Please see http://journals.lww.com/jpgn/Fulltext/2013/05000/A_Curious_Case_of_Red_Brown_Urine_in_a_Child.30.aspx

wow, you guys are amazing.
Now that i look back the cleaning lady had just cleaned my room and the bathroom, and i remember the strong smell of bleach and was wondering why they would use bleach around sick people? isnt cleaning with bleach terrible. Anyways, when i went to the toilet there were foamy bubbles still in the toilet (i guess she didn't flush after she cleaned the bowl) i also recall the urine didnt turn that redish brown colour until after it hit the water. pretty amazing stuff..


*****Update
I'm home today. I'm significantly better. Ive only had 2 bms today (first one was the enema) and second one was formed and semi loose which is a great improvement from the bloody mess i had just days ago. I just picked up my extremely large package of meds from the pharmacy. (I guess i didn't realize how many shopping bags 60 enemas would be) Anyways im making progress and staying extremely positive during all of this mess. Other than being exhausted im really happy to be back home.
Posted 4/25/2015 2:01 PM (GMT 0)
Glad you are home! Yes I take a big bag with me if I have to pick up enemas locally. I try to have them home delivered if you can, you get more.
Posted 4/25/2015 5:15 PM (GMT 0)
Ahem.......you better take back your words on enemas not working during flares. I'd love to see it ;)
q
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