Posted 5/14/2015 2:46 AM (GMT 0)
I just had my appointment!
I have not seen him since the colonoscopy and only then had only seen the back of his head.
I was diagnosed at like the very beginning of March and I was already filled with so many questions about what is wrong with me. The first question being "where is my colitis?" I was hopeful it was just my rectum since on the reports it kept talking about all that was wrong with my rectum (I had weak spots and hemmoriods) but alas I was told "you have universal colitis" which isn't going to be fun, because I have been infatuated, obsessed, maybe even addicted to every thought concerning my health. I had not even turned 18 when things were going down hill. I was 17 and about to be diagnosed with mononucleosis hepatitis. I kept going to the restroom, thought I had just... Outgrown my bladder or something. My friends called me there puppy because I had so many bathroom breaks. But looking back on it now this could have been UC or my fear of the big ovary problem. (Have not gotten my results from the ovary ultrasound yet. Just sayin...it's been like 4 weeks.)
But looking back as far as I can I have always had a bathroom issue, I go to the restroom a lot. I thought that was just how I was. But after getting that mono that made me yellow and admitted into the hospital sparked my curiosity about my over all knowledge of health. Before I had mono, I had the flu, wait scratch that apparently I had both mono and the flu at the same time, the flu left I felt kinda better but "off" I kept telling my mom, this doesn't feel like the flu. She brushed it off because I got a diagnosis and started eating again, untill I turned yellow and broke out in a rash that has still yet to heal and has scarred my legs. Yet November passed and I started getting irritated because I looked pregnant and that wasn't a symptom of mono, my stool was thin, not a symptom of mono, I could not find a picture on the internet to match my rash (freaking myself out even now)
And I literally was overwhelmed with worry that I caused myself daily panic attacks even if I was not thinking about it (I would just shake and heavy breath and that in response would make me cry because I didn't know what to do.)
Well nothing like a couple pills to fix me up right? Wrong. The doctors got pestered with me always bugging them about silly mono questions. But finally one busted and decided for me to go see a gastrointestinal doctor. My mom was furious with me at this point thinking I looked fine and should stop being a drama queen, since it couldn't be something more that mono I had a ct scan with contrast to prove that.
(Though a ct can't see colitis or bacterial infections.) Now my birthday came,my family was confused why I didn't want to celebrate. And of course got mad at me. But to me I was beyond upset and scared. Something was wrong and no one believed me. How could I celebrate my birthday when I felt soo bad and was constantly having panic attacks and going to the restroom soo much that any visits would just be a waste of time for even people that live in the same house as me.
Well anyhows my gallbladder area hurt so he checked those, didn't find anything wrong with it. So he decided to do an upper scope and lower. (That process was FUN) First off the laxatives hit me the morning of the scopes and you can't drink water so I got very very dehydrated in like 10 minutes. Gawww I never pooped soo much. I had a heat stroke then to. Then once I got there they need a urine sample...WITH WHAT WATER. To see if I was pregnant (I am a virgin so this was silly to me but I understand it is required.) So they had to pump me full of liquids, but with what veins? I went through several doctors (yes the pros) no one could get my vein. It hurts btw when you are dehydrated the pain was like a stab wound and then they got the anesthesiologist to try and he was so generous to knumb me for a digging. He finally got it above the knumbed area. So the fluids went through and I still couldn't pre, the nurses took turns on rubbing my back to encourage me to pre for an hour or two. Then they decided "forget this let me get a catherader. (Ig that is how you spell it.) And the sucked the pee out of me. At this point I thought "you know what you could have let me sleep through this.."
Surprisingly I was not pregnant. ( I did look pretty preggers though.)
But hey now my doctors and my mom know now that I had actually something other than mono?
But that is the saddest part of this disease is that people dont often believe you have it.
(All what they need to do is sit in the neighbor stall to know that my colon and I are having a rocky relationship.)
Well that is my long summary of what happened prediagnosis.
Bless you for reading this mess if you do.
- thanks, Rice Bunny