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Ulcerative Colitis
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Posted 6/6/2015 3:44 PM (GMT 0)
Hey guys. This is my first post here, but I do follow this forum for tips and advice that have helped other members in the past. Anyway, I'm 21 and was diagnosed with Ulcerative Proctitis around 6 months ago, and was given the Asacol foam enema. This was followed up with a colonoscopy and I was then told I was in remission.

Over the past two weeks, I have had a high amount of bleeding along with some extremely painful cramps, which I have never even had close to before. I have an appointment for another sigmoidoscopy on Friday, but I cannot deal with this anymore, as the pain is unbearable, and I have had at least 30 movements today, and this was only in the past three hours. What should I do? We rang 111 and they have given us an emergency appointment at the hospital at midnight.
Posted 6/6/2015 4:04 PM (GMT 0)
It sounds like your inflammation is higher now than just in your rectum (proctitis). You likely need some stronger medication. Maybe they will put you on an oral mesalamine like Lialda. Hope you start feeling better soon! Keep us posted!
Posted 6/6/2015 4:30 PM (GMT 0)
I think it is always a mistake to fight proctitus in the proctitus area only. UC attacks the whole colon but sometimes it is not yet visible except in the proctitus area. If you only treat that area it often moves farther up. It is my personal opinion that everyone diagnosed with UC proctitus should be treated not only in the proctitus area but given oral mesalamines at the same time, so it keeps the farther up area at bay, cutting it off at the pass. Yours has moved farther up and now needs oral mesalamines. Doctors just seem kind of stupid about this, just waiting for you to get worse first and then trying to treat it after the fact. You need to be proactive with this disease, not reactive.
Posted 6/6/2015 4:34 PM (GMT 0)
Oh, I take three 500mg melsalazine tablets per day. I forgot to mention that. They're the Octasa ones.
Posted 6/6/2015 4:42 PM (GMT 0)
Definitely sounds like you're flaring. I would suggest a C-Diff test. Are you restricting diet at all?
Posted 6/6/2015 4:57 PM (GMT 0)

garylouisville said...
Definitely sounds like you're flaring. I would suggest a C-Diff test. Are you restricting diet at all?

I've switched my meals. Currently, I'm eating wholemeal toast for breakfast, ginger biscuits/tuna sandwiches (dry) for lunch, then chicken soup for dinner. I have essentially done as suggested and tried to lay off of dairy and switched to more frequent, smaller meals.
Posted 6/7/2015 3:09 AM (GMT 0)
I wouldn't eat any raw fruits or veggies, whole grains or high fiber foods at least till you meet the doctor
I hope you feel better
Posted 6/7/2015 3:38 AM (GMT 0)
garylouisville,

I differ with you a little bit there ... I tend to think it's going to do what it's going to do, in terms of moving upward in the colon. My doctor says that once it's established it does not tend to move up.

Of course, some cases do move upward. But I tend to think they were destined to do that, and medicine would not have made a difference.

Hard to say for sure, though.

Louisville is a great town, by the way.
Posted 6/7/2015 12:48 PM (GMT 0)
Cheers guys. Well, I saw the doctor yesterday and they prescribed me hyoscine butylbromide tablets for the nausea. Still getting the urge to go obviously, but there is virtually no discomfort now which is great.
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