Rectal inflammation that won't die

Not sure about becoming the steroid dependent portion, but I can say and others will echo the fact the rectal inflammation is the hardest part of a flare to get under control. I lived with that small friggin problem for up to 6 months at the end of a flare once. It might be just more time needed, like in a lot more time.

Steroid dependency means that without steroids your uc symptoms return.

iPoop said...
Steroid dependency means that without steroids your uc symptoms return.

So, without the steroid (budesonide) suppositories, my symptoms came back immediately. Does steroid dependency apply when we are talking about steroid suppositories too?

Have you never been on any mesalamine retention enemas?

Have you had stool samples done to check if something else is going on?

q

This post answers a few questions. I didn't know proticis was some times treated with immunosuppressive. Plus I did not know there could be bad side effect from cortisone taken in low doses as rectal meds.

Might be a stupid question but could one just decide to live with rectal bleeding if things don't get worse rather than takin immunosuppressive medication ?

Ok I get it you had more than just procticis in the way you had inflammation in other areas and now worry your proticis spreads again.

Proctitus is just a description of where the UC is. Immunosuppressants can easily be used to treat it but most doctors would think that the risks of those meds is probably higher than just using a localized topical med to treat it.

LookingForAnswers7 said...
Hi Worriedgirl3, I read your post and it reminds me of my own situation... I was on the 4 Lialda + budesonide compound suppository last year and as soon as I tried to taper with Canasa it just led to a simmering flare which turned into a major flare. Currently I'm trying to get off the steroid enemas by alternating with the mesalamine ones.. I think you should definitely try the mesalamine enemas and see if they help.. some other things you might to add -- a good probiotic like VSL #3, turmeric...

Also, I would recommend keeping a food diary... it's possible that there's something in your diet that's irritating your system too. For me, dairy and sugar are major irritants.

Wow! Yes, you sound like me! Although, I hope to avoid another big flare. Thanks for the advice! By the way, what did they put you on after the 4 lialda/canasa/budesonide supp combo failed you?

Initially when the 4 lialda + budesonide supp combination failed, my doc put me on hydrocortisone enemas only.. then things got much much better after 4-6 weeks. Btw, not sure if you're on the same supp but the budesonide supp I was on had a mix of mesalamine + budesonide. It worked very well for a while.. it was only while tapering that I noticed symptoms. about a month ago, my doc had me add the 4 Lialda back to my daily regimen to see if they would help assist in getting off the steroid enemas. So yes, as quincy said I'm currently on 4 Lialda daily + alternating the steroid & mesalamine enemas at night. I'm still on the alternate schedule with the enemas at night and am hoping to taper off the steroid enemas soon. My doc said that if it doesn't work then we will have to discuss the next level meds to keep me in remission. It is amazing how stubborn rectal inflammation can be and it usually takes a long time to heal. So patience is key too..

My advice would be to try the mesalamine enemas + diet mod + supplements and see if that helps first. You might just find a combination that works. You can also get your doc to write a prescription for VSL#3 DS packets....I think it's a really good probiotic that is known to help a lot of colitis patients.