Posted 6/18/2015 12:10 PM (GMT 0)
The good news is I am improving - I'm probably being impatient. I started 30mg of pred last Wednesday, and then this past Tuesday my GI bumped it up to 40mg - I was still having a ton of bleeding and a fair amount of pain. Most of it feels lower and I wasn't able to retain my rectal meds. Today is day 3 at 40mg and things are better - the pain is pretty much gone and the blood is becoming less in volume. I'm also not having movements that are blood only.
That being said, this early morning diarrhea is the worst! I had it with my first flare a couple of years ago and feel like it took a couple of weeks on pred for it to get under control - is that the case with you all? I just feel like I should see more formed action happening. I wake up between 4:30am and 5, and then am in and out of the bathroom for a couple of hours until I can eat breakfast and take my pred. Before I went up to 40mg, I felt like things were getting a little more formed but I was also bleeding more and more - the bleeding is getting better. What can I do to get this D under control? I do pretty well throughout the day otherwise.
Right now, I've really backed out of my supplements since I feel like my body hates everything right now - I'm only doing VSL with some glutamine at night. I tried some resistant starch last week and that did not go well. I'm back on the Autoimmune protocol and am only eating cooked meats, veggies, and fruit. Any ideas are welcome.