HealingWell
Search Close Search
☰

Starting Entyvio this week

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/27/2015 1:10 PM (GMT 0)
Was wondering if anyone here has taken E and saw relief after the 1st or 2nd treatments?   I get my first one this friday and my next one on Aug 14th and I leave for Vancouver the very next day and would hate to miss this trip!   Would love to hear some experiences of those on E and of any side effects you may have experienced.    hear a lot about joint pain, but never felt any of that from Remicade so hopefully I will get lucky and not get that... Thanks for your responses!
Posted 7/29/2015 4:29 AM (GMT 0)
I have been on Entyvio since February. I started seeing improvements after my 2nd treatment and by the 3rd I was feeling Awesome. I then had to wait until May for my 4th infusion (which was my first 8 week period) Around week 6/7 I noticed some of my symptoms coming back and then I had another infusion 7/7/15 (5th infusion) and I am 3 weeks out from that infusion and already having more issues. I belong to an entyvio facebook page and from what I read most people do better with either every 4 weeks or every 6 week infusions. I see my GI on Thursday and I hope that he will change my dosing so that hopefully I stay "well" 
Posted 7/29/2015 1:31 PM (GMT 0)
I have my first one this Friday and then my second on 08/14.  I have an appt with my GI on the 24th to discuss.  Should I just ask him to go straight to six week intervals to get things under control or should I try the eight weeks and then move them in if needed...I just don't want to wait for things to come back, I want to get on top of it!   My doc believes less is more and wants me to get the most relief from the least amount of drugs, which I understand, but due to the nature of this drug and how slowly it may work I would like the approach on this drug to be "go hard or go home" since it's my last option.   Thoughts?
✚ New Topic ✚ Reply